Treatment in Mexico
$4,555 of $18k goal
Yesterday I was referred to a Dr. who I was told "brought one of his patients to Mexico to receive a treatment that she (the patient) could not get in the US". I was then told by my Dr. that this Dr. had "saved several of (his) patients lives." I was also told the surgeon who I was being referred to, my Dr. would "trust with (his) own life".
I have insurance. The surgical portion would be paid for if I were to stay in the USA. The alternative portion, however, would only be available in Mexico.
Last night pushed me to the point where I am now seeking your help. I'd like to leave for Mexico as soon as possible. The 'wave of paralysis' that I have been experiencing hit my tongue, entire mouth and throat area last night. I thought I was going to die - the most frightening experience I have ever been through.
I am scared. I am on my knees. The original plan was to have surgery in the US (which the insurance will pay for) and then go to Mexico, working in conjunction with the US Dr., to address the other issues of random paralysis and fatigue that we believe is due to something similar to lymes disease.
Due to my experience last night, I am asking for help so that I can fly down to Mexico as soon as possible to start treatment. There, I will be working with a Dr. who we trust completely. For 10+ years I had been searching for answers going to various specialists etc. and in ONE day, Dr. James was able to find the problem with the hiatal hernia and he put a plan in place to address "the other issues".
Leaving Mexico to come back home was incredibly difficult. Despite spending 3K on that trip to Mexico, it was completely worth it. We now had answers.
So we come back to the USA, I meet with my Dr. here... we set a plan in place..
Last night it was my tongue and throat that was going numb/feeling like it was paralyzed - making it extremely difficult to breathe. I fought back... I didn't dare go to sleep. Eventually the paralysis subsided a bit and I was able to sleep for a few hours.
As I feel my tongue swelling, as the paralysis began to return... I quickly wrote down what it is I have been experiencing. You can read in more detail at celiacshack.blogspot.com. The post titled "Speechless" details what I have been fighting against...
For many years I have tried to fight...this (whatever it is). I am using the best of both worlds. Allopathic and Alternative.
With a donation of 10K I will be able to get the operation I need in Mexico while also being under the supervision of a Dr. who can also treat the paralysis with treatment not available in the USA. With the additional 20K it will help me get started on the other therapy needed to address the paralysis. I know more time and money will be needed but this is a start...
The original plan was to receive the operation in the USA and then go to Mexico for one week out of the month. Each week would cost $2500 for treatment plus the plane ticket etc. to get there. We had a plan in place to make that happen.
After last nights experience I am asking for help to get me there sooner - today if at all possible.
Thank you in advance. I love you, whoever you are, and am so grateful for your donation.
I can do this! I know it. Please be part of the happy ending.
I apologize it has taken awhile for me to update you on my status. On my blog, I wrote an update about what the US doctor has discovered. http://celiacshack.blogspot.com/2015/03/multiple-system-infectious-diseases.html
For those of you, who may not have seen the Facebook updates I made, you can now read the entire history of what I shared by going to http://celiacshack.blogspot.com/2015/03/facebook-updates-re-treatment-in-mexico.html
Thank you for your donations. I also received private donations that totaled $12,380.00 in addition to the $4,375 donated on this GoFundMe page taking the total to $16,755. To date we have paid close to $25,000 for the medical expenses in Mexico and here in the USA.
Despite having insurance, getting the right care has been worth the $425 I pay each time I see the specialist here in the US that my insurance will not pay for. However, it has definitely been worth the money we have paid to finally have answers. I am extremely grateful for every person who donated and cannot adequately express my gratitude to you. Thank you so very much. The fight is not over, but it is nice to now be able to see more clearly what it is I have been struggling against. Now that I know the opponent better, I will punch back harder as I get stronger every day! Thank you!
Skype without fear of scaring them with the broken sentences. The Dr's are now focusing in on what is causing the pressure on my brain, face and throat that affects my breathing, vision, speech (slightly now) and my ability to write. It comes and goes. I felt great earlier today but an hour ago I felt the pressure returning which made me unable to write my name again, talk well, or speak normally. Lots of prayers have been said on my behalf but I am feeling like closing in and not bothering everyone with the fight. I am exhausted and feeling a bit crazy from the on and off again battle. The good news is that the hernia was repaired. I was told it was the absolute worst case Dr James had ever seen along with the worst inflammation he had seen. He said he was amazed that it was not cancerous. At this point the medical team is able to treat the symptoms of the swelling in my brain and throat (which I use to explain as paralysis) but I need to heal some more (from the hernia operation) before they do a scan of my brain to take more direct action. With the hernia now fixed I will be able to better absorb nutrients to help me with the fight. Thank you for your love and prayers and donations.
