Katie's Journey

£13,430 of £20,000 goal

Raised by 312 people in 46 months
Hi everyone! Sorry this page has been quiet for a while.

First of all, THANK YOU to everyone who has continued to support Katie via the fundraisers, scratch cards, standing orders and bonus ball. Your help means the world.

Due to a recent wild fire, Katie has had to move off her current campsite and is currently staying in hotels while Jason attempts to clean the caravan enough for her to tolerate. Her tent, clothing and equipment (including wheelchair) were all lost to the fire and smoke. 

In slightly more positive news, Katie’s current treatment has been working slightly in helping with her stomach issues. Your donations helped to pay for this when she was quite literally on the brink of starving to death, so again, thank you!

We still have several bonus ball numbers available. It’s just £1 per week to play with the chance to win £15 each week! Please get involved on the Katie’s Journey Facebook group or email us at Katies.journey@yahoo.com if you’d like to join in the fun!

Becca xx


Emergency Request from Katie's 'Team'


Katie has now been living in Spain and Portugal for 3 years, where the drier climate initially helped a little in her recovery.

However, due to the severity of her illness, she once again finds herself unable to eat and at the mercy of the medical profession.

As there are no MCAS specialists in Portugal, two wonderful doctors from the US have agreed to liaise with hospitals nearby to arrange fluids and nutrition for Katie that will not trigger her symptoms, via IV and PICC line.  They have also put her on a strict regime to try to get her digestive system working again. Unfortunately, the blocker once again is finances.

This is where you can help!

Monthly outgoings are currently as follows:

Medication and supplements: €240
Twice weekly IV fluids and glucose: €480
Elemental diet: €1,425
Pitch rent for caravan: €500
Phone consultation with Dr in US: $500
Local Dr visits: €70

Katie has been unable to afford the probiotics suggested by the US doctors.

Current monthly funds donated by Standing Order: £136
Monthly income from family: £1,500

Katie gave up everything to embark on this journey to save her own life, including her home, pets, car, friends and family. The money raised from initial sales of her things has gone.

More financial help is needed to allow her a chance. Please get involved if you can. 

Thank you SO MUCH to those of you who have set up monthly standing orders. You are making the real difference at the moment.

---------

Katie was diagnosed with ME as a teenager, suffering an illness which caused her to push asides her hopes for the future, leaving her housebound and seemingly fighting a 'never ending flu.' She has tried every remedy and treatment programme available, with no improvement, yet never giving up hope of beating her illness and getting on with her life.

In 2013, things took a sudden and dramatic change for the worse, when Katie became unable to eat solid foods. Within 6 months the change in her was quite shocking, as she dropped to just over 6 stone and was surviving on tiny amounts of protein milkshake and baby food.

Too weak to stand, Katie was relying on 24/7 care provided by friends and family, who helped her to wash, use bedpans and eat tiny amounts of her liquid diet.  

Her sensitivity to light, sound and touch meant that she spent almost all of her time alone in a darkened room, and nobody could offer any comfort.

There is absolutely no doubt that Katie was weeks from death when, in early 2014, we became aware of a number of people in the US who described what she was suffering word-for-word.  Symptoms most other ME sufferers hadn't mentioned, including the inability to digest food, intense sinus pain and an overwhelming feeling of being poisoned were all described. And these people were recovering by relocating to a pristine environment... to avoid mould and chemicals.

Despite being too ill to travel, despite knowing the exertion may kill her, Katie agreed to move in search of cleaner air. A private ambulance arrived to relocate her as gently as possible, and so the Avoidance Journey began.  Within days, Katie's health very gradually began to return, most notably with her ability to eat again. 

This isn't a huge charity raking in thousands a day. And it's only one person's life. But the story that results will either be tragic or incredible, and if incredible, it could help so many others in years to come.  

If you're in a position to help - absolutely any donation would be hugely appreciated - please do.  Even if you are not in a position to make a financial contribution, I urge you to share this story with your friends.

Why Katie chose this approach
http://paradigmchange.me/

Follow Katie on Facebook
 (Please be patient - Katie is not well enough to update on a regular basis)

Thank you for reading and for your continued support.
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Hi everyone! Sorry this page has been quiet for a while.

First of all, THANK YOU to everyone who has continued to support Katie via the fundraisers, scratch cards, standing orders and bonus ball. Your help means the world.

Due to a recent wild fire, Katie has had to move off her current campsite and is currently staying in hotels while Jason attempts to clean the caravan enough for her to tolerate. Her tent, clothing and equipment (including wheelchair) were all lost to the fire and smoke.

In slightly more positive news, Katie’s current treatment has been working slightly in helping with her stomach issues. Your donations helped to pay for this when she was quite literally on the brink of starving to death, so again, thank you!

We still have several bonus ball numbers available. It’s just £1 per week to play with the chance to win £15 each week! Please get involved on the Katie’s Journey Facebook group or email us at Katies.journey@yahoo.com if you’d like to join in the fun!

