KC's Heart Fund

$6,570 of $10,000 goal

Raised by 81 people in 53 months
As many of you know, February is Heart Month. An estimated 43 million women have heart disease and when it hits close to home we really feel the effects of it. Without going into too much detail, KC is suffering from a congenital heart defect and pulmonary hypertension. She will begin a regimen of medications to maintain the pulmonary hypertension so she then can undergo open heart surgery to repair the large hole in her heart.

Financially, this is very wearing on her and her family. Anything will help and we appreciate your continued love and support to help KC get back on her feet!!
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A year ago today I was meeting with a cardiologist following up on a bad EKG the doctors were all sure "was probably nothing". I was sure I was fine going on my own but was glad my mom offered to come with me. The cardiologist told me she heard a murmur but again reassured me it was nothing; I was too young and she would schedule me to come back and do a stress test. I insisted I was already there and wanted an echo now! I remember laying on the bed and the ultrasound technician calling in the doctor. I thought "this can't be good...". The doctor looked at me and very nonchalantly said "no one has every told you you have a hole in your heart?" I guess she could tell by the crocodile tears in my eyes that this was the first time I was hearing it. She started saying a lot of things I remember nothing of when I finally cut her off and told her to go get my mom. I could see the look of fear in my mom's eyes when she walked in; she asked me what was going on and I just started balling. The doctor filled her in as another technician began pumping saline and air through my arm to see how bad the bubbles passed through the chambers of my heart. I was promptly scheduled to see an adult congenital heart defect specialist at UTSW.
That was the first worst day of my life.
It's crazy to think it was just a year ago and how much can change in that amount of time. All the love and support from family and friends has been absolutely amazing. I have been truly blessed to have you all by my side this past year!! I love you all so very much!
Please don't forget Heart Month starts Monday. Heart disease is the number one killer of women, killing more woman than all cancers combined. Please take some time to learn more about how you can be healthy and get yourself checked. Always listen to your body! I wish I had listened to mine so much sooner...
https://www.goredforwomen.org/
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Day 19. It's so hard to believe it has been 11 days since we left the hospital. As you can imagine it has been quite a blur. We were all so pleased that KC got to leave the hospital on Monday, August 3rd, which was her 28th birthday. What a glorious gift. I don't think any of us could have made it this far without all the prayers, good wishes, friendly words, cards, flowers, gifts and donations of our awesome family, friends and just generous nice people who appreciated our cause.

The doctors have assured us that KC's surgery was a success and she is on the road to recovery. YES!!! They were able to completely close the (2") hole in the atrium of her heart (ASD). Originally there was concern that they may have to leave a tiny hole so as to not cause too much stress on her heart from the Pulmonary Hypertension. However, blessings were received in that the PH meds are doing their trick and keeping the pressure down so a complete fix was possible. We knew from the first heart catheterization that she also had a leaky tricuspid valve. When they opened the heart, they found it was leaking a little more than they realized so while they had her heart open, (rather than risk another OHS later on, they went ahead and put a band around the valve, too. It didn't completely stop the leak but it definitely slowed it down.

As a family, we were concerned that KC stayed 7 days in the ICU, much longer than the original estimate of 1-2 days in ICU and 3-5 days in a regular room. The surgeon explained that they were being extra careful. This surgery changed the whole physiology of KC's heart. It has been working improperly since the day she was born but that's all that it knew. It's not like she had a heart attack and had damage to her heart that they were repairing. They actually re-worked the mechanics of the way her heart functions. They needed the daily x-rays, echocardiagrams, meds and IV's to help her heart function and for them to be able to closely monitor it all. Once we understood that, we were quite happy to still be in ICU!

We have now been home for 10 days. The recovery process is slow. Everybody who has had OHS surgery told us how bad their chest hurt. Evidently, it's one thing to hear about the pain and another to actually feel it. KC says it is worse than she ever imagined but she is a trooper and she is working through it. I agree with her friends, SHE IS A ROCK STAR! She is loved by many and #teamkc is STRONG.

From the bottom of our hearts, we thank you all for making this journey with us. We couldn't have done it without you.

xoxoxo #teamkc

-Dena
4 days post-op
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Good morning everyone. A surgery date has been set for July 27th! Who would have ever thought we would be so excited about open heart surgery BUT it is a major step on my road to recovery.

We met with my surgeon, Dr Guleserian, last week and we all just loved her! She is very confident in performing her part of the surgery to close the hole in my heart with a patch from my pericardium. ASD closures are common. Her biggest concern is that my pulmonary hypertension makes the surgery higher risk. We were glad to find out a member of my PH specialist team will be present for the entirety of the surgery just in case anything goes wrong. Dr. Guleserian warned us that because of the PH, my ICU time, hospital stay, and recovery time will be a bit longer than the normal patient having an ASD closure. I’m expected to be out of work for 2-3 months on short-term disability.

Thank you all for your continued thoughts, prayers and contributions. Every little bit helps greatly and we appreciate all the shares.
Love y’all!
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Bitter sweet news, a lucky baby is getting a desperately needed heart transplant today so my appointment has been cancelled and is back to the 24th.
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Read a Previous Update
Cindy Bandy Perdue
47 months ago

I think that is awesome news!!! You are very lucky little girl :) Take good care of yourself and I am so happy for you :)

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Vickie Wier
49 months ago

You have a lot of people who love you little girl! The support you are receiving through prayer, positive thoughts, love and financial is so awesome! I know you have a long road ahead but you will get there and be good as new!

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$6,570 of $10,000 goal

Raised by 81 people in 53 months
Created February 13, 2015
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$100
Sarah Bell
16 months ago

I hope you’re doing well. Happy belated Heart Month and International Women’s day. Miss you!

BM
$350
Bebe Montgomery
47 months ago

I am so happy that you are doing so well!

DL
$25
Debbie Lowe
47 months ago
SC
$50
Sara Courington
47 months ago
$20
Neil Jordan
47 months ago

Thoughts and prayers are with you and your family as you recover KC!

GT
$200
Greg Talley
47 months ago

Good luck, well wishes and prayers your way for a speedy and good recovery!

ER
$100
Erik Ramirez
47 months ago
SM
$50
Sally Murphy
48 months ago

Love and prayers to KC and family and friends. All of you are in my heart today and wishing KC a speedy recovery.

MM
$25
Mary Maddox
48 months ago

Thoughts and prayers for you and your mom.

$100
Bobby Fletcher
48 months ago

Prayers for you, your family, your doctors, nurses, orderlies, keepers of bedpans, medical billing clerks, and anyone & everyone who has a hand in your surgery, treatment and recovery. God's hand is on you and all involved & you are surrounded by folks who love you & are standing in agreement, believing for a wonderful outcome.

Cindy Bandy Perdue
47 months ago

I think that is awesome news!!! You are very lucky little girl :) Take good care of yourself and I am so happy for you :)

+ Read More
Vickie Wier
49 months ago

You have a lot of people who love you little girl! The support you are receiving through prayer, positive thoughts, love and financial is so awesome! I know you have a long road ahead but you will get there and be good as new!

+ Read More
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