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Hewlette Marielle's Medical Funds

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Hewlette Marielle is a 5-year-old very positive and bubbly kid. She was diagnosed with Nephrotic Syndrome at the age of 2, and from that time onward has constantly been in and out of hospitals. She has to regularly be seen by doctors every two weeks, is on more medication than any 5-year-old should be, and is constantly having her labs monitored--all of this so she doesn't become sick. Her condition has steadily gotten worse, and she is now suffering from End Stage Renal Failure. She has been on peritoneal dialysis for 4 times a day, every day, for over a year. The specialists who are now seeing Hewlette informed us that there was a migration of her dialysis tubing, and because of that her pancreas became inflamed and new infections formed in her abdominal cavity, causing her to spike fevers and experience excruciating pain. She was operated on to take out the infected tubing and placed a central venous line for hemodialysis.

Hewlette is now in Canada seeking medical treatment. She is looking for a chance to get on the transplant list and hopefully live a more normal life for her age. However, another complication was found 3 weeks ago and she was admitted in the hospital yet again. The doctors are saying that Hewlette has fluids in her lungs, making it difficult for her to breath. During this time, the doctors also found out that Hewlette’s heart has a problem and is not pumping blood adequately throughout body--her heart rate is around 170-200 beats/min. They told us that Hewlette’s heart is overworked, her coronary arteries are dilated, and she has developed thickening of the muscles of her heart. Hewlette was put on several cardiac drugs and is now intubated in the Cardiac ICU for Children in order to help her heart and breathing become less labored. The doctors are suggesting the possibility of putting her (a 5-year-old child!) on an artificial heart pump.

Hewlette was ordered to have full body scan/MRI to further study her heart condition and decide on her treatment plan. However, during the scans another unfavorable finding was discovered--part of her brain has been affected and is now somehow shrinking. Hewlette is being seen by a plethora of specialists, including cardiologists, nephrologists, dieticians, endocrinologists, and even a geneticist. All of them are puzzled by her multiple diagnosis.

Hewlette is very cheerful and high-spirited despite her grave diagnosis. She is a brave daughter, niece, friend, and sibling, and is very much loved and adored by her family. Her recent intubation has completely caused a change in her personality due to the pain she has to endure, and we are all hoping to make her comfortable so she experiences less pain and becomes more like Hewlette we know. We would like her to have a chance to live a life that she deserves. The 3 years of treatment this brave young girl has endured has, unfortunately, cause extreme financial burden on her family. We are humbly asking to include Hewlette Marielle in your prayers and give support by donating towards her medical funds.



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Donations 

  • Mhei Alcos
    • $20 
    • 6 yrs
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Organizer

Neriz Tenorio
Organizer
Hays, KS

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