Bryan's Recovery Fund
This fund, started by Bryan's Rockaway surf family for Shawnelle & Marlow, (his wife and daughter), is a place to donate for all who want to support Bryan and his family through this time of uncertainly and crushing heartbreak, that will most certainly add up to unimaginable debt....
On December 4, our dear friend, loving father, commited husband, fellow photographer, surfer and all around solid human being, Bryan Bedder, while about waist high in the ocean, innocently dove into a wave and collided with sandbar in South Beach, while on a break between job assignments. His C5 vertebrae fractured and slipped, pinching his spinal cord, which rendered him totally immobile. He remembers being able to manage a second breath before blacking out face down in the water. Perfect strangers walking by, heroically ran in and pulled him to safety.
Bryan has been recovering from spinal surgery performed by renowned surgeon DR LEVI at JACKSON MEMORIAL HOSPITAL under Dr. Barth Greens care, in Miami.... Whether some level of paralysis remains or he makes a full recovery, seems to be in the hands of fate. Whatever the outcome, this process will decidedly be slow and arduous, and wildly expensive.
YOUR LOVE, PRAYERS and GENEROUSTY WILL TRULY HELP HIM THROUGH THIS HARROWING EXPERIENCE!!!!!
With LOVE and GRATITUDE,
SHAWNELLE (his wife), MARLOW (his daughter) & BRYAN (whose heart is filled with profound appreciation)
Bryan's leg movement, very suddenly came back in a big way, so we are feeling very positive about that. It's his hands and fingers that will be his biggest challenge. This poses the greatest hurdle considering that Bryan is a photographer. He is so determined, that I know his sheer will is going to propel him to work HARDER than ever....but his triumphs may still fall short.....
So if there are any C5 photographers out there, please let us know your suggestions.
We CANNOT THANK YOU ENOUGH for your PRAYERS , THOUGHTS and LOVE!!!
"I have always been one to try to do-it-all-myself, rather than ask for help, but I would be FALLING APART without all the LOVE and GENEROSITY that we have been so fortunate to have received. With that said, I have complied a list of what would HELP ME=US tremendously right now.
1) Any info on how to go about initiating SS/Disability benefits for Bryan?
2) Donated Housing from any friends or friends of friends or great Airbnb or other-house rental for Miami. The latter-2 bedroom for under 1500- month, near Jackson Memorial Hospital in Miami.
3) Help to check reviews/reputation for list of potential interim schools/daycare from Marlow in Miami for Dec and possibly Jan.
4). HELP W/ RENTING our 2 Bdrm, NY apt to any Friends, relatives or friends of friends, while in Miami.
5) Cheapest Car rental place in Miami.
6) Miami work recommendations( agencies, clients info, personal recommendations on my behalf), etc...
7) The BEST Physical & Occupational SPINAL CORD REHAB in NY & Private Healthcare that WILL PROVIDE THE BEST COVERAGE FOR THESE THERAPIES!!!!
8) LASTLY, but NOT least: someone to start a page/single uniform way/for the reco's/info to be complied and easily accessed by contributors and ME!!
WE LOVE YOU and CANT THANK YOU ENOUGH!!"
"And he's up and at 'em....doing some morning stretches. Yesterday he ate and drank for the first time, oh yeah, and prepped for an assignment (see Sarah's amazing video).
We were told by Dr Green (Chief of Neurosurgery/Jackson Memorial Hospital)-the BIG Boss Man-that Bryan is really lucky, and with a lot of hard work should be okay. The fine motor is the biggest hurdle, but after his display of determination yesterday-we are feeling pretty optimistic. He will likely remain in the ICU for 3-4 more days), so no flowers or gifts are allowed. And while on the subject, as much as those items mean, Bryan will benefit far more from a donation to his fund. THERE ARE NOT WORDS TO DESCRIBE HOW IMPORTANT YOUR LOVE AND SUPPORT HAS BEEN, AND WILL CONTINUE TO BE TO US. I KNOW ITS HAVING A BIG IMPACT!!! BRYAN (and his whole family) IS DEEPLY MOVED BY ALL OF YOUR GESTURES!!! Thank you ALL from the bottom of our HEARTS!!"
Wow!~ I feel as though I have just received a valuable educational resource from all the comments and suggestions on behalf of Bryan. I, too, just found out what my spinal damages are to C4/5, C5/6, C6/7. I'm now looking at surgeons based on everyone's suggestions. for spinal chord injuries. I never knew there were options out there. I just thought this debilitating pain was from getting older and being an athlete in my youth--120 years ago. I'm grateful to all of you for your nurturing and considerate comments made on Bryan's behalf as you have inadvertently helped me! Much love to you and Bryan's family. xoxo
Hi Bryan: Hang tough. Thinking of you here in Philly. I'm an ASMP photographer, and know how much your work means to you. Wishing you a good recovery. Big Hugs, Bill.
