Love for Noah

$52,355 of $100,000 goal

Raised by 350 people in 44 months
Our son Noah was diagnosed with acute lymphoblastic leukemia (ALL) just days before his first birthday in December of 2011. Since then, he's been having the fight of his life. Nearly 3.5 years later Noah was scheduled to end treatment after a long (and seemingly successful) battle.

Unfortunately we just learned that Noah  has relapsed and his leukemia has returned, just in the past few weeks. The relapse is in his central nervous system and will require immediate reinduction therapy along with specific chemotherapy AND radiation treatment to the nervous system and brain. There are risks of severe side effects with this treatment, but without it, he cannot win.

We are all in shock but we are doing everything we can to prepare Noah for another long battle and make sure he is in the best position to win. It's heartbreaking that just months after he was allowed to finally go back to school and do all the activities he's been waiting to do for years, he must go back into therapy. All the progress and treatment over the past 3.5 years starts all over again. More intensive and more dangerous.

First and foremost, we are asking for your prayers, positive thoughts, well wishes, anything. That is the most important thing!

We are starting this fundraiser to help with some of the costs involved in this very long process. We are still working to pay off the debts from Noah's first round of treatment as well. Cancer, especially leukemia that has such a long treatment cycle (years), is very expensive. While insurance will cover a big portion, there are several treatments deemed "experimental" which are not covered, in addition to sometimes 3-5 co-pays per week, plus specialized care, and anything to keep him happy and positive.

Any donation is deeply appreciated and will be put directly towards Noah's medical expenses and any specialized treatment we can get. I would be forever grateful, even if all you can give is a prayer or positive thought.

We will get him through this -- again! Thank you so much for your love and support!

Regards,
The Keck Family
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It has now been 3 weeks since Noah's CAR-T cell infusion and things have been fairly smooth, all things considered (just the one hospital stay).

We have about two more weeks to go in Dallas if everything stays on track.

I'm happy to report that after spending ~4 days in the hospital the other week, Noah hasn't had any notable issues or other side effects creep up. His counts have been recovering slow and steady and he says he feels "good". He has been a lot quicker to tire out, but considering what is happening inside his body, this is not a surprise.

The past two days he's had what might be a small stomach bug, along with a spike in his white blood cell counts, which is expected, but he seems better today and hopefully that's over with.

Next Tuesday at the 4-week mark he will have an LP (spinal tap) and a bone marrow biopsy, along with a slew of labs to check on the progress/proliferation of his CAR-T cells. They want to see a notable decrease in his B-cell count (if not near zero already) to confirm that they are still alive and doing their job.

His HLA typing tests and results were sent over from MD Anderson as well, just as our plan B, which we hope to never need.

I'll share another update next week, hopefully with positive news from his tests/procedures and with our release to head home! He likes Dallas, but he's ready to get back to San Antonio and out of the hotel/hospital. Me too!

In the mean time, he'll keep playing his favorite game over in the hospital studio: Wheel of Fortune :)
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Thank you all for the continued outreach to check on Noah and how he's been doing. I'm sorry this update is a little late, but it's been non-stop between appointments since Tuesday and trying to keep an extra close eye on vitals.

I'm very happy to report that all is going really well so far!

Since Tuesday, Noah has been feeling pretty well overall. He gets tired a quick more quickly since his blood counts are still a bit low from the chemo the prior week, but he certainly wants to get up and go 100 mph! He can't do this quite yet, but it's a great sign.

All of his initial labs and exams have gone well and they'll continue to monitor him very closely for the next couple of weeks here in Dallas. It will take about 30 days to see if the engineered CAR-T cells have been effective at killing off all the B-cells (good and bad), so they don't run that test initially.

We're still in the high-risk window for the severe side effects, which can manifest anytime throughout the next 7-10 days, but we are all feeling good that his body is handling the cell infusion really well.

He's chomping at the bit to go outside and "have fun". Soon!

We appreciate all of the thoughts, prayers, well wishes and gifts that have been sent here to the hotel. I've been reading him all of the notes and comments and the toys, books, and activities have kept him busy (for the most part).

The hospital has done a great job giving him some fun activities to do as well. He was able to visit the "studio" where they broadcast games every day for all the kids and was the designated wheel spinner for the Wheel of Fortune. He had been waiting to do that since our last trip here

We hope everyone has a wonderful Memorial Day weekend.
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Update: All done! The infusion went smooth and he’s under close observation for the next few hours.

——

It’s almost go time! Noah’s cells are here, chilled to a cool -194 degrees Celsius.

They’re warming them up now to his body temp and then they’ll start the infusion.

He’ll have a room full of doctors, nurses, and other observers for the next 2-3 hours just watching him closely for any issues.

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Today is the big day. Someone is a bit nervous, but he’s ready!

His cell infusion is en route and will be here in about 30-45 minutes.

He picked his special Spurs Coyote shirt to wear today. Said it made him feel better
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Read a Previous Update
Tessa Williams
20 months ago
1
1

Noah- We are sending you a little something. We are so happy to know that you are one of our many wonderful children at Altitude Trampoline Park. --Tessa Williams

+ Read More
Ted Miller
23 months ago
1
1

Hi Chad; we think about Noah everyday. Thank you so much for the update. Noah continues to be in our thoughts and prayers. Tell him that we said "Howdy" and send our Love! Lyn & Ted

+ Read More
John Seybold
30 months ago
1
1

Chad, Noah and your family are in our thoughts and prayers. Hang tough Noah, you got this!

