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Little Nathan medical expence

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One night last year October my son / grandson got sick on me, we though it was asthma. When we carried him to the Cornwall Regional Hospital he was placed on an oxygen machine and treated for asthma for about 2-3 weeks. Due Nathan condition not improving they did a CT scan and saw a mass on his chest. He was then sent to the Bustamante Children's Hospital in November where he collapsed the next day and almost died. Nathan was then admitted in the Intensive Care Unit hooked up to a machine for three weeks. A biopsy of the mass was done and the result came back that it was cancerous and it was stage three Non Hodgkins lymphoma \lymphoblastic type. Due to the doctors having to do a biopsy on him he pick up an infection, this almost killed him and he was placed in ICU again. After the biopsy and the infection a tube was placed in his side to leak out the infection. His quality of life did not improve because when they took him off the machines and tried to feed him the food was running out through the tubes that was in his side. The doctors went back and operate on him to try fix the matter but they couldn't fix it because the tumor was all around the important organs. They left the cut in his neck open and because of this he can't eat from his mouth. The doctors were saying they don't know if it was them who made a tear or the tumor that destroyed his trachea. A gastronomy tube was placed in his belly that has been leaking since November until now. We've been at The Bustamante Children's Hospital morning, noon and night and we are telling you it isn't easy they hardly want to change the dressing where the tube is leaking. Nathan's mom (Brittney Williams) literally have to lift up Nathan and bring him to the doctors who did surgery on him to look on the tube to figure out why it's leaking. They looked and bring him back to the ward, Nathan has now gone back to the stage of wearing pampers. They don't have time to look after the kids at the hospital, the nurses or the pca. Last year Nathan's mom had to dress him  herself and remember he's at the hospital they are the ones who are supposed to it but they take forever to do it so she had to do it herself. They have a problem with her doing it but she can't sit and wait on them so she do it herself, they keep saying they will get in trouble if she do it but she can't just sit there seeing Her son in so much pain and do nothing. His clothes normally gets messed up due to the leaking of the tubes She can't wait until they please themselves they are very lackadaisical at Children's. She is  tired and frustrated with them, when you're poor its a hell of a thing, she have to get mad and strongly urge them to repair her son's neck but they are saying it can't happen now she have to want for three years when the chemotherapy is finished before they can fix it. Because of the tube he has lost a lot of weight, he's very very slim. Right now we have reached our breaking point, at this point we are seeking help for my Nathan, we can't sit and watch him die anymore.

Organizer

Janice Samuels
Organizer
Hyannis, MA

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