Love & Support for Kieran Brown

$19,533 of $25,000 goal

Raised by 162 people in 13 months
Created August 8, 2017
Kieran Brown is 18 years old and was diagnosed with Stage 4 Hodgkin's Lymphoma in late July with spleen, liver, abdomen and bone marrow involvement. He has a mass on his chest that is 15cm as well as other smaller masses. Kieran already had 1 mass removed from his clavicle as it was quite uncomfortable.  Despite this terrible news, Kieran's oncologist is very optimistic about Kieran's prognosis and treatment.

This has been a very overwhelming and difficult time for Kieran and his family. He lives with his amazing mother Cindy in Nanaimo, BC and has a brother Tyson who lives in Nanaimo as well; and a brother Ethan who lost his battle with brain cancer nearly two years ago.  Cindy is a single mother without any financial support who became a nurse with the help of family, to give her children a better life.  In 2013, Cindy lost her mother and key support system to Glioblastoma Multiforme which is a very serious form of brain cancer.  Seven weeks after her mom's death, Cindy's 18 year old son Ethan was also diagnosed with the same brain cancer and passed away on August 31st, 2015. During Ethan's illness, Cindy injured her knee and has been unable to work since as a result.  She is currently on disability and has been recovering from a long awaited surgery. 

Kieran has started four types of aggressive chemotherapy and is currently being treated for nausea and pain. He is experiencing side effects from the high dose of chemotherapy but is determined to try and share time with friends and loved ones as much as possible.  He is a member of a great hockey community in Nanaimo and lives for the chance to get on the ice whenever he can. Sadly he is unable to skate or play hockey during his illness as the mass on his chest could cause him to have health complications. 

For those who know Kieran, you know that he is such a strong young man, and an example to all of us in kindness, compassion and friendship. I am so blessed to be part of his family and have been asked to keep this page updated so we can all follow his progress and send him love and strength. Kieran is going to make it through this challenge and be back to hockey and living life as he planned in no time. It is important for all of us to have faith and send Kieran positive messages, vibes, love, strength and friendship. 

As this is expected to be a long road to recovery with regular travelling to Victoria and Vancouver for treatment and the only source of income is from Cindy’s disability, we are gratefully accepting donations to help support Cindy and Kieran.  Even if Cindy becomes medically cleared to work again, she is unable to leave her son to do so and as a mother and sole caregiver of this family, we wouldn't expect her to.  Her need is so great and as much as it is hard for her to ask for help, it is necessary for their survival and well-being. These funds will help Cindy and Kieran with travel for treatment, accommodations during treatment, groceries, prescription medication and paying bills while Kieran goes through this long and difficult process.  Cindy is a caregiver of her children but also as a nurse, has been a caregiver for total strangers in their most difficult times. She is a beautiful and giving person who is in a fragile place right now and needs your help so she can care for her son.   If you are able to make a donation, no matter how big or small, we are so appreciative.  If you can only share with others, we are equally grateful. Every bit of support helps so much.  From the deepest part of our hearts, we thank you for your love, well wishes and generosity.  xo
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Hi everyone,

It’s been quite a while since our last update and truthfully, it’s hard to put into words what has actually been happening. Kieran completed his stem cell transplant and spent nearly a month in hospital and six weeks in Vancouver. He handled the procedure including 48 hours of chemotherapy to prepare him for it like a champ, and we are all so proud of him.

On July 27th, Kieran had a PET scan in Vancouver and a few days later the results revealed that the stem cell transplant was unsuccessful. Not only did old tumours not go away, but new ones were now evident. Tumours formed in Kieran’s neck, clavicle, chest, shoulder and tonsils. According to his team of doctors, Kieran’s cancer is not curable. They will do whatever they can to slow down the cancer and keep him comfortable.

On August 8th, a fine needle biopsy of the neck node was conducted with the results being inconclusive, meaning the pathologists didn’t get enough cells to determine the tissue type.

On August 13th, Kieran had a consultation with the radiation oncologist in Victoria. The suggested radiation therapy has an outcome of 20-30% chance of stopping the growth, but not curing it.

In addition to numerous doctor’s visits and consultations, Kieran’s case was discussed at the Vancouver Island Cancer Conference, the Provincial Cancer Conference as well as other related disciplines in Toronto.

On August 14th, a mask was prepared for radiation treatments as well as other preparations.

Kieran’s stem cell doctor attended the Provincial Cancer Conference to advocate for him and it was agreed that his cancer is chemo-resistant. He needs another biopsy as the other was inconclusive. Radiation therapy has been postponed and instead Kieran saw a surgeon in Victoria for a consultation to have an excisional biopsy where they would cut the whole node or a cluster of nodes out to determine what they are dealing with. It was agreed provincially that they need to see what the cells of the node is that is resistant to chemo. We are awaiting a surgery date at this time.

From the very beginning, we have maintained hope that Kieran would beat this illness and that the chances were high that he would be successful. We still maintain hope and we are confident that there is a miracle for Kieran. We continue to ask you all for your prayers, positive thoughts and messages. Please continue to share this page because we know there is someone out there that can help Kieran to live a long and happy life. Please continue to donate if you can, as the financial cost is still so great…and if you can’t donate, please share Kieran’s story.

