I Need Your Help - Stem Cell Transplant

$2,230 of $10k goal

Raised by 30 people in 56 months
Gwen Poole Lanier  LA PORTE, TX

How would it feel if you could help find a cure for a very rare disease called Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and change the life of so many, especially mine and my families:


Thank you for taking the time to visit my page.


My name is Gwen Lanier and my husband's name is Don Lanier. We have 5 children and 1 granddaughter that is the love of our lives.


My journey began quite a few years ago when I was diagnosed with Fibromyalgia. I was treated for the symptoms for many years but noticed that nothing seemed to help and in fact the symptoms were getting worse. I was eventually referred to a Neurologist by the name of Dr. Philip S. Blum, MD and thank God that I was.


This is where my journey and my family's journey changed course and we have had to make many changes in our lives. After a spinal tap, blood tests, nerve tests and tests that I can't even pronounce he informed me that I had what is called, Chronic Inflammatory Demyelinating Polyneuropathy (CIDP).

I was shocked but he gave me hope in that he said that there were a few treatment options that could help the disease go into remission as that now there is no known cure. CIDP is a form of nerve disease or peripheral neuropathy.  The disease can often be difficult to diagnose as it was in my case. My symptoms were all over the place, for years I felt like I always had the flu, I was getting weak and I started getting numb areas and over the last year my body has become so painful that I can hardly hold my granddaughter or be touched when my family tries to hug me. I think that that hurts more than the disease at times.


After my diagnosis I was given 4 types of treatments that are supposed to help put the CIDP into remission. I went through Solumedrol (a steroid), Intravenous immunoglobulin (IVIG), Plasmapheresis (basically dialysis for CIDP), and then my last treatment of Chemotherapy.  None of these produced any improvements and I have in fact gotten worse and weaker.

My last visit with my Doctor was like hitting a wall. "Gwen, we have done everything and that is it". All I could do is break down and cry and ask myself "why did not anything work"? He went on to inform me that we have one option left and that is a Clinical Study, Stem cell Transplant in Chicago at Northwestern Memorial Hospital under the direction of Dr. Richard Burt.


Since this is so far away and it is a clinical study and my, our, last hope we will have to spend up to three months there for the study and treatment and as you can guess it is costly.

My husband always talks of paying it forward and we have always done what we can to pay it forward when we can but now we must humble ourselves and we ask for your help in donating to help with the cost of travel and living expenses while we have to go back and forth to Chicago for the treatment. This is indeed my last chance at getting my life back and for me to be whom I used to be. With your help I pray that I can. You can follow our journey here  http://cidpourjourney.wordpress.com/ as we will update you on my progress.


Thank you and God Bless.

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Update 8
Posted by Gwen Lanier
54 months ago
Thank you all so much for your donations. Please don't forget that you can donate Anonymously if you wish.
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Update 7
Posted by Gwen Lanier
54 months ago
Made it back from Chicago and I was accepted into the program pending a Genetic test. Please share and keep my family and I in your prayers!
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Update 6
Posted by Gwen Lanier
56 months ago
I received a letter from Northwestern today!!!! Looks like we are going to Chicago the first of June....mixed emotions, happy that we are making progress but scared of what is to come.
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Update 5
Posted by Gwen Lanier
56 months ago
Well, I am beat and feeling like I could sleep for a week. If I could lay in a hammock and rest, I would take the day off and enjoy the sunshine!!! Have a wonderful day!!
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$2,230 of $10k goal

Raised by 30 people in 56 months
Created April 13, 2012
Gwen Poole Lanier  
RD
$50
Rita D'Angelo
53 months ago
AA
$280
Affordable Auto
53 months ago
PB
$100
Pat Boyd
53 months ago
N
$100
Nelta
53 months ago

Sue Miller from Michigan and various people have donated.

NP
$295
Nelta Poole
54 months ago

Donations came from Lisa Huddle,Anna Boyd, Ken Boyd Jr. Steve Boyd, Rick Boyd, Troy Yokem, Dave's Express &various others.

CW
$25
C Watson
54 months ago

Wish I could do more...

$25
Anonymous
54 months ago
TM
$30
Tom and Mary
54 months ago

You are an inspiration and a blessing. Here's to the cure. God Bless.

PF
$25
Pennington Family
54 months ago
$50
Anonymous
54 months ago
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