Jaxon's Journey Needs Help!
Donation protected
One of the proudest days in my life was when I was told I was going to be father. Next it was when I was told I was having twins. The overwhelming emotions can't even be put into words. Then came the scariest day of my life when the nurse said "oh, there's something wrong". She couldn't say what it was, but by the look on her face it was bad. She left to get the doctor and from the moment he came into the room. Our lives changed forever....
One of my sons was diagnosed with OEIS. Which is where the umbilical cord was not fully attached to his stomach and his organs were in a pouch outside of his abdomen. This came with many many many different problems. Without his organs inside it affected a lot of the rest of the organs. His lungs were underdeveloped
My twins Kevin and Jaxon were born August 9th 2013 at Yale Pediatrics Hospital in Connecticut. My twins Kevin and Jaxon were born at 32 weeks. Premature. Kevin was healthy and strong. Jaxon... he was quickly taken away for an 8 hour surgery before I even got a chance to meet him.
While Kevin came home a few weeks after he was born. Jaxon stayed in the hospital NICU for almost two years. He even grew out of the NICU and went to a different floor for pulmonary.
Jaxon has a ventilator and a trach. His hips are splayed so his legs didn't fully come together. He has spinal biffida. ( which was a tethered cord and fatty deposit on his spine). This has been successfully fixed with surgery from a neurosurgeon. Jaxon has an oral aversion because he was intubaded so many times in the NICU to help him breathe that he won't put anything in his mouth other than his hand. So he has a feeding pump. Along with pulmonary hypertension. among other things.
Everything he has is fixable with his team of amazing doctors and support staff. He had a surgery that lasted for 29 hours straight. ( worst day of my life).
My wife Katie and I started a journey together back in 2010. And we were both successful and had great careers. Since then all of this has changed. I had to leave my job that involved a huge amount of traveling because I never knew when I was going to get a call that I had to get myself and family to the hospital cause this is the end...( we had two of those). Around the same time my wife had to resign from her career to become a full-time caretaker for Jaxon while also raising our other two children. Jordyn 7 and Kevin (Jaxon's twin).
Yesterday my son was admitted to the hospital for the sixth time in 9 weeks with pneumonia. He truly is a super hero in my eyes and I will do whatever I can to help him.
So, it is at this point I have to put aside my personal pride and do what a father does. We have gotten to the point where with the added expenses of this journey we are in danger of losing our home, vehicles and really our way of life.
Thank you very much for taking the time to read this and if you are not able to donate please feel free to pass this along. Every bit will help to keep our family going strong. While helping Jaxon to fight the greatest fight ever!
The is also a link to my sons Facebook page where my wife updates his progress and challenges along he way. Feel free to tag along.
Jaxon's miraculous journey
One of my sons was diagnosed with OEIS. Which is where the umbilical cord was not fully attached to his stomach and his organs were in a pouch outside of his abdomen. This came with many many many different problems. Without his organs inside it affected a lot of the rest of the organs. His lungs were underdeveloped
My twins Kevin and Jaxon were born August 9th 2013 at Yale Pediatrics Hospital in Connecticut. My twins Kevin and Jaxon were born at 32 weeks. Premature. Kevin was healthy and strong. Jaxon... he was quickly taken away for an 8 hour surgery before I even got a chance to meet him.
While Kevin came home a few weeks after he was born. Jaxon stayed in the hospital NICU for almost two years. He even grew out of the NICU and went to a different floor for pulmonary.
Jaxon has a ventilator and a trach. His hips are splayed so his legs didn't fully come together. He has spinal biffida. ( which was a tethered cord and fatty deposit on his spine). This has been successfully fixed with surgery from a neurosurgeon. Jaxon has an oral aversion because he was intubaded so many times in the NICU to help him breathe that he won't put anything in his mouth other than his hand. So he has a feeding pump. Along with pulmonary hypertension. among other things.
Everything he has is fixable with his team of amazing doctors and support staff. He had a surgery that lasted for 29 hours straight. ( worst day of my life).
My wife Katie and I started a journey together back in 2010. And we were both successful and had great careers. Since then all of this has changed. I had to leave my job that involved a huge amount of traveling because I never knew when I was going to get a call that I had to get myself and family to the hospital cause this is the end...( we had two of those). Around the same time my wife had to resign from her career to become a full-time caretaker for Jaxon while also raising our other two children. Jordyn 7 and Kevin (Jaxon's twin).
Yesterday my son was admitted to the hospital for the sixth time in 9 weeks with pneumonia. He truly is a super hero in my eyes and I will do whatever I can to help him.
So, it is at this point I have to put aside my personal pride and do what a father does. We have gotten to the point where with the added expenses of this journey we are in danger of losing our home, vehicles and really our way of life.
Thank you very much for taking the time to read this and if you are not able to donate please feel free to pass this along. Every bit will help to keep our family going strong. While helping Jaxon to fight the greatest fight ever!
The is also a link to my sons Facebook page where my wife updates his progress and challenges along he way. Feel free to tag along.
Jaxon's miraculous journey
Organizer
Jeremy Buchholz
Organizer
Shelton, CT