Thank you everyone, your love and support is so appreciated. xo
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Update on Kieran:

With Kieran out of the hospital now, we are transitioning into the real world of keeping things as clean as possible, getting enough rest, eating right and watching for adverse effects. Kieran will be on antivirals and antibiotics (in hospital) for one year. But being out of hospital definitely has its perks. No one is waking Kieran at 5 am for bloodwork and again at 7 am for vital signs etc. And anything is better than hospital food! So Kieran is on the right track to healing already!

Kieran’s follow-up appointment went really well and his bloodwork is all improving! He is fatigued but otherwise starting his healing journey with his new Stem Cell Transplant!
We are getting settled into our lovely new place that is only 10-15 minutes from the hospital! Thank you to everyone for all you’ve done to reach out and help us find a new place!
And to Dave and Amanda for allowing us to stay in your beautiful suite!
We truly feel the love from our family, friends, community, hockey family and people we have never met who have reached out with care and love. We are truly blessed❤️
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Hi everyone,
Sorry for the late update! After speaking with Cindy today, I have some new information to share! Kieran is having a blood and platelet transfusion today to help increase his hemoglobin and platelet levels. Tomorrow the doctors are removing his IV’s and hoping he will be ready to start taking his medication orally. He has been receiving needles in his belly daily to help with the mucositis and hopefully he will start feeling like he can eat and drink fluids again on his own.
If all continues to go well, Kieran will be discharged from the hospital on Monday but will need to remain in the Vancouver area for 2-6 weeks depending on his progress. Once he returns home, he will need to begin a new chemotherapy treatment program which has not been determined yet.
For friends and family wishing to visit Kieran, please contact Cindy directly or message this page. Kieran would love visitors but it is not determined yet where he will be in the coming weeks so please make plans in advance if possible to avoid disappointment. Visitors need to know that Kieran is still in a very immune compromised state and no one will be able to visit if they have been sick, have been around anyone who is sick or if they are not feeling in excellent health at the time of visiting.
Our family would really like to thank you all for the love and support you have shared with Cindy, Kieran and Tyson and for sharing the page, sending messages and for making financial donations. We are all eternally grateful for your kindness and wish we could personally thank you all! We feel like we have asked for so much and even though it feels hard to continue to ask, we must do so for Kieran’s sake.
o Please continue to share this page with your social networks or anyone you think is in a position to help.
o Please continue to send Kieran messages of strength and love.
o Please donate if you can. Kieran and Cindy’s financial need is so much bigger than anticipated and this journey is far from over.
Thank you so much to everyone for continuing to hold Kieran in your hearts and following his incredible fight. We cannot express how much it means to all of us. xo

1 week Post Stem Cell Transplant

Kieran has had a really rough week since the Stem Cell Transplant. He has had immeasurable nausea along with all the side effects of chemo and pure exhaustion to the point of not being able to get out of bed. Last night he had a fever and had to get blood cultures and chest x-ray which was followed with special antibiotics because of the family history of Stevens Johnson syndrome. Kieran’s white blood cells are less than 0.1 (normal is 4 to 11); his platelets are 18 (normal are 150-400) and he will be getting a platelet transfusion today. Kieran’s hemoglobin is 86 (normal is 135-170) and will need a blood transfusion tomorrow. He has mucositis so eating is becoming a real challenge with sore throat and mouth. This will be the week that Kieran is at most risk for serious complications to occur.

The results of the PET scan showed that the 3rd chemotherapy was not successful, as was hoped. So Kieran’s BMT Specialist will be taking his case to the BC Cancer board to discuss how to further treat Kieran after his stem cell transplant. This was the same targeted drug that they had planned on having Kieran go on for 18 months afterwards. So we are left wondering what the plan will be.

We are beyond exhausted. This is emotionally, mentally, physically and spiritually trying. A week feels like a month sitting by the bedside wishing I could trade places with my boy! I can’t explain the helplessness I feel having to hold back the tears to show strength and walking out the door to let them stream down my face like a waterfall. There are no words to express the heartbreak... for the reminder of the hospital stays, the smell of chemo, the look in your child’s face every time they get an IV or needle, for missing my Ethan, for his loss! The fear in your heart of losing another precious child This isn’t something a parent should ever have to go through- not once, not twice!

Moreover, no child should ever have to watch a sibling go through it and then live through it themselves. My children are the real warriors.

Thank you to everyone for their love, support and prayers ❤️❤️❤️
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After 40 straight hours of chemotherapy, Kieran had a successful bone marrow transplant. He is doing well and resting. The hospital staff have been excellent and they are all focusing on ensuring Kieran celebrates another birthday this year! The Stem Cell transplant went well and the specialist said he had a great looking specimen and number of cells. It only took 45 minutes to infuse. Kieran was premeditated to decrease the risk of any reactions and that seemed to have worked.
So far Kieran’s blood counts are within the normal ranges but at any point could be low enough to require transfusions or antibiotics. His hemoglobin is low enough to cause significant fatigue.
Now that the transplant is done we wait for engraftment and the side effects of the chemo. Praying for the least of them and the strength to get through the worst of them!
Kieran has lost track of the days and has been in bed for a week. Even though he has Xbox and Netflix to keep him occupied he’s still bored. It’s amazing how a week feels like a month when you aren’t at home with your friends and loved ones. Thank goodness for text, email, FaceTime, Fortnite... so we can all keep connected!
Ps this is Kieran getting his Stem Cell Transfusion!
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$19,533 of $25,000 goal

Raised by 162 people in 13 months
Created August 8, 2017
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