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Team Dawson- On Behalf of Dawson

$12,050 of $15,000 goal

Raised by 125 people in 1 month
Created April 14, 2019
Fundraising Team
One in a million.…. anyone who has met or spent time with Dawson Lentz knows that statement to be true. Unfortunately, that was also confirmed in the medical world this past week.

Nicole Hafner is Dawson’s Mom. We feel she is also one in a million. You will know her as a Mom, a daughter, a sister, an aunt, a teacher, and the best friend you could find. However, the role we feel she fills the most is the one of advocate. She is an advocate. She has advocated for her family, friends, and her students.  She is now advocating for her child. She has filled the role of supporter for so many people and with never an expectation of recognition in return. Her heart grows with every person she can help. We are now presented with an opportunity to show that same support to Dawson, Nikki and their whole family. If you are able to, please consider donating.

Daws is 13 years old. He loves his hockey, his family, his friends, his fishing and his dog! Dawson has been a picture of health. Growing and thriving and then things changed. Over recent months, Dawson started experiencing gagging, choking and vomiting when he would eat. It didn’t seem to matter what he ate, how quickly he ate or the size of what he ate. He continued to have an increasingly difficult time swallowing anything. This continued and the condition worsened. He is struggling to maintain a healthy weight. This disease has progressed at a rapid rate and Dawson is no longer able to eat without vomiting and chokes on every swallow.

Their family pursued medical treatment and have seen an ENT specialist, and were referred to a Pediatric Gastroenterologist in Fargo this week. Dawson’s resilience and strength were tested as he underwent an esophageal manometry fully awake and with no sedation.  This procedure confirmed the original suspicion and Dawson was diagnosed with Achalasia-Type 11. This condition is rare and has no cure but does have surgical interventions that he will need to have for the rest of his life.

The best treatment option is a Per Oral Endoscopic Myotomy. He was granted access to a Thoracic Surgeon at the Children’s National Hospital in Washington, DC.

Dawson and his family will be travelling to Washington, within the next few weeks, to have this surgery. Fortunately, their insurance is covering the cost of this very expensive surgery. However, what is not covered is the large deductible, flights to and from Washington, hotels, meals and time from work for their family. This fund was created on their behalf, to help ease the financial worries for the family. The funds will continue to be used for the future medical expenses that will be inevitable for this diagnosis.

Thanks for your support,

Team Dawson
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Daws update
Week 3 - post op

Our boy is BACK! Daws golfed 18 holes last Saturday (and almost beat Skylar). He returned to school, and track, last Monday and had a fantastic week. He is getting stronger by the day, feels as good as he did prior to surgery and he is eating almost everything! The only things we have not attempted yet (he hasn’t asked) are raw veggies and steak.
He has gained 11.2 pounds since surgery and is his heaviest he has ever been at 125.8. The color is back in his cheeks and he is sleeping really well ~ he has an adjustable bed which makes a massive difference.
He is still taking a PPI daily and will continue that for another week or two just to alleviate any reflux so it doesn’t impede his healing process.
He was gifted a fishing kayak by the Mandan Middle School 7th graders...they’ve been behind him since his battle began. He is blown away by their kindness and can’t believe that 300 kids he has never met are worried about him.
He looks at me like I am bonkers because I still watch him like a hawk when he eats and ask if he is okay about a million times a day. Grateful does not begin to explain it... God is so good!! I am so lucky to be this boy’s mama. #onebiteatatime #achalasia
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Daws
2 week update

Daws is doing amazing and thankfully he is recovering right on schedule.
He’s eating like a champ and has managed well with everything he has tried so far. No choking, no puking... just needs a little reminder now and then that he has to eat slowly and chew well.
He has enjoyed cookies, lemon loaf, bacon, pasta, chicken breast, salmon, cereal, eggs and watermelon in addition to his boost shakes and smooth foods.
Next on the trial and error menu is spiral ham and then eventually: steak!
He will be going back to school on Monday and he hopes to throw shot and discus in the last track meet of the season on Tuesday.

Sadly, SO SO SO SADLY, my mom is heading back to Canada this weekend. I don’t know who has benefited more from her being here...me, Shane, or Daws! She is eager to get home to my dad and her own bed but I’m contemplating hiding her car keys and making her stay!
Thank you for the continued texts, messages and calls to check on our boy. He’s still got a way to go on the scale and we are looking forward to seeing the color come back to his cheeks...but he is strong, positive and amazingly resilient! We are grateful. #onebiteatatime
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Daws update.
One week post-op.

Daws is soaking up his Baba’s love and filling up on scrambled eggs, over cooked noodles, mashed potatoes & gravy, tuna whipped with mega mayo, Boost-ice cream-yogurt-banana shakes and every kind of popsicle or ice cream bar we can find.
He hit a low weight of 114 pounds (and he’s over 5’10”) but now he’s gaining...half a pound just in the last 24 hours in fact.
He’s looking forward to being able to eat food he has to chew and gets super excited when he remembers that he can swallow “like a normal person”.
He still has a lot of “bubble wrap” under his skin from the CO2 but he is breathing so much better.
He’s getting stronger every day and will hopefully be back at school a week from Monday.
So grateful to have my mom here to help ❤️
#onebiteatatime
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Daws had his POEM (per oral endoscopic myotomy) this morning and it went well. He was under for 4 hours so he is having some difficulty with the build up of CO2 causing significant swelling in his face, neck, chest and airway.
Dr Kane is very happy with how it went, he had a 7cm myotomy. 5cm in his esophagus and 2 in his upper stomach. His esophageal function is almost 3x what it was prior to surgery, and we are hopeful that the esophageal spasms will decrease once his brain registers that what he swallows can actually go down without choking him.
We are waiting for a room in the East Tower, and he is adamant that TJ Oshie is coming to visit him. Apparently attending game seven the night before going under makes you think that your hero is also your BFF.
He looks like he has been in a hockey fight... but he’s able to rest comfortably for 10-15 minutes at a time. It will get easier...he’s incredible.

Thank you for the thoughts, prayers and check ins. He knows how many friends, family and strangers are supporting him... it means the world to all of us.
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$12,050 of $15,000 goal

Raised by 125 people in 1 month
Created April 14, 2019
Fundraising Team
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