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Melissa's Lyme Disease Fight

$5,150 of $25,000 goal

Raised by 47 people in 19 months
Created August 9, 2017




The Vaughn family is in need of help. They moved to Denver due to the demands of her husband's job 3 years ago. For the last several years, Melissa has been in and out of multiple hospitals, seen several specialists, and has had multiple tests. Melissa was finally diagnosed with Lyme Disease in October 2017.  Since she has had Lyme for such a long time, the fight will not be an easy one, but now that she has a diagnosis they can finally see the light at the end. They have incurred medical expenses beyond imaginable. Please help our loving Melissa! She is the kind of person that would do anything for anyone.

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Here is a picture of Melissa's Lyme test results from October last year, and the rash on her arm from 2011. We found a tick on her in 2011 and never thought that anything would come of it, boy were we wrong!
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I'm finally getting a PICC line on Monday to try to treat the Lyme disease. It wasn't responsive to the oral doxycycline. There was a week where I thought I was getting better but then I started getting worse.They were going to put me in the hospital for a month to do the infusions but they said there's so much nasty stuff going around there, the risk would outweigh the benefit. So, I'll be doing infusions at home everyday for the next 28 days, and a home health nurse will be coming twice a week to make sure there's no infection and my PICC line is clean and no blood clots. I wish they would have done this last month when we had met our deductible before it changed this month. Just bad timing.

As much as we didn't want to move, if we would have stayed in Denver this probably would have killed me. Doctors weren't listening to me there. Even the University of Colorado Hospital couldnt figure it out! I'm assuming in my case since I was always on antibiotics and prednisone, my body wasnt making the antibodies to Lyme. Although looking back at bloodwork I did have 3 antibodies for Lyme years ago. It must have gotten overlooked? Now I have 7, IGG & IGM . Enough to report to the CDC. I don't think there has ever been a confirmed case of Lyme diease in Colorado!

Lyme is some nasty stuff! It attacks the central nervous system, muscles, heart, joints, brain, organs, eyes, among many other things . The spiral shaped bacteria burrow into the body & disguise themselves as cysts (of which I have on my thyroid, lung, ovaries and spine which is why I'm assuming my spine is so much pain). It can also go into remission & pop up as nasty flares. Mine were every few months for years lasting longer & longer and getting worse & worse every time.They call it the great imitator because most often people get diagnosed with things such as MS, lupus, rheumatoid arthritis, and many others. I thought for sure that I had MS! My doctor also has some suspicions of some other things going on so she's also doing more blood work on Monday. If I'm not doing better after the infusions they will do a bone marrow biopsy.

Fingers crossed!
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Successful surgery, tumor was benign!
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After having high fevers (103°), severe night sweats, muscle spasms and pain, my husband took me to the ER. I couldn't even move!

There they ran more tests and the doctor actually went through my whole record. Western Blot for Lyme disease tested positive for both IgG & IgM. They started me on 28 days of doxycycline & if doesn't work they will try IV antibiotics. The Lyme disease has affected my lungs, neurological system, muscles, and brain. I have something in my left lung that docotrs are trying to figure out what it is. Doctors are figuring out what all it has affected since had it for so long. Fevers, weight loss, whole body pain, horrible night sweats, constant nausea, muscle wasting, cramping, twitching, numbness, weakness, so weak I can't drive. Only get out of bed for doctor appointments.

Hopefully this treatment will help, and we will see what permanent damage there is.

We still have a long road ahead, but at least I can start some sort if treatment.

Melissa
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$5,150 of $25,000 goal

Raised by 47 people in 19 months
Created August 9, 2017
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KS
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