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JoeJoeStrong

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Joe is such a sweet, smiley baby who just turned 1 back on  April 12th.  Just a few short days later he started vomiting and couldn't keep food or drink down.  Mom and Dad (Erica and Ryan Carr) made multiple trips to the E.R. and had overnight stays for what they thought was a simple stomach virus and dehydration.  

Fast forward to 5 days of Joe not eating or drinking anything, a nurse called for more tests.  After 2 days of testing and a trip to Children's Hospital Of Pennsylvania (CHOP), it was found that Joe had Choroid Plexus Carcinoma, an extremely rare and extremely aggressive form of brain cancer that  is debilitating and deadly.  This cancer is so rare that it only affects .03 of every 1 Million people and a doctor at CHOP believes they haven't seen a case in 10 years.

The current diagnosis on Joe is as follows:  He has a 3 inch mass (tumor) on the left side of his brain.  The aggressive tumor has also spread throughout other parts of his brain as well as his spine.  There has already been a brain surgery to insert a tube to relieve the fluid around his brain.  There is a major brain surgery scheduled for Wednesday 4/25 to remove the tumor and work on removing the other pieces of cancer that surround the brain.  The surgery is so intense that they do not have a time frame for how long it will last.  If all goes well with the surgery, the next step will be 2 months of intense chemotherapy to rid the spine of the cancer since it is inoperable.  The doctors explain the cancer as "sugar coating" down the spine, where it doesn't create tumors, but rather coats the spine in cancer.  For Joe, it has spread across his entire spine.  

During this time, there are going to be massive medical bills as well as 2 hard working parents who will be out of work to spend as much time with their child as possible as he desperately fights this terrible battle.  We are asking for everyone's help to support Joe, Erica and Ryan in this trying time of their lives.  Any little bit helps the situation and eases the tension and stress that mom and dad are already under - a stress that mom is dealing with while pregnant with Joe's little brother.

Pictured below is Dad (Ryan), Mom (Erica), Sister (Kylie) and Joe.  

Thank you kindly for your generous donation and we will keep you updated on Joe's progress as we go.


Donations 

  • Alex T
    • $20 
    • 6 yrs

Organizer and beneficiary

Harry Slater
Organizer
Philadelphia, PA
Ryan Carr
Beneficiary

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