Jolie's Lupus Recovery Fund

$59,535 of $80k goal

Raised by 76 people in 47 months
My name is Susie Suh and my dear friend Jolie has Lupus. Jolie has been self-employed in the music industry for over 30 years, but for the past few years her health has deteriorated to the point where she has not been able to work. With no health insurance and no work, she has been financially struggling and physically suffering.

Our goal is to raise enough money for Jolie to go to a medical treatment center in June for several months where she can be monitored by doctors and begin to regain her health. In addition, we would also like to raise enough money to cover any additional medical expenses, legal fees, and also cover her basic living expenses for approximately one year while she waits to hear if she is granted Federal Disability by early 2014. All additional funds will be donated to LupusLA.

Jolie and I met when she worked on the first record I professionally recorded. I have always known Jolie to be kind, loving, and thoughtful. I asked Jolie to write a short excerpt about what she has been going through and this is what she wrote:

In 2007 I was diagnosed with Lupus by my HMO Doctor. Lupus is an auto-immune disorder that has many complications and affects everything in your body - physically and mentally. It is also difficult to diagnose because no two patients have the same symptoms as Lupus mimics many other diseases. The Doctor said at the time that I had "Baby Lupus" and so I wasn't referred to a specialist. But eventually I became so ill that I couldn't get out of bed. "¨

I am fortunate to have worked as a freelancer in the music industry for over 30 years. However, my poor health prevented me from leaving home most days. I was also a Musician's Union member from which I received health insurance. However, around 2008 my inability to work ended that benefit, leaving me un-insured.

Chronically sick with Lupus, and lacking income and insurance, I started going to a government sponsored health care clinic. After several months my Lupus was not only confirmed, but it had gotten worse.

Lupus requires the attention of many specialists, including a Rheumatologist, Neurologist, Gastroenterologist, Dermatologist, and more. Although I am very grateful for the care I get from the government system, the heavy workloads and inherent red tape delay the referrals to specialists that I so desperately need.

The passing of time has drained my savings. I received State disability for almost a year, and in 2012 I filed for Federal Disability, but it was denied for lack of sufficient documentation at the time. Working through the health care system, documentation is trickling in, and I am appealing the decision. I won't get a court date until the end of 2013.

For over 5 years I have been battling this disease without proper care and no way to earn a living. I am truly grateful for any help I receive.

(Lupus has no cure, but can be managed with proper treatment and lifestyle changes.)


To find out more info about Lupus go to:
http://www.lupusla.org/about-lupus/


*All donations made on this site are considered "personal gifts" and are not tax-deductible. However, we have recently partnered up with Sweet Relief Musicians Fund and they will be overseeing and managing her funds. If you would like to make your donation tax-deductible please go to:
https://www.sweetrelief.org/program/jolies-lupus-recovery-fund/
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 532 total shares
Update 12
Posted by Susie Suh
45 months ago
   Share
Thank you to everyone who has participated and donated so far to Jolie's Lupus Fund!!! We are so grateful...
In total, we've raised almost $60,000 for Jolie in under 2 months, which is amazing, but is still short of our $80,000 goal.
If anyone has a few dollars to spare, please donate to a good cause at:
www.gofundme.com/jolieslupusrecoveryfund

xo,
Susie
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Update 11
Posted by Susie Suh
46 months ago
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TOMORROW is the BIG Show!
Come out and support a good cause-
http://www.anightforjolie.brownpapertickets.com/

If you can't make it you can watch the show streamed live on Stageit.com here-
http://bit.ly/11pUQu4
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Update 10
Posted by Susie Suh
46 months ago
   Share
Thank you so much for your support Adam Sandler!!!!!
@happymadison @jolieslupusfund #nightforjolie

Our concert is in 2 days! To buy tix go to:
http://www.anightforjolie.brownpapertickets.com/
Adam Sandler
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Update 9
Posted by Susie Suh
46 months ago
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Come out this Friday May 31st to Hollywood and see performances by really amazing and talented people who all love and support Jolie's Lupus Recovery Fund. Hurry and buy tix soon!!

http://www.anightforjolie.brownpapertickets.com/

https://www.facebook.com/events/522997757764418/
Hurry
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Help spread the word!
 532 total shares
Read a Previous Update
Joan Klint
13 months ago

Dear Jolie, My dear friend when we were only children raising Toma and Yoshi!!! We were roommates and I loved you then my friend and will always love you sister!! Be well and always be loved!

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Jolie Levine
47 months ago

Hi Sid, Thank you so much for your amazing donation and offer. I was so touched by your kindness and generosity! Love you. Jolie

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Sid Page
47 months ago

...Already almost $4K collected! Great, but Jolie will need a lot more juice to reach 80 large.. I have no doubt it can be done, especially if we consider how little can mean so much.. I'm in for a grand and I'll match anyone's heart willing to pop for a $100..

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$59,535 of $80k goal

Raised by 76 people in 47 months
Created April 22, 2013
$50
Anonymous
28 months ago
MW
$50
Melanie Woods
40 months ago

Happy Birthday! Here's to your health and continued recovery!

A
$200
Anonymous
45 months ago(Offline Donation)
A
$100
Anonymous
45 months ago(Offline Donation)
A
$1,000
Anonymous
45 months ago(Offline Donation)
A
$110
Anonymous
45 months ago(Offline Donation)
A
$120
Anonymous
45 months ago(Offline Donation)
A
$300
Anonymous
45 months ago(Offline Donation)
AC
$26,050
A Night For Jolie Music Benefit Concert
46 months ago(Offline Donation)

Thank you to everyone who came out supported!!!

$75
Anonymous
46 months ago
Joan Klint
13 months ago

Dear Jolie, My dear friend when we were only children raising Toma and Yoshi!!! We were roommates and I loved you then my friend and will always love you sister!! Be well and always be loved!

+ Read More
Jolie Levine
47 months ago

Hi Sid, Thank you so much for your amazing donation and offer. I was so touched by your kindness and generosity! Love you. Jolie

+ Read More
Sid Page
47 months ago

...Already almost $4K collected! Great, but Jolie will need a lot more juice to reach 80 large.. I have no doubt it can be done, especially if we consider how little can mean so much.. I'm in for a grand and I'll match anyone's heart willing to pop for a $100..

+ Read More
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