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Maddie’s Liver Transplant

$8,125 of $10,000 goal

Raised by 91 people in 8 months
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Our six month old baby girl, Maddie, is awaiting a lifesaving liver transplant at Kaiser Los Angeles Medical Center three hours away from our home. It’s something no parent wants to hear their baby needs a transplant to survive. As you can imagine, this is a very difficult time for our family. My husband and I need to be with Maddie while she’s undergoing care and being monitored. She’s a brave little baby. Maddie was diagnosed with Interlobular Biliary Duct Paucity at three months old. This is Maddie’s second time to be admitted to the hospital. This time we are not sure how long the stay will be. We continue to pray she improves on her own and are seeing some small improvements, but we know we’re right where we need to be when it’s time for a liver transplant. The surgery will take place at Children’s Hospital LA. We are currently meeting with the transplant team to determine what needs to happen next. Unable to work right now, food and transportation costs are adding up quickly. It’s an hour by hour, day by day wait. We could really use some help to get us through this time so we can be here with Maddie. We would greatly appreciate your help, any amount you can donate will help us to be able to continue this fight with our daughter. Please keep Maddie in your prayers to make a full recovery. Stay strong Maddie, mommy and daddy love you so much!
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This little lady will be one in a few short weeks. She is still doing so very well. She hit the three month post transplant mark on 2/6/19. I’m so thankful for her every day.
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Shame on me for not updating sooner. Maddie was discharged home on Wednesday November 21st. She’s doing amazing. I want to thank each of you for your contribution to us. It allowed us to be there with our baby during such a difficult time. Her most recent labs looked great on Monday at her first follow up appointment.
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Last night was a bit of a challenge. Her liver is processing the medications rather quickly. It is an adult functioning liver in a infant body. So the meds are not working as well to keep her sedated and comfy. They finally got things fine tuned last night around midnight. She rested well during the night. Her labs are looking better. She is overloaded with fluids right now so they’re trying to manage it. She’s oozing blood from her access sites, her PICC, arterial line and Foley. She also has a little pulmonary edema. Her secretions are a little blood tinged just from the overload of fluids. Her bp wasn’t as stable as they like last night so they gave her extra fluid. All the things that are happening are expected from a medical standpoint. She has had blood, plasma and platelets today.
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As of Monday 11/5/18

POSITIVE NEWS!!!

We received an offer for a liver today. The surgeons went to see it this evening. I just got the call that it is a good organ for Maddie. She will be going to the OR at 4AM. Please keep us in your prayers as our journey has just begun. Please pray for the donors family. They are grieving an unimaginable loss of their family member. I will do my best to keep updating on Maddie’s progress.
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$8,125 of $10,000 goal

Raised by 91 people in 8 months
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KS
$40
Kimberly Silva
6 months ago
BB
$50
Brock Baker
6 months ago
KA
$100
Kathleen Armstrong
6 months ago
BB
$100
Beverly Baker
6 months ago
OI
$100
Oathkeepers I.E.
6 months ago
$500
Kaimer Trucking & M.V. Tyer Trucking
6 months ago
BC
$25
Babette Compton
6 months ago
EU
$10
Ed Ustan
6 months ago
RW
$100
Randy Wiechman
6 months ago
$100
Linda Shinn
7 months ago
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