KC's Heart Fund
Financially, this is very wearing on her and her family. Anything will help and we appreciate your continued love and support to help KC get back on her feet!!
That was the first worst day of my life.
It's crazy to think it was just a year ago and how much can change in that amount of time. All the love and support from family and friends has been absolutely amazing. I have been truly blessed to have you all by my side this past year!! I love you all so very much!
Please don't forget Heart Month starts Monday. Heart disease is the number one killer of women, killing more woman than all cancers combined. Please take some time to learn more about how you can be healthy and get yourself checked. Always listen to your body! I wish I had listened to mine so much sooner...
The doctors have assured us that KC's surgery was a success and she is on the road to recovery. YES!!! They were able to completely close the (2") hole in the atrium of her heart (ASD). Originally there was concern that they may have to leave a tiny hole so as to not cause too much stress on her heart from the Pulmonary Hypertension. However, blessings were received in that the PH meds are doing their trick and keeping the pressure down so a complete fix was possible. We knew from the first heart catheterization that she also had a leaky tricuspid valve. When they opened the heart, they found it was leaking a little more than they realized so while they had her heart open, (rather than risk another OHS later on, they went ahead and put a band around the valve, too. It didn't completely stop the leak but it definitely slowed it down.
As a family, we were concerned that KC stayed 7 days in the ICU, much longer than the original estimate of 1-2 days in ICU and 3-5 days in a regular room. The surgeon explained that they were being extra careful. This surgery changed the whole physiology of KC's heart. It has been working improperly since the day she was born but that's all that it knew. It's not like she had a heart attack and had damage to her heart that they were repairing. They actually re-worked the mechanics of the way her heart functions. They needed the daily x-rays, echocardiagrams, meds and IV's to help her heart function and for them to be able to closely monitor it all. Once we understood that, we were quite happy to still be in ICU!
We have now been home for 10 days. The recovery process is slow. Everybody who has had OHS surgery told us how bad their chest hurt. Evidently, it's one thing to hear about the pain and another to actually feel it. KC says it is worse than she ever imagined but she is a trooper and she is working through it. I agree with her friends, SHE IS A ROCK STAR! She is loved by many and #teamkc is STRONG.
From the bottom of our hearts, we thank you all for making this journey with us. We couldn't have done it without you.
We met with my surgeon, Dr Guleserian, last week and we all just loved her! She is very confident in performing her part of the surgery to close the hole in my heart with a patch from my pericardium. ASD closures are common. Her biggest concern is that my pulmonary hypertension makes the surgery higher risk. We were glad to find out a member of my PH specialist team will be present for the entirety of the surgery just in case anything goes wrong. Dr. Guleserian warned us that because of the PH, my ICU time, hospital stay, and recovery time will be a bit longer than the normal patient having an ASD closure. I’m expected to be out of work for 2-3 months on short-term disability.
Thank you all for your continued thoughts, prayers and contributions. Every little bit helps greatly and we appreciate all the shares.
I think that is awesome news!!! You are very lucky little girl :) Take good care of yourself and I am so happy for you :)
You have a lot of people who love you little girl! The support you are receiving through prayer, positive thoughts, love and financial is so awesome! I know you have a long road ahead but you will get there and be good as new!