Move Mountains For Ray

MY HEART WARRIOR LA'RAY              On Oct 21, 2016 my baby was born premature which later I found out was due to her having a heart defect. I worked my whole pregnancy, ate fruits, was very active so I never imagined my baby would be born with a broken heart. I was confused, I have never birthed a sick child even the times I miscarried in the past. Thank God they now screen every baby born in the state of Florida for CHD. But my labor was hard, I had to get oxygen and everything...La'Rays dad said, and I quote, "You look like you were bout to die", smh. I just knew something was wrong especially when I seen how blue my babies lips were. Well despite an early start she she thrived in the NICU where she stayed two weeks to get bigger and was sent home with us where she was  and did just fine for months. My baby had no health issues ay that time but a heart defect. She loved to eat, lol..Still does. She was home for two months and 14 days before she went in for a heart cath on January 4th, 2017.   They always brag at how chunky she is to be a heart baby. I never thought getting heart surgery would change my childs life, for the worse. It has been very hard on me to even function daily due to PTSD from this all.                                                                                   A week after her heart cath she had to have heart surgery at 2 months old even though we were told she wouldnt need it till 4 months old. We were shocked, surprised, nervous but very hopeful all would go well being we were told she had DORV( double outlet right ventricle), so we felt we knew what they were going in to fix. I was with her the morning of her surgery. She was sitting up laughing, ga ga gooing, just being a very happy baby, I walked her down and all for her surgery and I told her, your gonna be okay, mommies right here...I wont let anything happen to you. Little did I know God had other plans it wouldnt be that easy. Smh. I knew something was wrong because she was back in the operating room 5 hours and no surgeon, doctor had came and updated me on my baby. Her dad was at work waiting on me to update him. Finally two surgeons and like three surgery techs came and told me my baby might not make it because instead of DORV they seen her whole right ventricle was muscle, which mean she only had half a heart. Her heart was tired from the stress of the surgery so everytime they took her off bypass she was passing away. I was frantic, I started screaming and crying called her dad with the news( he flew to the hospital) , my mama, they were telling me my baby might die when all I wanted was for her to be fixed. It made no sense. She did not die though, thanks to this new technology the tandem heart machine that pumps for my baby heart while her heart rests. That machine saved my babies life. She came back with her chest open, very puffy and bloated cause of her kidneys, with tubes running from all over her body. IT took me days before I could go see her. That was not my baby laying in that bed I said but I HAD to realize it was and she needs me to pull through. I was by her bedside a month straight, didnt leave that hospital other than to go get food. I was up there praying over here, speaking life over her, letting her know she could do it and she did. She was doing so good they stopped doing heart echos thats why her underlying heart failure went unnoticed.                                                            Feb 9th, 2017 a month after my then three month old daughter La'Ray Nyelle Adams had heart surgery, she went into cardiac arrest  and went without oxygen a significant amount of time and suffered a massive stroke on both sides of her brain. She was in a coma for a week straight and it took over a month for all organs in her body to come back to full use. She had tobe put on tandem a second time, meaning her heart took a second hit. It took close to two months for her heart function to get steady again. Alot of her functions didnt, La'Ray now has a permenant tube to eat in her belly and a trach in her airway just to get positive pressure so her heart doesnt fail again.  We were told she will never walk, talk, or see but by the grace of a higher power she is sitting up and tracking with her eyes. She is still not crying or making any noises other than grunting so we will not know until she is older if she will talk or not. She is such a strong baby but as she gets older her BT Shunt will need to be replaced. She facing more heart surgery, very soon...the Glenn is the next procedure she has to have done to live. She suffered so much from her first surgery, I have to make it my business I take her to the top children hospital in the world for her next surgery. That's the only way I will be more comfortable in knowing she wont have another bad outcome from her surgery. And maybe then my PTSD anxiety will ease up a bit. This baby was told she would die twice in a seven month span of the first months of her life, she is still here for a reason. To live. PLEASSSEEEE SHARE THIS LINK AND MESSAGE FOR A GOOD CAUSE. CHD affects 1 in 100 children each and every year.