Hope for Lor's Life ~Help Beat CIDP
I am so excited there is new hope for Lori by participating in a stem cell transplant at Northwestern University and praying everything will go as planned. The treatment is called Hematopoietic Stem Cell Transplant. Lori will be in Chicago for 2 months and undergo intensive Chemotherapy and harvest new stem cells that will be transplanted to give her a new immune system and new life.
Since I can't take it away I am asking kindly for your help. To help erase the financial burden that this disease is causing please consider contributing to help with the associated costs. Costs that are not covered by insurance, travel expenses, and loss of wages. Please pray for Lori's health. She is looking foward to becoming the mother and wife she once was.
During a time like this, I am asking for your support. Any little contribution will help. Please share with friends and family. Thank you for your thoughts, prayers and generosity.
Lori's Mom ~ Bertie
The insurance company has Lor's life on hold because they say it is experimental, even though this has been proven to be a successful method of treatment for CIDP. Many insurance companies pay for it but Lori's is being very difficult. CIDP has stole her life but with HSCT she hopes to get it back and soon. Dr. Burt at Northwestern is a miracle worker.
I am not willing to let the insurance company dictate her life and health any longer. Each day we wait more permanent nerve damage can occur and we don't need that. I will try to raise the money for the transplant myself so I can get my daughter back.
Please, I am asking please, continue to pray for Lori and share this site. Lori and her family needs all the support they can get to have this transplant started!
Hi, I'm local (Greenville) and was diagnosed with CIDP in 98 - I am currently undergoing treatment (plasma phlureses, as IVIG had quit working. I would really like to meet with Lori if that would be at all possible. :)
I have had MS for 22 years. A lot of her symptoms are the same as MS. I pray that the stem cell transplant works for her. High doses of IV steroids causes serious problems for the rest of your life. I follow several kids with Leukemia that have stem cell transplants & after transplant they get very ill. I will continue to keep her in my prayers. I am fighting Stage 4 Ovarian cancer (my 5th cancer diagnosis since 12/2002) and a stem cell transplant is not an option for me because of the side effects that would effect my 'MS and send me into a dangerous exacerbation. God please keep her in your loving embrace & help her through this procedure. May she be healed & be able to continue to be a part of her children's lives.