Tadgh's Medical Trip Fund

€2,680 of €6,000 goal

Raised by 70 people in 40 months
Tadgh's Medical Trip Fund An appeal from a mothers heart to give her boy the best chance of a normal life can only be achieved through your generosity to enable the medical world to investigate the rarest of genetic abnormalities.

Mum has come to a dead end in Ireland medically and is reaching out to specialists in the USA who would consider taking a look at Tadgh

Tadgh is a true fighter born flat lying at 28 weeks weighing 1.kg. He has suffered with his health and has had many difficult paths in his short life. Recently Tadgh was diagnosed with a rare chromosome disorder. He has a dulpicate of 984kb on the short arm of chromosome 7 at band 7p14.3 He has multiple problems and is very complex. He will need 24/7 full time care for the rest of his life. As nobody else in the world has been registered with the same condition the doctors can not tell us if all his diagnosis and problems are down to his genetic condition. I have set up this page to spread awareness and hopefully to find someone in the world with the same issues. At the moment I am looking into research for very rare diseases all over the world and hope somebody can help him.


Tadgh has an older brother Paul who also has mutiple diagnosis so his Mammy can't work.


This page is for awareness and to help with funding for costs of services and hopefully to get him to the States for research and possible help.
+ Read More
Most of us sit at our computers, on our phones, on our tablets, with our normal functioning fingers, hands, arms, elbows, shoulders and knees; tapping our functioning feet; sipping, chewing, swallowing whatever we want, never thinking twice about our chromosomal make-up.

For almost-3-year-old Tadgh Magee of Dublin, Ireland, none of this is his norm. His life has been one long discovery of new diagnosis, new symptoms, new surgeries and new setbacks. Tadgh is the only recorded person in the world to have the chromosomal disorder he has. The typical manner in which our bodies function are mostly foreign him.

In addition to or as a result of being the only known child in the world with a duplication short arm of chromosome 7 at band 7p14.3, precious little Tadgh is trying hard to make it through each day best he can. He is plagued with various heart, lung, brain and congenital disorders, body deformities, speech and sensory problems, was diagnosed with autism and speech delays, has an inability to feel pain normally, and a host of other medical conditions. When he cries he is unable to say why. In his situation there are so many abnormalities that it could be anything.

Tadgh’s daily life has been spent in and out of hospitals but there is nothing conclusive. He is under the care of numerous specialists who don’t consult with one another but rather contradict each other leaving his mother, Melissa, to connect all the dots on her own. She has so many questions for which there are currently no answers.

Melissa is neither a medical doctor nor researcher, but her last three years have been spent seeking help for her son. “I’ve rang all around the world. I rang Canada, I rang England, I rang America, I rang the NIH,” she says. “I keep hitting dead ends. Talks with Ireland’s Minister of Health proved useless as well.”

She visited the U.S. with Tadgh in February of this year so he could be fitted for a special T-Joe Brace to correct his chest deformity. While here she contacted the Children’s Hospital of Philadelphia to inquire about additional testing. She was told the initial cost would be $60,000 plus additional fees for admittance. “I just don’t have that kind of money,” she said.

Through Cherab, Lisa Geng is assembling a team of medical specialists, doctors and therapists, in Florida, who are offering their services free of charge so the Magee family can delve deeper into this miraculous boy and hopefully come up with more answers. All we need to do is get them here!

"Despite all these diagnosis Tadgh is the most loving little man. He is so funny and coming on in leaps and bounds. Unfortunately he keeps getting new diagnosis and I don’t know what will happen in the near future. I know I won’t ever find a cure and have accepted that Tadgh is my beautiful rare unique miracle baby but I would hope to find somebody with a duplication at 7p14.3." –Melissa Magee

Moms Helping Moms From Around The Globe

Melissa who lives in Ireland had shared the following cry for help on her personal Facebook page. Trish Peck who is a mom from China has a therapist for her son from Ireland. Her son's therapist saw this message and shared it with Trish, who shared the following on the Cherab support group on Facebook where Lisa Geng helped find professionals in Florida like Dr. Aylin Ozdemire, and Dr. Renai Jonas willing to donate their time to help Also special thanks to writer/mom Nina Wolgelenter for writing up Tadgh's story.
Facebook plea for help
+ Read More
Here is the link to Tadgh's facebook page. We are no longer going for help in London and have started our journey to America and had Tadgh fitted with a brace for his pectus carinatum. Thank you all who have donated
https://www.facebook.com/pages/My-Tadgh-One-In-A-Billion/993361977356253
+ Read More
To help fund Tadgh travelling to London and getting a brace for his Pectus Carinatum
+ Read More
Hi all this is the fundraising account for Tadgh. Thank you in advance to all who donates
+ Read More
Read a Previous Update
Be the first to leave a comment on this campaign.

€2,680 of €6,000 goal

Raised by 70 people in 40 months
Created December 12, 2014
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
€20
Anonymous
19 months ago
IG
€10
Ian Green
30 months ago

Sorry I couldn't make the night Mel. Hope to see you all soon Ian x

AG
€20
Andrew Mc garry
30 months ago

Hope all goes well for tadhg melissa

€20
suzanne davison
30 months ago

Hope your fundraising night is a great night wish i could join you xx

€5
Anonymous
31 months ago
€5
Anonymous
31 months ago
€10
Anonymous
31 months ago
€10
Anonymous
31 months ago
NT
€20
noelle t
31 months ago

Good luck to you all. You are a wonderful mother.

€50
Anonymous
31 months ago
Be the first to leave a comment on this campaign.
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a €5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.