Help Jaxon beat cancer!

$23,299 of $50,000 goal

Raised by 190 people in 30 months
TC
Taylor Chapman
on behalf of Amber Baumgard
 SMITHVILLE, TN
On April 8, 2016 our family received devastating news. My 2 year old nephew, Jaxon, was diagnosed with cancer. A few days ago, my brother found a bump on Jaxon's leg. Blood work showed suspicious signs so they scheduled him for ultra sounds and an mri. This was when they told my brother & sister in law that he has a tumor. The doctor said that the tumor has cancer characteristics but also benign ones as well. In these past few days, Jaxon has already been put to sleep twice to have an mri, untrasounds & a surgery to biopsy the Tumor that was found on his leg. After his surgery, was when we learned that he officially has cancer. Our hearts are so broken, but we take comfort in knowing that he is a child of God and we have completely put our faith in the hands of God. On Monday, we will find out exactly what kind of cancer, if it has spread, what kind of chemo treatments and what other steps to take from there. The time ahead of us will be extremely difficult, especially for my brother & sister in law because they won't be able to work due to taking care of a newborn baby & taking care of Jaxon. We appreciate any donation given, because every penny counts, and we just pray that you're blessed ten times for blessing us! But more than any donation, we appreciate your prayers!
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Just to get everyone up to date, the last month has been filled with obstacles. When Jaxon left Tennessee, he left with a fever and headed straight to his hospital in Colorado. There was nothing they could really do for him besides start him on oxy every 6 hours and at that point they decided to take his port out. He hates having it accessed, and they just want jaxon to be as comfortable as possible. Leaving Tennessee, Jaxon hasnt been the same. He hadnt walked at all, and when he did, he would just fall. Hes lost alot of weight and just completely weak. He didnt enjoy Disney Cali, and he didnt care much for his Michigan trip. Fast foward to a month later after praying to God to just let us get a glimpse of the happy Jaxon we know, God answered. This past week, Jaxon started walking, running, smiling and doing things he loves. He is enjoying Disney in florida sooooo much! We are so thankful for any answered prayers. We thank God for watching over him, protecting him and giving us more time with him. After Disney, they'll head back home to Colorado, where hospice will come in at this point. They plan to go ALL OUT for an early Christmas. You guys are what makes all of this possible. Your words are sweet, your prayers are encourging and your donations are making dreams come true. We can never thank everyone enough for all you have done. Please keep praying for Jax and helping us believe in his miracle that we know God can still make happen. Thank you God for giving us more days with your perfect angel here on earth.

Pictures show two weeks ago, and this week. God is soooo good!
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Today was the day my brother & sister in law had to sit with hospice and make decisions. Medically speaking, If they decided to stop everything, Jaxon would be lucky to make it 2 months. They decided to instead try another oral study drug that will prolong good life until about the end of this year. Hes having his port taken out and they no longer have to go to the dr except every couple of weeks. They will have to check his blood pressure daily because it messes with that but from here on out its about making the absolute best of whats left. He will have scans again in 2 months just to check up on everything. Eventually, he will begin to get weak and at that point he will start pain meds. He wont suffer through any of this, he will be pain free and thats important. This is all what the doctors say, but ultimately God has the final say so. Where there is life, there is hope. We are not giving up, but we arent oblivious to what the future can hold if Gods healing is different from ours. We are still praying for his miracle and will praise God through this storm. Thank you to everyone who made his party memorable, who has donated, who has helped out in any way possible & who has prayed non stop. We could never express enough how thankful we truly are. We will never stop fighting for you Jax, we love you

Next stop is california disney while he can still enjoy it!

Come to me, all who are weary and burdened, and I will give you rest.
~Matthew 11:28
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After Jaxons scans a month ago, they decided to try chemo again for 30 days and rescan and see where we are at. Unfortunately, when the cancer came back last month, it came back with a vengeance and the tumors are completely taking up his lungs. They didnt do a full body scan, but they assume if its that bad in his lungs, its probably spread other places. They have met with hospice and have decisions to make and to go over with them for Jaxon. They can decide to start another oral chemo and it may prolong his life for a year at best. Jaxon and his family are making their way to tennessee now and we plan to have a birthday party for him to celebrate him and open it up to everyone so they can meet him and get to know the inspiring boy we know. We are aware of the outcome and just ask that any questions yall have, please ask now. We want to celebrate Jaxon and not mourn until that moment comes. We arent giving up hope, but we also arent oblivious to the days to come and just want Jaxons life to be the most memorable and happiest we can make it these next few months. Thank you for your understanding. Please pray for safe travels, and ofcourse keep praying for his miracle because ultimately God has the final say.
Please keep an eye out for details on his "Celebrating Jaxon" event if you would like to meet him :)
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I realize this is a little late and that many have been waiting for an update. So they met with the oncologist and the research team and have decided to try the oral chemo Jaxon was taking before he ever did the transplant. He will try this for 30 days and then have scans to see if its working. If it doesnt work, they will stop chemo. Also, theres a new study drug thats in phase 1 that Jaxon has been signed up for. As soon as his doctor knew about the test results, He reserved his spot because there was only 6 spots left. The cancer is pretty aggressive, but no more aggressive then it was before. Ofcourse each time it comes back its not good, but jaxon has kicked its butt before and i just feel like third times a charm. The doctors want them to travel and see as much as they can see. So zach and amber have made a list of all the places theyd like him to see. Their traveling starts this weekend. They will kind of stay local because he starts his study drug monday and he has to stay healthy for it. They will be going to colorado springs, to the north pole and then to Cheyenne Mountain Zoo. The doctors are going to make them a calendar and then from there they will plan the rest of their traveling. We arent giving up, i just feel in my heart that Gods not done yet, and Jaxon will come out on top and have the most amazing testimony. Our prayer these next 30 days is that chemo kicks cancers butt, and that these cancer cells bow down to Jesus and flee Jaxons body, it has NO place there anymore. The bible says by His stripes, we are healed and Im claiming Jaxons healing and glorifying God for his miracle He is performing right now. Im sorry this is so lengthy, there is always sooo much to say. From the bottom of our hearts we thank you for your concerns, thoughts, donations, sweet words and most of all prayers. I think i speak for Amber and Zach when i say that yall have made this journey a little more bearable. Just to know so many people, even complete strangers are in Jaxons corner, fighting with him and praying day and night. For the next 30 days, please, we have got to pray without ceasing. We love you Jaxon. Your battle is our battle and we'll never stop fighting with you
Always a smile. Youre my hero.
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Read a Previous Update
Bernadette Minuto-Parr
30 months ago
1
1

We love you Jaxon!!!!!!

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Janice LaPalm Horgan
29 months ago

May God bless and keep Jaxon and his family in his care!

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$23,299 of $50,000 goal

Raised by 190 people in 30 months
Created April 9, 2016
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LA
$20
Leyla's Angels
1 month ago

Prayers for Jaxon!

$100
Anonymous
1 month ago
BW
$25
Brianna Wurtzel
2 months ago

Praying for you all. Lots of love❤️

PH
$300
Patricia Harding
2 months ago
1
1

Treasure the moments you have together. I pray that God give you the strength to handle whatever comes your way. Hopefully this small donation will help to bring some joy into your lives.

$500
Anonymous
2 months ago
1
1
$25
Anonymous
3 months ago
$50
Anonymous
3 months ago
Bernadette Minuto-Parr
30 months ago
1
1

We love you Jaxon!!!!!!

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Janice LaPalm Horgan
29 months ago

May God bless and keep Jaxon and his family in his care!

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