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Jessalee medical needs

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Jessalee  is a 14 month old sweet baby girl. She's had a rough time medically since she was born.  At 2 months old Jessalee was diagnosed with Cow's Milk Protein Allergy. At 8 months old she was diagnosed with multiple  Ige allergies to milk, eggs, peanuts, and rice. 2 weeks later she was diagnosed  with a rare type of food allergy called Food Protein Induced Enterocolitis Syndrome (FPIES) that can land her in the hospital quickly. Her triggers so far to this is oats, soy, sweet potatoes, all fruit (excepted cooked apples) and many many more. At 14 months she is on an 8 food diet with most of her nutrients coming from her formula. She recently had an endoscopy  done to check for EOE (another type of food allergy). Throughout all of this she has been growing really fast. The doctors believe she has an overgrowth syndrome. At 14 months old she is wearing size 4/5 in girls. She desperately  needs a lab test to see if she has a condition called beckwith weilderman syndrome. She does have insurance but because the lab is outside North Carolina  the insurance will not pay for the test and the lab will not accept her insurance. We need to know if she has this condition because it can cause cancerous tumors throughout her organs and other severe complications. Any help, thoughts, and/or prayers will be much appreciated. Thank you.

Organizer

Jessi Whitesides
Organizer
Advance, NC

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