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Please, Help Us Get a Second Chance At Life.

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Our Story
     My husband, Adam fell ill over 7 years ago with a rare genetic hereditary chronic pancreatitis, with severe neuropathy. He had two large cysts in his gallbladder, which had to be removed in an emergency surgery because it caused his pancreas to explode. He now only has 1/3 of his pancreas left. He must take an enzyme with everything he eats and drinks, the enzyme works as his digestive system. The medical term is Exocrine pancreatic insufficiency (EPI). We were in and out of the hospital for over a year and more. One time he was there for over three weeks. I would stay with him the entire time. I would never leave his side. When he was well enough to go home one time, he was sent home with a feeding tube. He had that for three months. I would have to feed him four times a day. He used to have to get his stomach drained because of the fluid (ascites), which built up in it.  This had to be done about eight times. Another time when he came home from the hospital he was seeping through all parts of his body, especially his legs. I would constantly have to dry him off and clean him. It was a lot of work for me, but I did it without thinking about it. I would do anything for him. There is no cure for his disease. He has a rare disease. He courageously fights through the severe pain all day long, every single day of his life. He will have this disease his entire life. This disease will not go away. He is permanently disabled.  He is in severe abdominal pain everyday, he has trouble walking and suffers from severe pain in his legs, feet, & toes due to the neuropathy, he vomits and is nauseous everyday, he suffers from cluster migraines, he passes out all the time, he suffers from many digestive issues, and he has trouble eating most foods, without gagging.  His disease and others associated with it are very misunderstood. Many people cannot explain what Adam's disease is. I am his caretaker 24/7, (we have a doctor's note stating this). I cannot leave Adam home alone. I also suffer from 3-5 migraines a week and serious digestive issues. However, I do take care of his needs first. 

On May 1st 2012 (Adam's Birthday) Our lives
Changed Forever
     We both had wonderful plans and dreams for our future together. Both of us love Christmas so much, that we wanted to have a Christmas wedding and honeymoon. I wanted to have the wedding that I have always dreamed of. None of that happened, though. We have not celebrated Christmas in over three years. We have not celebrated any holiday. We do not have the money to do anything. Our Christmas cheer diminished when Adam became ill. All of our hopes, dreams, and plans have been crushed. Our lives changed forever, in one split second. He was close to passing away three times. Before Adam became sick we had two cars, we had all our bills paid up-to-date, we had food on our table every day, we could buy clothes, and we had a cute little place to call home. I wouldn't have to worry about where I had to find money to pay for the simplest items, such as paper towels. Now, we do not have any of those things. We are struggling financially very badly. We need a reliable vehicle to get to the many doctors appointments that we both have, to get to the 2 pharmacies we have, and to get to the grocery store (Dollar Store). We cannot pay for the little items that we need for our household. He does receive food stamps, but the amount is hardly enough for him to eat properly for a month. There is not enough for me.  He needs to be on a special diet.  It is very important that he is on this special diet. We cannot afford to buy most of the food that he requires to be on this special diet. We need money for his medical bills and medicine co-pays. We need money so we can buy the proper food for his special diet, and we need rent money and utility bills paid. We need money to survive. We need help very badly. This is our last hope. I really don't know what else to do. 

As of Today....Why we need the money
    
We are attempting to survive, which is nearly impossible. We do not care about materialistic things. We just want to be able to survive. We have fallen very behind on all our bills. We are constantly being threatened by the power company. They will shut off our heat and electricity without any compassion at all. They do not care if he is disabled. We desperately need a reliable vehicle. I have COPD and asthma. I should not be walking in the freezing cold and  snowy weather to the store. Adam cannot walk far at all, without being in horrible pain. It would be so wonderful  if we could afford to buy him a wheelchair. We need to get to many doctor appointments. Some are farther away, then others. Between the both of us, we have five appointments in the future. I am not sure how we will get there. We do not have a car to get us there. We both are on a lot of medicines. Medicines at two different pharmacies, which we need to get to a few times a month. Having a car is a necessity for us. It is not a want, it is a need. We must have a reliable vehicle.
     Both of our families and friends have abandoned us. Right at the time of our lives, when we need them the most. It seems that when a person falls ill with some sort of disease, people run the opposite way. We are alone. We feel controlled by our situation. We do not have any choices. Our lives have been filled with nothing but suffering, since my husband became sick. It feels as though we are prisoners in our home, staring at the walls. We both do not feel like we are ourselves. We want to be us again. Not the shell of these people, who are being forgotten about by everyone. We want to be alive and live, not just exist. We do not want to become another number added to the homeless list. We did not ask to be poor. We do not want to be poor and in no way is it a choice.  Some people seem to think that it is a choice. That is just not true. We are good honest people, who had life happen to us. We seem to be stuck in a rut, with no way out. My husband and I need a chance to get back on our feet and to be able to survive in this world each month, without being harassed by creditors and threatened by the power company.  We need our household to run smoothly. We both need to eat properly, and we need a reliable vehicle to get to the doctor appointments, get our medicine, etc. We need help and support in any way possible. 

What We Need & Hope For....
   
My husband is my life, my best friend, my hero, and the love of my life. He is my strength, my courage, hope, and faith. We both knew each other in middle school. We reconnected ten years ago. We are soul mates and we are meant to be together. Together, we will continue to get through this. We can get through anything together. We are a team and a very good one too. We need financial help just in order to survive in this world, not for anything materialist and unnecessary. We need a reliable vehicle to get us to our doctor's appointments, pharmacies, and the grocery store,  we need to pay basic bills for survival, I need to be able to buy the proper foods for Adam's special diet, we need medical bills and expenses paid, and we want to know that we are not alone. 
    Becoming ill with a permanent disease unexpectedly, is not something in which people can save money for. Adam was too young for his 401k to have any large amount of money saved up on it. There was not enough for both of us to live on for years. This is not mismanaging of funds. Our lived changed drastically in one second. I am just very grateful that Adam is alive. We both have been judged even more, since I started this campaign. We feel very sorry for those people. They lack compassion and empathy. We need to know that people do still have compassion. We need our sense of humanity back. Please help Adam find his hope and faith once again? Help us reach our goal today!

More photos & videos to follow!

                                                          


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This is a true story. It is not a scam. We can provide proof, if needed. I just wanted to put that out there, because of all the dishonest people who ruin it for the honest true people like ourselves. We really truly need help. Our situation is serious. Please, help us reach our goal today.

Organizer

Susan Mizejewski
Organizer
Glens Falls, NY

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