Lane and Harrison's medical relief
Donation protected
Hi eveyone! All of us that know and love this family want to say thank you for even just reading this. This is about 2 little boys and a family that are amazing. Shelbi and Wesly Smith have been married for over 5 years and have 3 beautiful boys Lane (4) Harrison (2) and Baby Russell is just a few months old.
Shelbi and Wes as most parents were overjoyed when they found out they were pregnant with their first son Lane. Lane was born with lots of joy and everything was great! A year and a half later Shelbi and Wes are expecting child number 2 and everything was perfect. Harrison was born and had standard newborn testing done. It was found out then that he had a genetic abnormality called GA1. GA1 is an inability to process protein correctly and it attacks a part of the brain that controls motor funtion. Shelbi and Wes could tell you the protien content of goldfish! Also Harrison has to wear a helmet all the times to protect him from his high risk of a brain hemmorage. And to just add to the pile he also can't get sick because of the bodies natural response and can cause him more brain damage. At this moment Harrison is doing great because of how dilligent his parents and family watch over him. Unfortunatley this also means a lot of doctors appointments and since only about 1000 kids in the world have GA1 Harrisons specialist doctor is in Pennsylvania and they see him just 4 times a year. Insead of the monthy they would if the doctor was closer. Since Harrison and Lane the Smith's have been blessed with their 3rd and final baby, baby boy Russell. He is an angel and and we are so happy to say he doesn't have GA1.
Now as we had all hoped this doesn't end with the baby being free of GA1. Lane the oldest about 2 months ago started having seizures. And the seizures didn't stop, for a few days he was having them every 30 minutes. Wes and Shelbi end up in St. Louis Childrens Hospital for a week looking for answers. Why is their oldest son having seizures and why now? Unfortunately they still don't have answers and Lane is on a menagerie of medicine to help control it but the seizures haven't stopped. This weekend Lane will be going in for a 24hr brain scan and since baby Russell is still being nursed they can't stay overnight in the hospital with Lane. Since Wes is selfemployed and Shelbi decided to be a stay at home mom instead of being a registered nurse. The medical bills and the travel costs are piling up. Wes is one of the hardest working men I have ever met. And Shelbi is one of the kindest and most giving souls I have ever known. Since the boys' medical conditions at this moment don't have a cure and are life long medical care. That is a reason the amount for this is so high. And to give this wonderful and deserving family the breathing room to help their boys heal.
We all appreciate your kind prayers and generous charity. Thank you so much.
Shelbi and Wes as most parents were overjoyed when they found out they were pregnant with their first son Lane. Lane was born with lots of joy and everything was great! A year and a half later Shelbi and Wes are expecting child number 2 and everything was perfect. Harrison was born and had standard newborn testing done. It was found out then that he had a genetic abnormality called GA1. GA1 is an inability to process protein correctly and it attacks a part of the brain that controls motor funtion. Shelbi and Wes could tell you the protien content of goldfish! Also Harrison has to wear a helmet all the times to protect him from his high risk of a brain hemmorage. And to just add to the pile he also can't get sick because of the bodies natural response and can cause him more brain damage. At this moment Harrison is doing great because of how dilligent his parents and family watch over him. Unfortunatley this also means a lot of doctors appointments and since only about 1000 kids in the world have GA1 Harrisons specialist doctor is in Pennsylvania and they see him just 4 times a year. Insead of the monthy they would if the doctor was closer. Since Harrison and Lane the Smith's have been blessed with their 3rd and final baby, baby boy Russell. He is an angel and and we are so happy to say he doesn't have GA1.
Now as we had all hoped this doesn't end with the baby being free of GA1. Lane the oldest about 2 months ago started having seizures. And the seizures didn't stop, for a few days he was having them every 30 minutes. Wes and Shelbi end up in St. Louis Childrens Hospital for a week looking for answers. Why is their oldest son having seizures and why now? Unfortunately they still don't have answers and Lane is on a menagerie of medicine to help control it but the seizures haven't stopped. This weekend Lane will be going in for a 24hr brain scan and since baby Russell is still being nursed they can't stay overnight in the hospital with Lane. Since Wes is selfemployed and Shelbi decided to be a stay at home mom instead of being a registered nurse. The medical bills and the travel costs are piling up. Wes is one of the hardest working men I have ever met. And Shelbi is one of the kindest and most giving souls I have ever known. Since the boys' medical conditions at this moment don't have a cure and are life long medical care. That is a reason the amount for this is so high. And to give this wonderful and deserving family the breathing room to help their boys heal.
We all appreciate your kind prayers and generous charity. Thank you so much.
Organizer and beneficiary
Margaret Bourne
Organizer
Carbondale, IL
Shelbi Smith
Beneficiary
