I Love Isaac!

On August 10, 2017, Julie (Ham) and Brett Bliven’s baby boy, Isaac, was diagnosed with Spinal Muscular Atrophy (SMA). SMA is a rare neuromuscular genetic disorder that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. While there is new hope for SMA children due to a recently approved drug therapy (Spinraza), the road ahead will be a difficult one for the Blivens.

Families with SMA kids often face considerable financial burden, and so we’re hopeful the Blivens’ notoriously kind family and friends will rally and help in any way they can.

With SMA, Isaac may someday need a feeding tube. He’s already using respiratory equipment. We hope the fundraiser can help with any future needs for a special car seat, stroller, wheelchair, bathing equipment, eventual home modifications, and/or medical travel, etc. Julie has already cut back work hours significantly to care for Isaac.

We thank you for supporting the Blivens and for your warm wishes for Baby Isaac--the happiest ray of light around.

Please note that the Ham family has also organized a fundraiser for Sunday October 15, 2017, in Portland, ME, if you'd prefer to show your support by joining us for this event: https://www.eventbrite.com/e/i-love-isaac-fundraiser-tickets-37747656256


To learn more about SMA, please visit www.CureSMA.org.