Becca xx
+ Read More
Hi everyone!

I've just got back from spending a few days in Portugal with Katie. I would love to say she is doing well, but sadly she is still unable to eat and is now only 6 stone (5'4 in height).

One little glimmer of hope has arisen in the shape of an immunologist with a clinic in Lisbon. Thanks to those of you donating regularly, we were able to book a Skype consultation. He has recommended some low dose immunotherapy to help Katie with her many, many sensitivities and to try to reduce her histamine levels.

Needless to say, there are significant costs associated with this. Fundraising will be stepped up in an effort to ensure Katie can access this treatment.

We will be running an online prize draw later in the summer. If you, or anyone you know, is able to donate a prize, please contact me! Prizes must be available nationwide. Ideas are Red Letter Days, vouchers, or if you have a holiday cottage for example, allowing a winner to stay for a couple of days would be wonderful! So please do ask around...

We'll also be selling T-shirts and hoodies, printed or embroidered with the website details, to help to raise awareness of Katie's journey. These will be available via the Katie's Journey Facebook page: www.facebook.com/katiesjourneyexperiment

If any of you are planning a sporting event to reach a personal goal, and would consider collecting sponsorship for Katie's Journey, please do get in touch.

All other fundraising ideas welcomed!
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I am URGING you, all of you, anyone who cares about Katie’s plight and the millions of people in a similar position, to see the film. It’s currently showing around the UK and is available on iTunes from 31/10 (already available to pre-order).

The more support the film gets, the more likely it is that people will take its content seriously and be unable to brush it under the carpet. The aim is to arrange showings in universities and medical schools, and profit made from theatre viewings and downloads is funding this. You literally have the power to make a difference here, and change the future of ME research.

Add to that, we talk a lot in this group about raising awareness as well as raising funds. You can’t help to raise awareness without a certain level of understanding yourself. The film is 90 minutes of shocking information about the history of the treatment of ME sufferers, leaving you with hope, despair, anger and utter disbelief.

If watching Unrest doesn’t make you want to demand change, nothing ever will.

Book a ticket or pre-order now, and comment here when you’ve done it, so we can see who’s serious about helping change Katie’s prospects for future support and treatment, and helping the incredible Jen Brea in her selfless and mammoth task of changing the future for all patients worldwide!

Search #timeforunrest on Twitter for updates
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Thank you for all of the recent donations. They mean a lot. Here's the current position and a little background for those of you who are new to Katie's Journey.

Katie has myalgic encephalomyelitis and mast cell activation disorder. Research is identifying that ME patients have defects in their metabolism, causing problems preventing their mitochondria from creating energy. This causes problems throughout the body, including neurological problems that make patients extremely sensitive to light, sound, and touch. In Katie, that combines with mast cell activation disorder, which is essentially a severe form of allergy that doesn't show up in ordinary allergy testing. Katie's MCAD means that many ordinary substances like mold, diesel fumes, cleaning chemicals and almost all foods, including elemental formula, can make her very, very sick. In advanced cases like Katie's, both conditions can shut down the digestive system - the ME deprives her body of the energy to digest food, and the MCAD causes her to be unable to absorb particular nutrients and makes her intolerant of almost every food. Needless to say, this is extremely dangerous.

The only way to get Katie through this crisis is to provide IV nutrition, bypassing her gut to provide her cells with energy directly. Without it, she's likely to die.

The above is why we are currently pushing extremely hard for donations and shares, and we thank you all for sticking with us.

In this photo, Katie is receiving glucose and saline, funded by your donations.

Katie & Becca xx
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Read a Previous Update
Katie Miller
15 months ago

Another thing to check for is Chiari Malformations...

+ Read More
Ute Eden
27 months ago

Hi Katie, I am very touched by your story, and being an alternative allergy specialist I would like support you in ways I can. First of all I like to pass on some information, recommending a few alternative treatments, if you want to find solutions to your severe chronic symptoms. I think chasing after a safe place to live, is a more than daunting task and path. I am aware that you have tried every remedy and treatment programme available. However looking further afield there might be a few more avenues... Allergy Antidotes I have trained in Allergy Antidotes with Sandi Radomski and am deeply impressed with the extensiveness of her work and the results she gets. Allergy Antidotes is a comprehensive systems for assessing, identifying, and treating allergies / substance sensitivities, eliminating undesirable physical and emotional symptoms. Sandi Radomski, the creator of Allergy Antidotes is also co creator of Ask and Receive. (www.allergyantidotes.com and http://askandreceive.org ) Both systems are highly successful in treating and reducing symptoms from allergies and environmental sensitivities. Sandi offers consultation sessions for therapy by telephone or Skype, so no travel involved. www.allergyantidotes.com/contact-us.html The other therapy you may want to investigate is 'The Bob Beck Protocol'. Dr. Robert Beck developed a simple electronic device which has been proven to destroy virtually all known bacteria, viruses and fungi instantly. www.electronichealing.co.uk/bob_beck_protocol.htm The protocol is a four stage/step treatment modality, that can be used at home. This protocol not only kills or disables microbes in the body, many people find relief from severe chronic illnesses and diseases. There are extensive videos, including testimonials on YouTube under Bob Beck protocol. (I do hope you are avoiding any form of yeast in your diet) With best wishes Ute (Allergy Link, UK)

+ Read More
Michelle De Feo
27 months ago

Please get tested for Lyme disease! Very similar symptoms join the Essex lyme group and uk Lyme group they will help you!