I wish there was an edit button for my comments. *blushing* Try to imagine what I MEANT to say as my mind was swirling in toxins. Xo
I apologize for the below comment. I meant to say, "we will fix GUT issues" that the Dr said had a "river of bile in stomach, bleeding, scaring etc." He hen said after the GUT heals he said it would hel to heal the neurological issues. Already, my mind is thinking much more clearly. IQ...improving :)
Thank you, Dianne. Dr said hernia was "very very bad" will find out in morning more details. We fix get issues (river of bike in stomach) bleeding, scaring, "we fix neurological". I will keep contact you given. Bless you. Thank you. Treatment here not available in USA.
This was written on my blog just prior to creating GoFundMe account. ------- Last night… Tears. Long pause. This is the first time that the paralysis ‘wave’ (I’ll call it), has affected my writing. Life. I run hard. Crash. I fall back again. Again. I make another attempt to dash at the unseen enemy that lashes out at me and spews its poison (what it feels like) in my mind. I am paralyzed for a moment. The enemy laughs. I picture myself in the arena, fighting the enormous monster. I can see it, I can feel its lashes… the onlookers look at me with confusion and some laughter. They cannot see it. The terrible dragon is invisible to them, but terrible and frightening to me. Disappear. The dragon suddenly vanishes and I put down my sword. I look around at the onlookers. I can read their faces. I know I must have looked crazy. I pray that the next time… I will be alone when the dragon comes. The above….? How it has felt fighting the unknown. Similarity. A bite that swelled as if a clown had injected a balloon under my skin by my wrist and had blown it up slowly, mockingly, reveling in my pain and fear as the balloon inflates to my elbow… A well meaning Dr. gave me a… vaccine. Paralysis. Like a gentle, slow motion wave… the paralyzing, numbing feeling had spread down one leg and I could feel it slowly traveling up and down my right side and then slowly crossing over to the left…. Fear…. I tell my missionary companion that we need to get home as soon as possible. I do not remember getting home. Only waking up confused as my missionary companion jumps off of her bed and exclaims “Hermana!” In Spanish she continues… “you’ve been asleep for TWO days!” “The mission president is on his way down here… he’s extremely upset… what the Dr. gave you was on a list the mission president has that says “do NOT let missionaries receive this vaccine… absolutely do NOT…. My mind wanders… I would later be told the vaccine was known for causing auto-immune diseases… I look back… I see the pattern… every few years… a different auto-immune condition that I have always, ALWAYS been able to reverse using diet changes… Cleaner, purer foods… repeat, repeat, repeat… Herbs… more and more concentrated… My most powerful weapon… Essential oils. As the ‘wave’ of the paralysis sweeps by, it stops me physically… I pause and then resume. The past few years it has started to affect me mentally… I pause and then resume… ER visits… unable to talk or write… blamed on stress. Last night. I didn’t dare sleep. I feared for my life. I thought of how ‘non-drama’ I am. For years putting myself last until finally I said I needed to go to Mexico. It was that, or… I die. Answers found in mexico. Three-fold. We deal with the surgery, we deal with the virus, we deal with the after affects of the vaccine. A regular MD… with freedom to incorporate alternative. Treatments. Natural ones… we call alternative because of the ‘sorcery’ (pharma) that plagues America. Insurance will pay in US. We come home. Regular MD talks of surgeon “I trust him with my life”. Appointment is tomorrow to meet with the surgeon. Also referred to regular MD… but I was told this Dr. is “brilliant” but … “different than others”… this Dr. went to “Mexico to get treatment for his patient that he could not get in the US”. I was told… “this Dr. has saved my patients lives… several times.” The appointments set in the US… husband leaving today to head to Texas… to train to teach it will bring in extra money needed. The plan was to come back to Mexico after the hernia operation. The paralyzing feeling let up for a brief moment and my thoughts become… It comes again. Pause. Wait. Pause. My mind drifts back to months ago. “Mommy ok. God knows”. Words I was able to tell my children as they looked at me with tears streaming down their faces, others crying loudly in the background. I couldn’t talk. I couldn’t get my arms and hands to respond to what my brain was trying to communicate. It was scaring my children and husband. We all cried… ER again. Last night. Terrifying. The paralysis had been creeping up into my head and neck area… Come and