This breaks my heart dude...I'm so sorry this happened to you. You seem very strong...do not stop the hard fight. Keep on. My thoughts and prayers are with You and your family xoxo
Wow, this is amazing! You are a very strong willed individual. I hope you are up on that wave soon.
I my self just posted for help when I was looking for my I came across your profile. Although I am in desperate need for a bone marrow transplant. I have a friend that fought a fight close to yours .I donated anonymous.for obvious reasons You are in my prayers please post updates just remember 90% of all illnesses are in your head stay positive and live day to day hour to hour or min to minute. God bless you
My prayers is with you and your family. I understand all so well about your incident. I was born with spinal stenosis. My c5 disc was replaced in 2010. I have the worst case of neuropathy in left extremities. I am now suffering with lumbar stenosis and believe me it's horrible. A strong family support and good orthopedic surgeons and God almighty you will be fine. May God continue to bless you and your family. Sincerely, Ms Vera
I just went into GoFundMe to start a campaign for myself. Had a doctor mess me up bad. I don't know this family, but the picture so touched my heart. Good company for Disability is Allsup. I have a friend that used them - found them fact and efficient. You don't pay unless they win. I will send my prayers to Saint Padre Pio, many wonderful things done in his name. I will keep you in my prayers!
My prayers are with you. My son in law broke his C5 in a diving accident, years ago. He too was face down and luckily didn't drown. It took him about 4 months to get back to work. He is left with some problems with grip in one hand and a permanent limp, but its not too bad with either. Thankful every day that we didn't lose him. Wishing you all the best and hang in there. Just wanted you to know that things WILL GET BETTER!.
Try http://standwith.com/ - they have a mobile app that lets you do lots of things, like request assistance from your support community, assign specific tasks, provide patient updates, etc. Supporters can accept tasks and provide feedback and it's all right on your phone. It's pretty cool!
Praying for you..
My hub was c4/c5 bruised cord injury .Mt Sinai in NYC is fab,Gaylord in Wallingford ,Conn is where My hub rehabbed .good luck !
You really need to go to Shepard Center or Craig Hospital ..... it is a must to get specialized care for Spinal cord injury
1-800-572-1213 is SSA's toll free number. Applying online may be the faster way to go. If you do not have Power of Attorney for your husband you need to get it. The Social Worker at the hospital may be able to help you if you do not know a lawyer. Paralysis is one of the listings which requires very little documentation or hoops to jump through (and exam should not be necessary). Two forms the disability office (a state office that makes the medical decision for Social Security disability) may send is a work history and an Activities of Daily Living. The work information you need is jobs in the last 15 years. The ADLs ask what he can do on a daily basis. Please don't be offended if you receive one , adjudicators (those who make the decision) tend to send the two form out automatically. If you have questions you can message me on FB, I am an adjudicator in a different state.
Keep your spirits up I've endured three back injuries a broken kneck c 7 and an sci at t7 am partially paralyzed after eighteen months of hard rehab spent sixty days at Craig hospital. And am know pursuing a carrier raising cattle with help from VOC rehab it takes patients I am still without transportation all or most of the help for that is not true. But be patient I have two campaigns on gofund but have no donations to date but patients works. It will happen I do get a small income from SSDI at this point took two years to get and a lawyer hope the best for you and your family keep it together stay a family
Try RelayRides.com for a car - usually a lot cheaper than the rental companies.
I totally agree with Kim Krausse, focus your efforts on getting to Craig or Shepherd. I know from experience that once you get through the doors at Shepherd, they will guide you and help you with anything and everything you need going forward, even after you have returned home.
Craig Hospital in Englewood (Denver) is a specialty spinal cord injury rehab hospital, number 1 in the country. I have a C5/6 level injury and went there two weeks after my injury and stayed for 12 weeks. They have apartments on site for family/friends to rent. Please check it out! Also Shephard hospital in Atlanta specializes in spinal cord injury and I have heard Great things. Number 3 for inpatient rehab is RIC - Rehab Institute of Chicago. GET OUT of a general hospital is my advice. Call any of these places. Get the hospital social worker to help. And to help with SSDI, he won't get denied, most people have to try more than once, not spinal cord injury. It kicks in 6 months after you apply. And there will be a separate amount for Marlowe, until she's 18. Please let me know if you have any questions. Best of luck and Many prayers!
For SSI - I applied on line for my husband. I made sure to include all medical record numbers, Dr.'s names and addresses, etc. Keep a folder with all of your hospital records, etc. Good luck!
I applied online, never set reports, but do get a folder to keep your application in. The SS office will get records from your doctors/hospital, and ask you for more info. I don't see any reason you will be denied. They may have him examined by their doctor, which never happened with me. It's mainly how you fill out the papework, but in your case it won't matter as much. As doctor reports will tell it all. Good Luck , God Bless you.