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Hospital and hospice expenses

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My wife and I had Obamacare; hers was $42.00 per month and mine, because my employer paid most of it, was about $30. 00 per month. Then, my wife's coverage went to $742.00 per month, which we could not afford, and we had to drop the coverage. Then, my hours were cut enough at work that I would have been about $90 shy of making our house payment. With $30.00 being a large chunk of the $90.00 we would be short, while making budget cuts, I was forced to drop my coverage. We are now being forced to pay installments to the IRS for not being able to afford Obamacare. 
     My wife , Shelley, has Cirrhosis, COPD, diabetes and was told her right knee joint is bone on bone, which explains why she has had a terrible time getting around for several years, once she was able to actually get someone to examine it. She has been turned down several times for Medicaid: once because I made to much earned income; once, when she was declared disabled but ineligible for any benefits, because I was unemployed with too much unearned income and on 21 December 2016, she was told she was not disabled and should be out working.
     About a month ago, I had to rush my wife to the emergency room, because she was vomitting blood from popped blood vessels in her esophagus and had a bleeding ulcer. At one point, her blood pressure was 95/54. They said her white blood count was very high at 30,000, but they could not tell me why. After a week in the hospital and three tranfusions, she was released, on oxygen, with a walker and listed as a fall risk on oxycodone. Luckily, we qualified for charity care for the hospital itself, but that does not cover ultrasounds, endoscopy, pathologist, anesthesiologist, lab work, draining abdomenal fluid from cirrhosis, etc, which are all billed separately.
     A week agoTuesday, we finally were able to get somone to x-ray her right knee, which showed the joint to be bone on bone. The next day, she was unable to get out of bed, She and I had jointly agreed that, if she did not improve, we would get her into the hospital again on Easter Sunday. However, I had to call the ambulance Saturaday morning, when she told me she could not roll over and was having a difficult time breathing. The hospital drained 8 liters of fluid from her abdomen, which helped her breathing, found her white blood count to be at 30,000 again and decided to do a CAT scan. The Cat scan revealed a bad abscess in the muscle tissue at the back  of the abdomenal cavity and arrangements were made for surgery. My wife was actually being wheeled to the operating room, when the surgeon  sent her back to the ER for further consultation.
     We were informed by the surgeon that, although the abscess would prove fatal without surgery, due to the cirrhosis, Shelley would only have a 10% chance for survival and could bleed to death on the operating table. Even if she survived the operation, which would have actually entailed daily surgeries for about 4 days with the removal of infected muscle the size of a dinner plate, she would have been rendered immobile, on a breathing machine, in a covalescent home for the rest of her life, never to see her home again. She opted out of the operation.
      Neither Shelley nor I had thought to inquire as to how long she had to live. I found the surgeon in another section of the emergency room, where she informed me that it would probably be less than one day. In shock, I chose to withhold that info from Shelley, but did share it with other family members. The hospital said they would put Shelley on comfort care, on morphine, to wait things out, in a private room, where family could visit. The hospital and its staff have been wonderful through the entire ordeal. They allowed me to sleep in the room with Shelley since Saturday and I have only left the hospital to briefly tend to our cats.        
      That was Saturday; it is now Tuesday night, April 19. The hospital could no longer wait for her to die, and said she had to go into hospice or I had to take her home, where I could not properly care for her. We put Shelley in hospice earlier today. The hospice people seem very nice and caring and have offered to try to help me get Shelley onto Medicaid. However, Medicaid will only pay for $90 per day, leaving a balance of $259 per day, for every day Shelley survives there. Shelley may die tomorrow, or she could survive for a week or more. Every additional day with my wife is a blessing. 
     Now, I must consider final expenses. When I cremated my father 11 years ago, I believe the least expensive package was about $1,700 and that may not have included the urn. Over 11 years, I am sure things have gone up.
     Well, that is Shelley's story, in a shortened version. By Wednesday, I will have missed 5 days of work to spend with Shelley for what I have been told are her last few days. To write this has been the longest that I have been away from her, since she went into the hospital Saturday morning. Any assistance will be greatly appreciated.
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Donations 

  • Patrick Mahoney
    • $50 
    • 7 yrs
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Organizer

Timothy DeLany
Organizer
Casper, WY

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