+ Read More
Ted Miller
35 months ago
1
1

Chad; Thanx for the update! Please let Noah that we are thinking about him everyday! Our prayers will be answered when he is fully recovered and visiting with us in Colorado!

+ Read More
Ted Miller
42 months ago
1
1

Thank you for the update! Sounds like ya'll have been very busy. Our thoughts and prayers continue to be with Noah. We are very hopeful that 2016 will be the year when he beats the "BAD GUY"! Lyn & Ted

+ Read More
Lisa Dockery
43 months ago
1
1

Please know that that your sweet little Noah remains in our thoughts and prayers. Wishing you and yours a blessed Thanksgiving - and, thank you for the updates! You all remain uplifted in prayer and positive, healing energy! We love you!

+ Read More
Ted Miller
44 months ago
1
1

Chad, thank you for the update. Our thoughts and prayers are with Chad and his family. We hope the Good news continues! Lyn & Ted

+ Read More
Ted
21 days ago

Great news! Thank you for the update! Lyn & Ted

+ Read More
Krisana
1 month ago

Noah is a super star! He has proven it time and time again. And it sounds like the treatment center you selected for Noah is topnotch. We are praying for a successful intervention and look forward to welcoming Noah and family back to San Antonio in the summer.

+ Read More
Ted
1 month ago

Chad, Sounds like he has made some positive progress! Our thoughts & prayers are with Y'all! Please give Noah our Love and tell him we said "Howdy"! Lyn & Ted!

+ Read More
Ted
3 months ago

LOVE YOU A BUNCH NOAH!

+ Read More
Lori
3 months ago

To choose among several complex / risk ridden choices for your child must take extraordinarily meticulous consideration. I am in awe of your family's strength and the power of love. His face says it all- he is surrounded by loving faithful warriors of the highest order.

+ Read More
Amy
6 months ago

Noah and family. My prayers are up for you and your doctors. I love you kiddo!

+ Read More
Joe
6 months ago

Chad, thanks for keeping me in the loop, he is truly an extraordinary little superman!! Our thoughts and prayers.....!!

+ Read More

$52,355 of $100,000 goal

Raised by 350 people in 44 months
Created October 21, 2015
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SR
$50
Sherry Rastgoo
7 days ago
$100
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13 days ago
$200
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21 days ago
GH
$50
G Harris
23 days ago
$300
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27 days ago
$250
Julie Jacobs
28 days ago

Love

$100
Anonymous
29 days ago
$100
Anonymous
1 month ago
JS
$500
Joe Sadri
1 month ago
Tessa Williams
20 months ago
1
1

Noah- We are sending you a little something. We are so happy to know that you are one of our many wonderful children at Altitude Trampoline Park. --Tessa Williams

+ Read More
Ted Miller
23 months ago
1
1

Hi Chad; we think about Noah everyday. Thank you so much for the update. Noah continues to be in our thoughts and prayers. Tell him that we said "Howdy" and send our Love! Lyn & Ted

+ Read More
John Seybold
30 months ago
1
1

Chad, Noah and your family are in our thoughts and prayers. Hang tough Noah, you got this!

+ Read More
Ted Miller
35 months ago
1
1

Chad; Thanx for the update! Please let Noah that we are thinking about him everyday! Our prayers will be answered when he is fully recovered and visiting with us in Colorado!

+ Read More
Ted Miller
42 months ago
1
1

Thank you for the update! Sounds like ya'll have been very busy. Our thoughts and prayers continue to be with Noah. We are very hopeful that 2016 will be the year when he beats the "BAD GUY"! Lyn & Ted

+ Read More
Lisa Dockery
43 months ago
1
1

Please know that that your sweet little Noah remains in our thoughts and prayers. Wishing you and yours a blessed Thanksgiving - and, thank you for the updates! You all remain uplifted in prayer and positive, healing energy! We love you!

+ Read More
Ted Miller
44 months ago
1
1

Chad, thank you for the update. Our thoughts and prayers are with Chad and his family. We hope the Good news continues! Lyn & Ted

+ Read More
Ted
21 days ago

Great news! Thank you for the update! Lyn & Ted

+ Read More
Krisana
1 month ago

Noah is a super star! He has proven it time and time again. And it sounds like the treatment center you selected for Noah is topnotch. We are praying for a successful intervention and look forward to welcoming Noah and family back to San Antonio in the summer.

+ Read More
Ted
1 month ago

Chad, Sounds like he has made some positive progress! Our thoughts & prayers are with Y'all! Please give Noah our Love and tell him we said "Howdy"! Lyn & Ted!

+ Read More
Ted
3 months ago

LOVE YOU A BUNCH NOAH!

+ Read More
Lori
3 months ago

To choose among several complex / risk ridden choices for your child must take extraordinarily meticulous consideration. I am in awe of your family's strength and the power of love. His face says it all- he is surrounded by loving faithful warriors of the highest order.

+ Read More
Amy
6 months ago

Noah and family. My prayers are up for you and your doctors. I love you kiddo!

+ Read More
Joe
6 months ago

Chad, thanks for keeping me in the loop, he is truly an extraordinary little superman!! Our thoughts and prayers.....!!

+ Read More
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