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Kade Barber Fund

$2,690 of $10,000 goal

Raised by 47 people in 5 months
Kade is the three-year-old son of Jessie and Allie Barber, and has four other siblings.  After an almost two year journey, Kade was diagnosed with SCID (Severe Combined Immunodeficiency)  in January of 2018.  SCID is a disease where an individual’s immune system doesn’t work properly causing them to not have the ability to fight off any disease they may come in contact with. We have started immune therapy for Kade and are taking extreme precautions to keep him safe.

In September, we were sent to Cincinnati Children’s for a second opinion for the best action for Kade’s health care. It was at this appointment we discovered that without a bone marrow transplant, Kade’s disease is terminal. We also found out that with the mutation he has, the disease will begin to slowly shut down all of his vital organs. This process has already begun in that his lungs are beginning to slowly shut down. The best course of action is for Kade to have a bone marrow transplant.

Kade’s medical team wants to move quickly to get him ready for a bone marrow transplant. We already have signed a form to search for a donor and have had a great response in finding a match. We are focusing on getting Kade’s lungs as healthy as possible. Kade’s medical team has a series of tests and procedures planned to complete by the end of October 2018 to find out what is an option for him.

Once the process of the bone marrow transplant begins, Kade will have to undergo a series of intense chemotherapy treatments and then he will have a 4-6 week stay in the hospital once the new bone marrow is introduced to his system. After Kade is released from the hospital he will have to stay in the Cincinnati area for another 3-6 months for day hospital visits.

Jessie and Allie have worked hard to make sure all the kids will not be extremely affected by this drastic change but will need help making it happen.

Allie will be staying in the hospital with Kade during this process since only one parent is allowed to stay the night with him. There are extreme rules in place to make sure all patients stay in the most sterile environment as possible. Jessie will be going back and forth from Mayfield, Kentucky  to Cincinnati, Ohio  to keep in touch with the other four kids.
 
Kade’s parents spend their days helping others, and are in need of your help!

Anything that you give will help with hospital costs, treatment plans, missed days from work, and all the other monetary costs that come with fighting SCID .

Please check back frequently, and give as much as you can - we will post regular updates so that you can see how your generosity is helping this little guy overcome this big medical challenge!

#KadeStrong
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Reasons we are fund raising...

I am assuming some people are wondering why we are fund raising. I’ve complied a list below to explain a little further into our situation. If anyone has any questions about what is going on, please don’t hesitate to ask.

1. Insurance doesn’t pay for everything.

Though insurance may pay for portions of the procedure, there are medications and daily hospital visits that won’t be completely covered.

2. Need for apartment in Cincy.

We are required to be within 30 minutes of the hospital once Kade has been discharged. After the transplant is done and Kade is stable, we will have to come to the day hospital multiple times a week.

Also, if Kade shows any sign of infection, he must be treated within 60min of the sign of infection.

This all means we have to be close. We will need a short term apartment in Cincy to live at during this time.

3. Allie won’t be working.

A caregiver must be with him at all times while going through this process. This means Allie will not be working so there will be a decrease in income.

4. Traveling to Cincy.

Jessie and Allie will be spending the majority of their time with Kade. To make sure the other kiddos still get the attention and love they need, we have arranged for them to see one of us at least once a week. Either by coming to Cincy or Jessie traveling back to Mayfield.
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A few updates....

Kade’s PICC line has been placed. They had started serious antibiotics to try and help clear up him lungs. They have increased his lung clearance from 2x a daily to 4x a daily along with breathing treatments every 4hrs.

#kadestrong
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From Allie: Today is filled with worry. The thoughts of what could or could not happen as Kade is put under floods my mind with “what if’s.” I know his struggle to come out of these things in the past and I know how much his lungs have declined since his last procedure. No matter how much you trust in God and have faith in Him, it doesn’t stop the sleepless night, the concern for his life, the worry of what might happen as he is going to sleep, as they flood his lungs with saline to wash them out, as they pierce his hip to get his bone marrow, and as he attempts to wake up from all of this.

I pray God will guide the doctors and that Kade will be his resilient self and show up on the other end.
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$2,690 of $10,000 goal

Raised by 47 people in 5 months
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$100
Anonymous
3 months ago
$200
Anonymous
3 months ago
$20
Amy Stephens
3 months ago
$100
Anonymous
3 months ago
$25
Lynn Kelly
3 months ago
KH
$50
Karl Hellett
3 months ago
JH
$50
Jim Hellett
3 months ago
$20
Lucy Main
3 months ago
$20
Michelle Monroe
3 months ago
AH
$10
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4 months ago
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