Hope for Lor's Life ~Help Beat CIDP

$11,759 of $25k goal

Raised by 69 people in 27 months
Bertie Scholz  TOMAHAWK, WI
As some of you know my daughter (Lori) was diagnosed with a rare debilitating disease in 2012.  Lori has a husband (Jason) and three beautiful young children (Keagan 12, Kyleigh 11, and Kamdon 6), and needs help beating this rare disease.  The rare disease is known as Chronic Inflammatory Demylelinating Polyneuropathy.  An autoimmune disease that attacks the nervous system that has no cure but is treatable through different treatments.  She has been scheduled for an evaluation at Northwestern University with Dr. Burt for a stem-cell transplant.  This cutting edge medical procedure offers a lot of hope for our family because Lori is no longer responding to her current treatment and over the last year her health has been slowly deteriorating.  She has limited use in her hands and has drop foot in both her feet.  The muscles in her legs and arms are serverly atrophied.  At times she deteriorates to a paralyzed state.  She has recently devoloped tremors, severve ataxia (no balance), and blurred vision.  She has a nurse coming to the house every nine days to give her steriods through an IV and has an IVIG at a very high dose which can have many serious long term side effects.  I am praying this procedure not only helps Lori go into full remission but also help to eliminate future home nurse visits.  She has recently lost the ability to carry out simple everyday tasks and work as a dental hygienist.  This disease is very frustrating for Lori and I wish I could simply take it away. 

I am so excited there is new hope for Lori by participating in a stem cell transplant at Northwestern University and praying everything will go as planned.  The treatment is called Hematopoietic Stem Cell Transplant.  Lori will be in Chicago for 2 months and undergo intensive Chemotherapy and harvest new stem cells that will be transplanted to give her a new immune system and new life.  

Since I can't take it away I am asking kindly for your help.  To help erase the financial burden that this disease is causing please consider contributing to help with the associated costs.  Costs that are not covered by insurance, travel expenses, and loss of wages.  Please pray for Lori's health.  She is looking foward to becoming the mother and wife she once was.

During a time like this, I am asking for your support. Any little contribution will help.  Please share with friends and family. Thank you for your thoughts, prayers and generosity. 

Lori's Mom ~ Bertie
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Update 6
18 months ago

I'm asking for more prayers and shares. I am excited to announce Lori had her stem cell transplant and is doing pretty well. Thank you for all the prayers and donations to make this possible. Lori will continue to stay in Chicago until she recovers it will be a year of healing and taking it easy but we are blessed she gets this chance at a new life. Please pray for continual healing and no set backs.
God Bless~Bertie
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Update 5
19 months ago

Please share for prayers! Lori is in Chicago today starting her process for the stem cell transplant. She is admitted for her first dose of Chemo. Please pray for complete healing for Lori. Thank you! God Bless...Bertie
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Update 4
21 months ago

I have good news to share and the best update I can give at this time. My daughter has a date of February 9th to start pre-testing for her stem cell transplant. BCBS has finally approved this life changing procedure. I want to thank you for all the prayers and donations. Please keep Lori in your prayers as she goes through this procedure. I will be updating as she starts her journey!!! God Bless ~ Bertie
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Update 3
24 months ago

I haven't updated on my daughter lately so I thought it would be a great time to do so. Lori is doing good, her strength has been getting better with the frequent high doses of IVIG and physical therapy. The tremors in her hands have been getting worse and we are praying for these to stop.

The insurance company has Lor's life on hold because they say it is experimental, even though this has been proven to be a successful method of treatment for CIDP. Many insurance companies pay for it but Lori's is being very difficult. CIDP has stole her life but with HSCT she hopes to get it back and soon. Dr. Burt at Northwestern is a miracle worker.

I am not willing to let the insurance company dictate her life and health any longer. Each day we wait more permanent nerve damage can occur and we don't need that. I will try to raise the money for the transplant myself so I can get my daughter back.

Please, I am asking please, continue to pray for Lori and share this site. Lori and her family needs all the support they can get to have this transplant started!
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 1.0K total shares
Rista Clark
27 months ago

Hi, I'm local (Greenville) and was diagnosed with CIDP in 98 - I am currently undergoing treatment (plasma phlureses, as IVIG had quit working. I would really like to meet with Lori if that would be at all possible. :)

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Kathy Gryszka
27 months ago

I have had MS for 22 years. A lot of her symptoms are the same as MS. I pray that the stem cell transplant works for her. High doses of IV steroids causes serious problems for the rest of your life. I follow several kids with Leukemia that have stem cell transplants & after transplant they get very ill. I will continue to keep her in my prayers. I am fighting Stage 4 Ovarian cancer (my 5th cancer diagnosis since 12/2002) and a stem cell transplant is not an option for me because of the side effects that would effect my 'MS and send me into a dangerous exacerbation. God please keep her in your loving embrace & help her through this procedure. May she be healed & be able to continue to be a part of her children's lives.

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$11,759 of $25k goal

Raised by 69 people in 27 months
Created July 3, 2014
KB
$100
Keane Blaszczynski
18 months ago
KK
$100
Karen Korson
18 months ago
SB
$40
Scott and Shannon Bartlett
18 months ago
$100
Anonymous
18 months ago
JR
$50
Jeff Robinson
18 months ago

For my fellow CIDP'er. Prayers for continued health.

RV
$20
Rick and Julie VanHoose
18 months ago

Thinking of you

KW
$50
K.I.O.I Weber
18 months ago
MT
$100
Martha Thomas
18 months ago

Keeping you guys in our prayers..

A
$60
Anonymous
21 months ago
BH
$119
Baldwin Heights
21 months ago (Offline Donation)
Rista Clark
27 months ago

Hi, I'm local (Greenville) and was diagnosed with CIDP in 98 - I am currently undergoing treatment (plasma phlureses, as IVIG had quit working. I would really like to meet with Lori if that would be at all possible. :)

+ Read More
Kathy Gryszka
27 months ago

I have had MS for 22 years. A lot of her symptoms are the same as MS. I pray that the stem cell transplant works for her. High doses of IV steroids causes serious problems for the rest of your life. I follow several kids with Leukemia that have stem cell transplants & after transplant they get very ill. I will continue to keep her in my prayers. I am fighting Stage 4 Ovarian cancer (my 5th cancer diagnosis since 12/2002) and a stem cell transplant is not an option for me because of the side effects that would effect my 'MS and send me into a dangerous exacerbation. God please keep her in your loving embrace & help her through this procedure. May she be healed & be able to continue to be a part of her children's lives.

+ Read More
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