Lexi's Life Changing Surgery

$10,194 of $13,000 goal

Raised by 190 people in 22 months


On January 17th, 2010 our lives were forever changed when our twins, Lexi and Ben were born 10 weeks early. Lexi suffered a brain bleed due to lack of oxygen shortly after birth and the two of them spent their first two months of life in the NICU. We were warned about how Lexi could be affected by her rough start and when we noticed that she was not developing and meeting milestones like her brother was, began therapies and countless doctor visits. Lexi was diagnosed with Spastic Diplegia Cerebral Palsy - which causes high muscle tone in her lower extremeties. She relies on a walker and AFO's (leg braces) to walk, and needs assistance doing every day activites that we all take for granted. Through all of the therapies, doctor visits, uncomfortable orthotics, multiple rounds of botox injections in effort to battle her tone and everyday struggles that she faces, she is the most amazing little girl. She lights up a room with her smile. She has a fan club everywhere she goes. We literally cannot be out in public without someone stopping to talk to her and comment on her smile. She is wise beyong her years, but despite her challenges she is just like any other almost 7 year old little girl. She loves to sing and dance. She loves Helly Kitty and anything girly. She's on a cheerleading team and attends dance class. And as she gets older, she gets more and more self conscious. The tough questions have started..."why can't I walk like everyone else?", "why do my legs not work?", "why does walking make me so tired?". 

Lexi has been approved as a candidate for a life changing surgery called a Selective Dorsal Rhizotomy . This is the chance to have increased mobility and better quality of life...the doctor feels that she would be able to ditch the walker and only require crutches to get around. This could be so huge for our girl and we have been praying that she would be a candidate. It will require at least a week long stay at St. Louis Children's Hospital and intense therapy for a while afterwards. The surgery itself is $40,000. Although insurance will help with some of these costs there will be deductibles, copays, travel, lodging, and other non-covered expenses. We would spend the rest of our lives being in debt if it meant a better life for our sweet girl, but any help towards these expenses would be truly appreciated. It's hard to ask for help, but this is worth more than our pride. 






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Thing have been so busy, I haven't had a chance to update here! We surpassed our goal - and also got the great news that Lexi's insurance would be covering the majority of the surgery, so we would not need to continue fundraising! When I called to schedule her surgery date, we were shocked to find out that it would be so SOON!!! We flew to St Louis on January 22nd, and Lexi had her miracle surgery on the 24th. We are on day 3 post-op, and she is doing wonderfully. She's in pain and it will be a long road from here with intense physical therapy...but it's done. Her high muscle tone is gone. We have seen dramatic improvements even this far and have high hopes that our girl will be more independent and have a better future. Thank you from the bottom of our hearts to every single person that contributed. My hope is that if you continue to follow Lexi's journey via facebook or instagram, you will realize that you helped make this possible for her. <3
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It's only been 5 days and we're a little under halfway to our goal!! We are so touched that so many people care so much for our girl. We've been talking to Lexi about what is to come and even though she is a little nervous, she's super excited to be able to get rid of her walker one day!

We're still holding onto hope that her insurance will cover this surgery. We should know shortly after the first of the year. If it does not, we will have to cancel her surgery in February and continue to fundraise...but we'll have a new goal of around $60,000. We're truly hoping this will not be the case, so please join us in praying that insurance will take care of the majority of the bill!

Please keep spreading the word. Every share, every person you tell, and every dollar donated counts. We appreciate it from the bottom of our hearts and know that the best is yet to come for Lexi!
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Read a Previous Update
Vanessa Garitano
22 months ago
3
3

You guys are all so amazing for donating what you can! Every cent makes a difference & every donation will make a huge change!

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Leigh Ann Wagor
22 months ago
2
2

Look into thishttp://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/patient-selection

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Emily Rose
22 months ago
1
1

This poor little girl it breaks my heart seeing her go through this but shes a very strong girl! She Fights through her battles . She doesn't stop being herself! Like I said shes a very strong girl I've met! And it breaks my heart seeing her go through the hardest time in her life But she is the most beautiful girl I've seen! There's not 1 girl that can make a Sun shine but Lexi! She has NEVER Gaven up on her dreams & never stop believing in herself she has the most beautiful smile I've seen! And if there were a chance I'd love to meet her! :) I just hate seeing what kids been going through its not my favorite:( I just wanna cry but Lexi is one of my bravest girl I've met! She has the most BEAUTIFUL family I've seen! They love each other, be there when they need to, support them as best as they could everything! They are the Happiest family I've seen! Lexi keep living your dreams girl don't let anything stop you!! Stay Strong I know you can do this! Push through this and you'll know its all gone! Like I said your fighting through your battles right now! Keep Ya Head up Chicka!! XOX ~Emma~

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Melissa Marie
22 months ago

Hi Lexi. You are a special young lady. You have a bright future with all your wonderful abilities. Praying for you. Merry Christmas. Btw: Hope your parents can find a Ronald McDonald house to help with the expenses.

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$10,194 of $13,000 goal

Raised by 190 people in 22 months
Created December 7, 2016
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IA
$104
istiaque ayub
19 months ago

May the almighty help you recover quickly!

GT
$1,000
GoFundMe Team
21 months ago
6
6

We’re excited to be able to Give Back to campaigns that have touched us here at GoFundMe. We wish you the best, - The GoFundMe Team

Vanessa Garitano
22 months ago
3
3

You guys are all so amazing for donating what you can! Every cent makes a difference & every donation will make a huge change!

+ Read More
Leigh Ann Wagor
22 months ago
2
2

Look into thishttp://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/patient-selection

+ Read More
Emily Rose
22 months ago
1
1

This poor little girl it breaks my heart seeing her go through this but shes a very strong girl! She Fights through her battles . She doesn't stop being herself! Like I said shes a very strong girl I've met! And it breaks my heart seeing her go through the hardest time in her life But she is the most beautiful girl I've seen! There's not 1 girl that can make a Sun shine but Lexi! She has NEVER Gaven up on her dreams & never stop believing in herself she has the most beautiful smile I've seen! And if there were a chance I'd love to meet her! :) I just hate seeing what kids been going through its not my favorite:( I just wanna cry but Lexi is one of my bravest girl I've met! She has the most BEAUTIFUL family I've seen! They love each other, be there when they need to, support them as best as they could everything! They are the Happiest family I've seen! Lexi keep living your dreams girl don't let anything stop you!! Stay Strong I know you can do this! Push through this and you'll know its all gone! Like I said your fighting through your battles right now! Keep Ya Head up Chicka!! XOX ~Emma~

+ Read More
Melissa Marie
22 months ago

Hi Lexi. You are a special young lady. You have a bright future with all your wonderful abilities. Praying for you. Merry Christmas. Btw: Hope your parents can find a Ronald McDonald house to help with the expenses.

+ Read More
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