Eddie our Little Warrior

           "Eddie Our Little Warrior"

For the last 23 months we have been struggling with our son's chronic kidney disease . Our son was diagnosed with only one small partially functioning kidney at the age of 4 months old. We were first referred to Children’s Hospital Los Angeles at the end of May 2014 with colic and eating/feeding problems. Never in our wildest dreams did we even suspecting that our little Eddie was surviving on only 15% renal function. We left the hospital 17 days later, with our baby being fed through a gastric tube and pump which have helped us to this day achieve some stability in growth and development for our son.

At 10 months old Eddie had to go on daily treatments of dialysis, we still have eating/food problems, as Eddie currently is only able to tolerate a very special formula, which we prepare, on a continuous 24 hours feeding cycle. Currently our biggest dream is that our child has a life as close to healthy and normal as possible. We hope to achieve this via a kidney transplant. Eddie was officially placed on the National Transplant list about 9 months ago, but we have not received a notification at this time of a possible match. In April of this year, 2016, we were made aware, by our transplant coordinators at Children’s Hospital Los Angeles, that in the previous year there had been a change to some of the parameters for patients awaiting a donor organ on the National List. A slight change in the priority rankings of patients has seemingly doubled the average waiting time for children on the List. So our estimated wait time of one and a half years has now become an estimate of hopefully under three years... This was an unintended consequence and as such will take some time to sort through devise a alternative, which translates to: it will take some time to sort out and change if it can be changed.

Another option we are exploring is what is called a Living Donor, but both of us (his mother and father) have been disqualified due to compatibility requirements. We have taken to social media and advertising on our car for another possible living donor, but have not had an luck as of yet... We want people to know that organ donation is a very important issue. If you can do it, genuinely consider it.

As parents we will do what ever it takes to help our son grow and thrive. With the help of our faith, family and friends we have and will muster the strength to constantly move forward in providing our son with a happy, health and full life. We are opening this account seeking financial assistance/support for the long and ongoing road ahead of us: continued medical expenses, medications, medical supplies, current daily dialysis equipment/supplies and handling the unexpected complications that come with the day to day living with Chronic Kidney Disease.

We appreciate every last bit of assistance, help, thoughts, prayers and support.

Our son is a precious gift from God and we will do all that is in our power to continue to grow, protect and nurture that gift.

All our love and thanks ...
Dad, Mom and
Eddie��


                 En Español
 " Eddie Nuestro pequeño Guerrero"

Hace 23 meses que estamos luchando con la enfermedad renal crónica de nuestro hijo, que fue diagnosticada a los 4 meses de nacido; Nos internamos CHLA  a finales de Mayo 2014  por problemas de colícos y alimenticios sin nisiquiera sospechar que nuestro Eddie estaba sobreviviendo prácticamente con un 15% de funcion renal brindada por su único pequeño riñon derecho.
Salimos del hospital 17 dias déspues, nuestro bebe con alimentación por medio de un tubo gástrico, el cual nos ha ayudado hasta el dia de hoy en el que Eddie ha conseguido una estabilidad en su crecimiento y desarrollo integral .

Desde los 10 meses de edad Eddie ha estado en tratamiento de dialysis diaria, seguimos teniendo problemas alimenticios Eddie solo tolera su formula en volumen muy bajo y tiene que ser continuo 24 horas.

Nuestro mayor Sueño es que Nuestro hijo tenga una Vida lo mas cerca a lo Saludable y esto se llevará a cabo después de un trasplante , estamos en la lista oficial desde hace 9 meses , tambien búsqueda independiente por dar un ejemplo Padre y Madre de Eddie apesar de su compatibilidad no pasamos los requerimientos para poder donarle a Eddie , 4 personas han desistido de hacerlo, probablemente por disponibilidad de tiempo en este pais tan ocupado , En Abril 2016  nos dieron la noticia en el CHLA que habian cambiado algunos parámetros en la espera antes le daban prioridad a los niños mas pequeños apartir de Diciembre del 2014 eso cambio,

Como padres buscamos otras sálidas y no nos daremos por vencidos mientras Dios nos de Fortaleza, abrimos esta cuenta en busca de apoyo financiero para estar preparados para cuando llegue el momento tan esperado del trasplante y el transcurso del camino hacia el mismo (Porcentaje de pagos en Medicinas, equipo para dialysis diarias y gastos inesperados en esta situación)    Agradecemos cada granito de arena , Dios Y Nuestros seres Queridos nunca nos han dejado solos

Por Nuestro hijo haremos todo lo posible e imposible por que Dios nos dio este hermoso regalo para cuidarlo

Todo Nuestro cariño Y Agradecimiento ... Papá , Mamá y
Eddie