Louis was born with Angelman Syndrome, a severe neurological disorder characterized by developmental delays, epilepsy, and problems with motor coordination and balance. Louis will require life-long care and intense therapies to help continue to develop functional skills and improve his quality of life. Researchers are learning more each day about AS however, no cure is currently available.
Louis is a true Angel...he is one of the happiest people you will meet. Despite his day to day challenges of seizures, sleep difficulty and navigating childhood with non-verbal communication, Louis is constantly smiling and laughing and is the light in the room.
This September, Louis will begin junior kindergarten; a huge and exciting milestone in the life of every child! Louis has excelled in his preschool environment with both exceptional and typical children and we know that he will continue to grow and learn along with his peers on this new journey. In order to help Louis with his transition to full day kindergarten, a number of medical aids and equipment will be needed.
The Hibbits family are the type of people that are always there to help others in need, often putting others before themselves. Knowing how financially demanding the beginning of a school year can be, and knowing that they will face additional costs for this equipment, we are hoping to help them by raising funds toward some of the much needed items Louis requires as he grows and matures.
- a communication aid/tablet to help Louis have a voice in his classroom
- a safety bed to help ensure that he gets as much rest as possible to start his day
- a larger stroller for joining his class outdoors and on field trips
Every little bit helps to achieve this goal! Please give generously if you are able.
If you would like to learn more about Angelman Syndrome, please visit https://www.angelmancanada.org/
Thank you very much!
Lacy and Mandy
With the help of donations raised on the Go Fund Me page, the Hibbits family was able to purchase a SAFETY SLEEPER for Louis on special promotional pricing of 50% off the regular price!
The Hibbits family extend their sincere gratitude and love to everyone involved in helping reach this goal! Thank you to all who have shared and contributed so far! We still have a number of additional items to purchase for Louis so please do keep sharing and giving as much as you are able!
We thought you may be interested in some of the items that will be purchased for Louis. The first one we will talk about is an adaptive bed. Lack of sleep is one of the defining characteristics of AS. As a result, Louis spends much of his night awake in his room. I am sure you can imagine, this is difficult for his parents to feel that he is secure and safe while the rest of the family rests in preparation for the next day. So up to now, Heather and Mike spend many nights alternating being awake with Louis, ensuring that he is comforted, safe and monitoring him for seizures. In order for Louis to be able to rest independently, he requires a bed such as the "Safety Sleeper."
The "Safety Sleeper" is enclosed, fire resistant, durable and portable so that this bed can be taken on family trips or wherever it is needed. It enables a stimulant reduced environment to promote sleep, prevents unsupervised nighttime wandering and is washable so that it stays clean. Best of all, it can suit a full size or queen size bed so it will be suitable for Louis for many years to come!
These beds cost approximately $4,500CAD but are well worth the investment to help Louis (and family) sleep safely. A good nights rest will help Louis to focus and learn to the best of his ability!