go… paralysis and freedom… The dragon laughs out loud. Angels look on as the send prayers my way… I am alone. Nobody understands this battle except for me. Nobody can see it. Last night. I feared for my life. Paralysis hit in my throat and mouth. I thought it was the end as death had me in a choke hold. My thoughts and ears listen… my dear friend has thrown me another weapon….into the arena… I struggle to reach for it as I wonder…. My last breath… two warriors are driving to help me… they are in the distance… skilled medical Dr’s from the US…. But I cannot breathe…. I need help now. Dr. James. He and his staff are in the arena with me… The suffocation… If I could just reach up…. If I could just unlock the glass door that is preventing them from helping me… The grip…
For those of you I do not buy who donated anyway. Here is an update I sent to friends and family.... "When I went to the hospital where surgery would be, I felt tremendous fear. The hospital had very high walls and lots of barb wire on top like a very dangerous prison. Fear immediately attacked but I took a deep breath and remembered original peace. Several entry doors. Inside..spotless, very clean and organized medical rooms and equipment with Catholic Church type decor. Peace. Tremendous peace. Lots of laughter. Felt very loved. Before leaving the clinic to be driven to hospital by my cousin-look-a-like Dr., Dr's here took each other's hands and mine and formed a prayer circle with me. All bowed heads to pray... After nobody was praying I asked who needed to pray.. (Was it me?) They said "we pray together in silence." Tears fell. Gratitude. Surgery done. Dr said hernia was "very bad", he repeated "very, very bad"... "river of bile in stomach"... "You have this more than 10 years". He told me now (showing me my abdomen) you have "6 gunshot wounds." (Incisions from operation) They brought me back to clinic in ambulance. Love you all. Gracias a Dios... I survived. Next focus... Being able to talk English. Frustrating. So thankful I can write in English still. Xoxoxoxo"
Update: After creating this GoFundMe account, I began having severe issues communicating. It would come and go. I had updated my personal will weeks ago and printed it out but it had not been notarized. My sister drove me to the bank to notarized my will. I called American Airlines and used my flight miles (from prior business we had) to book last seat in First Class. Flight left at two pm. With just the clothes I had on and my purse and ID and yoga clothes, I had grabbed from home and a few virus attacking, anti-viral, oxygenating and cleansing essential oils and... I left for Airport not sure if I would make it. I am sure my sister cried as she watched me stumble to terminal. While in flight I could barely move and felt paralysis creeping into nose and eyes affecting vision. I took Melissa essential oil and lavender essential oil every 10-15 minutes under tongue at first then later every 30 minutes to be able to breathe. American Airline attendants whisked me away in wheelchair to connecting flight and helped men laughe a couple times. "VIP coming through", "Papparazzi step aside", "make way for my princess" made embarrassment flood away a bit and one attendant even prayed with me as the tears rolled down my face. I made it. I knew I didn't have money for surgery but did have a little thanks to donations that trickled in. The familiar face I knew from going to clinic a week prior, was right there at airport when AA worker wheeled me into baggage area. No luggage to pickup and I was driven into Mexico and IV's immediately started. 6k is due on monday. Due to how fast I was fading they decided to operate anyway without 6k deposit. With funds generated (over 3k in 24 hours I felt peace knowing by Monday God would provide l. Family member had said they wanted to help and so someone was making a personal visit to get check. I also felt morenpeople would be inspired to help. Now, I am resting. I cannot respond in English for some reason, but gratefully the part of my brain that learned Spanish has not been attacked yet. I can write in English and understand it and can every now and again speak English for a few minutes but then paralysis sets in. My heart aches to speak with my children but instead will write letter. At least 8 weeks I need to be here. Only fluids for few weeks and later baby type blended foods etc. Thank you so much for donating!!! Please share on Facebook, Twitter, and print flyer to distribute. God willing, I will come home speaking English. Thank you, earth Angels, thank you!!! I will find out more from the Dr. Tomorrow about anything else discovered during operation. Blessings to you and your families. Love, Steffi
neurodegenerative disease. Dr Joshua Redd in Salt Lake City will know what to do. Go now!