+ Read More
Tanja Duprat
27 months ago

Have you ever considered faroe island? It's beautiful islands, surrounded by the water. I can imagine there would be little to no chemicals there as they do not farm the land.

+ Read More
Joanne Everhardus
30 months ago

Can you please tell me where this place is in the U.S.? : "to the US; to a location where many others have experienced a recovery which has seen them rejoin society and be able to become self-sufficient once again." Please tell me--I am sick, too.

+ Read More
Yonel Ekrem
45 months ago

Payment sent to becca_hans@yahoo.com.au paypal account. Good luck Katie wish u all the best, hope you will feel better soon xx

+ Read More
Koen Kosman
45 months ago

Yes, there is. I paid through PayPal. The money goes to the PayPal account of Becca Hans. You can wire it by entering her email address. becca_hans@yahoo.com.au

+ Read More
Jennifer Townsend Collins
46 months ago

Is there a PayPal option for go fund me?

+ Read More

£13,430 of £20,000 goal

Raised by 312 people in 46 months
Created February 28, 2015
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£25
Anonymous
19 days ago
£50
Anonymous
1 month ago
£50
David Balcon
1 month ago

I hope this helps towards the fire damage xx

ER
£100
Eleanor Ridge
1 month ago

Katie was my best friend in primary school. It breaks my heart to see Katie suffering in this way . I hope this helps abit xx

£15
Anonymous
3 months ago
£12
Anonymous
4 months ago
Katie Miller
15 months ago

Another thing to check for is Chiari Malformations...

+ Read More
Ute Eden
27 months ago

Hi Katie, I am very touched by your story, and being an alternative allergy specialist I would like support you in ways I can. First of all I like to pass on some information, recommending a few alternative treatments, if you want to find solutions to your severe chronic symptoms. I think chasing after a safe place to live, is a more than daunting task and path. I am aware that you have tried every remedy and treatment programme available. However looking further afield there might be a few more avenues... Allergy Antidotes I have trained in Allergy Antidotes with Sandi Radomski and am deeply impressed with the extensiveness of her work and the results she gets. Allergy Antidotes is a comprehensive systems for assessing, identifying, and treating allergies / substance sensitivities, eliminating undesirable physical and emotional symptoms. Sandi Radomski, the creator of Allergy Antidotes is also co creator of Ask and Receive. (www.allergyantidotes.com and http://askandreceive.org ) Both systems are highly successful in treating and reducing symptoms from allergies and environmental sensitivities. Sandi offers consultation sessions for therapy by telephone or Skype, so no travel involved. www.allergyantidotes.com/contact-us.html The other therapy you may want to investigate is 'The Bob Beck Protocol'. Dr. Robert Beck developed a simple electronic device which has been proven to destroy virtually all known bacteria, viruses and fungi instantly. www.electronichealing.co.uk/bob_beck_protocol.htm The protocol is a four stage/step treatment modality, that can be used at home. This protocol not only kills or disables microbes in the body, many people find relief from severe chronic illnesses and diseases. There are extensive videos, including testimonials on YouTube under Bob Beck protocol. (I do hope you are avoiding any form of yeast in your diet) With best wishes Ute (Allergy Link, UK)

+ Read More
Michelle De Feo
27 months ago

Please get tested for Lyme disease! Very similar symptoms join the Essex lyme group and uk Lyme group they will help you!

+ Read More
Tanja Duprat
27 months ago

Have you ever considered faroe island? It's beautiful islands, surrounded by the water. I can imagine there would be little to no chemicals there as they do not farm the land.

+ Read More
Joanne Everhardus
30 months ago

Can you please tell me where this place is in the U.S.? : "to the US; to a location where many others have experienced a recovery which has seen them rejoin society and be able to become self-sufficient once again." Please tell me--I am sick, too.

+ Read More
Yonel Ekrem
45 months ago

Payment sent to becca_hans@yahoo.com.au paypal account. Good luck Katie wish u all the best, hope you will feel better soon xx

+ Read More
Koen Kosman
45 months ago

Yes, there is. I paid through PayPal. The money goes to the PayPal account of Becca Hans. You can wire it by entering her email address. becca_hans@yahoo.com.au

+ Read More
Jennifer Townsend Collins
46 months ago

Is there a PayPal option for go fund me?

+ Read More
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