Jeff's Crohns Support & Help
Therefore, he went several years without medicines to control it. Now, the situation is dire. He has been in and out of hospitals the last few years and just this year he has been hospitalized six times since July of 2016. The Crohns started attacking his body with abscesses that caused a tailbone infection that will not heal. He has been on 10 weeks of IV antibiotics and now he has a 24 hour continuous antibiotic IV. He also has a drain in his rectum (sorry, is this is too much info) that keeps further infection from occuring. This is very, very painful.
He is in relentless pain all day and the only thing that can be done is to surgically remove the tailbone. He also suffers from anxiety and depression, which kind of goes along with these illnesses.
Once the infected bone is removed he will be put on biologics to help control the Crohns. Biologics, which may or may not give him cancer, but he now has no option. The doctors told him ..."you need to decide whether or not to live with cronic Crohns that's out of control, or take your chances on getting cancer." Jeff has decided that he will take his chances with the biologics and the increased risk of cancer.
Right now his home care infusions, medicines and health care are costing thousands of dollars. We also travel every week three hours there and three hours home to the Medical University of South Carolina, where he receives his care. When we travel there I make the back seat into a bed with pillows and cushions to try and keep him comfortable as possible while making the trip.
Jeff isn't able to work and his Father and I have been his sole support. We are both retired and it's getting harder to keep up with all of his medical costs and needs, but we do our best.
We are reaching out to everyone to help us pay for Jeff's medicines that are currently running around $800.00 per month. The cost will increase when he starts the biologics. The per injection cost will be anywhere from $1,200 to $2,500. He will have to receive these injections for the rest of his life.
As his Mom I can't begin to tell you how much he suffers daily. His life has been taken away from him and he has been reduced to laying on his side in bed or on the sofa. The drain and the tailbone infection is so painful that he cannot drive, he cannot go out to eat and he cannot do any of the things that he loves.
Jeff loves music and he is a computer "gamer." He hasn't been able to sit in front of his computer for more than eight months. He is also a computer specialists and hasn't been able to work from home.
Jeff's journey is going to be a long and rough one and this is why I am reaching out to ask for help. We have always been a family that never asks for help but now his needs are beyond our capabilities.
There is also the toll that Jeff's illness has taken on our family. We are trying our best to support him and take care of him and we do this through the help and support of friends and family. Our "new normal" in our home at this time is one of working hard to keep him comfortable and getting him the health care he needs.
We are so thankful to everyone who reads this and to everyone who says a prayer for Jeff and our family.
God Bless You.
Jeff just had his loading dose of the biologic injections and is showing some sign of improvement. He sees the surgeon next week to see where we go next. He still needs your prayers and support.
The medical bills are still piling up and we are chipping away at them little by little. So, thank you for helping us. We are asking that you share Jeff's story to others that maybe, will in turn share as well. He needs all the help he can get. Thank you all so very much.
Jeff received his first injections of Humira on Monday and he's feeling a little better. We are hopeful that this medicine will control the Crohns and get him into remmission. For now, he still has the uncomfortable issue of the drain and the anticipation of whether or not the biologics will work. For now, we choose to remain optimistic. Thank you all for your support and prayers.
Jeff was approved by his insurance to start his biologic injections but we've been waiting for over a month to receive the first order. We did find out that the manufacturer of the drug has a program to help with the copay. (This is the good news). I just don't know if and when we will ever receive it from a pharmacy that we were forced to use through his insurance company.
However, on a more positive note, we truly appreciate all you have done for us.
Thanks to all of you, we have been able to pay for some of his medical bills, but we still are facing mounting medical costs. We are still reaching out to others to join us in Jeff's difficult journey.
Jeff is still very sick and there is no cure for Crohns. All we can do is hope and pray that he will go into remission.
Again, I thank everyone of you. Your support and contributions have really helped. Thank you from the bottom of our hearts.
Jeff's last CT scan shows improvement and he will be starting on biologic injections just as soon as all bloodwork, training and preparations are made. We still do not know what the new medicines will cost but thanks to his supporters we have a starting point.
Thank you so much for your continued prayers and support. God Bless all of you!
Sissy I'm sorry for you, your husband and especially your son. No one young man should have to go thru this. I agree with the lady about disability social security, and Medicaid. I want to help how can I do that. I'm going to pray for him. I have kids his age twenties. Love and hugs, Godbless, Cathleen
I dont know if your son has applied for social security disability and medicaid but you should if you haven't. Its impossible to pay that much for the meds month after month. If you haven't talked to a socisl worker at the hospital yet you should just to see if any help is available
I will most certainly pray for your son and your family... it's so sad that medication that can help him costs so much. I have shared your story with my Twitter followers and Google+ ... I hope you can raise the money you need xox