Lil Miss Transplant Fund 4 Crystal

$23,164 of $30,000 goal

Raised by 120 people in 37 months


Four years ago, Crystal Scott experienced weakness and trouble breathing. At first, she thought she had bronchitis. Then she suspected an asthma attack. Only after EMTs rushed her to the emergency department of a Maryland hospital did doctors diagnose her with kidney failure.

Now 44, Crystal has been in and out of the hospital and on and off dialysis as she and her doctors navigate the complications of End Stage Renal Disease (ESRD). She attempted to go off dialysis this past year to see if her kidneys could function once again without assistance but that was not in the cards.  Her kidneys now function at 8% capacity and that function is declining each day.  

She will be go back on dialysis in June and is now on the waiting list for kidney donation.

The journey of finding a matching donor is long and tough.  But once she receives her kidney, her journey will only have just begun.  Insurance covers just 80% of her surgery (which is estimated to cost roughly $262,000).  And after a short period of time, insurance will no longer cover her required monthly medication.  Anti-rejection medication, blood pressure medication, and steroid treatment will cost roughly $5000 a month and will be needed for the rest of Crystal’s life.  On top of that, she will have co-pays for regular check-ups and procedures.

So we, Crystal’s family and friends, have decided to pull together a fund for our “Little Miss Transplant.”  Her whole life, Crystal has been a transplant.  She has moved from Rochester, NY to her beloved University of Iowa to her current home in our nation’s capital.  And all along the way she has transplanted herself into our hearts.

And now, as she embarks upon the most important transplant of her life, we want to envelop her with love and ease some of the financial burden and stress that lies before her. 

Thank you for any help you can provide!  And thank you for sharing this page far and wide (link below)!

Also, while she sits on the waiting list, Crystal is looking for a living donor for a new kidney.  Learn more at her website: www.lilmisstransplant.com 
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Crystal has returned home (to our house in Rochester, NY)after her third bout with hospital stays for infections. The wound is now closed !! Our clinic visits are stretched out to one every other week and only one blood draw per week. All of which have been positive in terms of her numbers. Physical thearpy has been reinstated for strengthing and independent living. Will keep all posted. We continue the fund development for medical expenses for drugs until prices stabalize. Thanks again for all of your love and support. Goal remains at $30,000. We hope you were able to see the NKF fund appeal for this last month in which Crystal appeared as representative of an African American on peritinatal dialysis. Numbers of those needing kidneys keep growing by leaps and bounds, but many more individuals continue to be aware and sign up to donate kidneys.
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Our banner on the request card now reads. "You are her lifeline. Thank you. " Crystal continues her healing struggles. She has been back to Strong Hospital for infections now the third time. Will probably be a two week stay. We are told that with the suppressed amune system, this is usual until doctors feel that she can drop some of the anti-rejection drugs. We coninue to need funds to secure her ability to return home.
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Considerable progress has been made. Crystal not only has gotten permission to give up the infection tube, but also the wound vac. This will enable her to restart her physical thearpy.!!. Doctors are pleased with her progress which has led to one clinic visit every other week. We still have weekly blood draws. Thanks be to God.
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This past weekend was the 8th anniversary of Crystal's sudden heart and kidney failure. We call it her rebirthday as she was rushed to Holy Cross Hospital in Silver Spring Maryland. From then until December 22, 2018, she was on dialysis. (recently every night.) Today is the eight week anniversary of her receiving a new gift of life /a new kidney from some special family. We continue to be thankful to those who have continued their support which kept us over the last few years able to keep her near her medical support team. There are and have been so many blessings and so many open hearts. Healing is a slow steady heartbeat of progress. Many ask how are you able to endure this in your family. I have to reply , "the grace of God". Crystal has been given a certificate of success for the fighting back of an infection. Our visits to the hospital are now down to once a week with an additional blood draw. Her intake of medicines down to about 40 a day and falling. She hopes to be back to her home near DC within the next eight to twelve weeks. We will go from there in providing her supplemental financial care until she is able to pick up her own baton and fly down the road to a renewed life of self sustainment. Thanks again for all of your caring and prayers.
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Read a Previous Update
Sonya Kamell Haskins
35 months ago
1
1

this website is beautiful!!! Rooting for ya, Crystal!!

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Mary
4 months ago

What a wonderful Christmas present! Prayers & good thoughts go out to all of you

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Joyce
4 months ago

We are thrilled for Crystal's news. What a Christmas present!! Sending prayers for her continued, uncomplicated and complete healing. And love to you and Bill.

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Linda
4 months ago

Fantastic news. I am so glad that Crystal received her kidney donation. To God be the glory!

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Ruth Scott
21 months ago

You will enjoy this video Crystal made for a local DC news outlet https://youtu.be/vCfBmh1FmI4

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$23,164 of $30,000 goal

Raised by 120 people in 37 months
Created May 4, 2016
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JT
$50
James and Shirley Thompson
29 days ago

Thank you for the updates, Ruth. We continue to send love and healing energy to Crystal and the whole family.

HE
$250
Heather Evans
1 month ago
$10
Pamela Davis
1 month ago

I love this woman! And, she knows where the bodies are buried! LOL! Love you, Crystal! ~ Pam

KC
$200
Kristin Cohen
1 month ago
EH
$100
Evelyn Hubbard
1 month ago

We love you & are praying for you. Calvin & Evelyn Hubbard

BW
$100
Bethia Waterman
3 months ago
KD
$100
Kevin and Kathy Damann
4 months ago

We are praising God for the gift of a kidney for Crystal. We continue to pray for her.

JT
$50
James and Shirley Thompson
4 months ago
VG
$100
Vera Giles
4 months ago
$54
Anonymous
4 months ago
Sonya Kamell Haskins
35 months ago
1
1

this website is beautiful!!! Rooting for ya, Crystal!!

+ Read More
Mary
4 months ago

What a wonderful Christmas present! Prayers & good thoughts go out to all of you

+ Read More
Joyce
4 months ago

We are thrilled for Crystal's news. What a Christmas present!! Sending prayers for her continued, uncomplicated and complete healing. And love to you and Bill.

+ Read More
Linda
4 months ago

Fantastic news. I am so glad that Crystal received her kidney donation. To God be the glory!

+ Read More
Ruth Scott
21 months ago

You will enjoy this video Crystal made for a local DC news outlet https://youtu.be/vCfBmh1FmI4

+ Read More
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