Hello! My name is Lennah Sofia. Every day of life has been a battle. I was born on December 22, 2011 with Gastroschisis; all my intestines were outside of my abdominal wall. Doctors don't know what causes this, but 1 in 10,000 babies are born with this defect. I spent the first four months and four days of my life in the hospital in the Intensive Care Unit. My parents and I were delighted when I was stable enough to go home! At last they didn't have to leave me hooked up to machines with strangers taking care of me. We could finally begin our lives together! It wasn't long after I got home though, that I was put through a barrage of tests and eventually diagnosed with Cerebral Palsy. Apparently, during one of my six major surgeries I had suffered a stroke.
Have you ever wished that your energetic children would just be calm and sit still for a few minutes? My family will never wish that. My family wishes for the exact opposite. I cannot sit, I cannot roll, I cannot walk, I cannot hold things in my hands, I cannot eat, and I cannot talk. I just lay where and how I am placed or when I am held by a loved one's arms. I am two years old and I am unable to do things a "˜typical' child my age can do. When I am at my grandparents' house with my cousins, they all run around in circles and play while I can only listen from a distance: or as I like to call it, "hang with the adults." However - I CAN smile, I CAN laugh, I CAN give you a high five and I DO love life!
My daddy, Misael, works two jobs while my mommy, Ashleigh, stays home with me and my little sister. Mommy isn't able to go back to work because of my medical needs. I have a great team of specialists and therapists that I see frequently. My sister, Truby, is six months old and is already sitting and rolling all over the place. I watch and wonder at how she does it all. I am so very grateful that she doesn't have to endure the therapies that I go through.
My parents have done research on ways to improve the quality of my life. They have found a promising procedure that will be fairly painless for me! However, it is currently not covered by insurance. I have met a local friend who has gone through this simple blood transfusion and now at age 7 she walks (with support) and is able to do things I can only dream of doing! I can only hope to walk myself in to my first day of school and not be wheel-chaired in to class, to go to my high school prom, to walk down the aisle at my college graduation and most of all to have that first dance with my daddy when I get married.
My mommy and daddy aren't ones to ask for financial help so I figured I would give it a shot. For my second birthday I made a wish to help my parents raise the money that is needed for this procedure. The blood transfusion is going to cost $17,000 and the intensive physical therapy which accompanies it will cost $4,000. There is no guarantee that this will work miracles, but we have to try! With your help and generosity I may gain some independence and have an easier, more fulfilling life.
Please visit http://www.gofundme.com/LennahLovesLife
to be part of my journey.
I would personally like to thank you for your help in making my dreams come true. I will leave you with a truism that my daddy reminds my sister and I all the time, "Your worst day is someone else's best day." Life is what you make of it!