Stella's Medical Fund

$14,925 of $25,000 goal

Raised by 149 people in 22 months
Stella is like any other 6yr old. She is loving grade 1, making new friends and learning all kinds of new things from her amazing teachers. She can't get enough music, Roblox, Minecraft, Seven Super Girls, and Little Kelly. She loves her brother, mom, dad, and is waiting to receive her assistance dog from Canine Companions in Ohio.

Stella has Spinal Muscular Atrophy (SMA) Type 2.


SMA destroys the nerves that control voluntary movement like crawling, walking, head and neck control and even swallowing.SMA is the #1 genetic killer of children under the age 2.
1 in 6000 babies is born with SMA.

50% of the children diagnosed before the age 2, will die before their 2nd birthday.


We are currently raising money to help pay for a new power wheelchair and to prepare for the cost of a recently approved treatment for SMA.


Wheelchair
Stella's only way to move around independently is in her power wheelchair. Unfortunately, she has grown out of her current chair (She had successful back surgery in  September and grew 6inches in one day!) and it is also beginning to wear out. In March we will be doing our final fittings for her new chair that will not only allow her to keep up with her brother, friends, and dog but will also allow her to get into a nearly standing position to play eye-to-eye and interact more naturally. Help Stella maintain her independence and live with mobility by supporting her campaign.

Spinraza
Spinraza is the first ever treatment approved by the FDA for SMA. We are so excited to be in the process of getting Stella ready and approved for the drug. However, in the first year, it has been reported that the treatment will be as much as $750 000 dollars and because she will need injections every year after that it will cost as much as $375 000 each year for the rest of her life. Help us prepare to secure this life-saving treatment for Stella by supporting her campaign.

It is difficult and humbling to ask for help. It means so much to us that friends and strangers alike are committed to helping Stella live her best life possible.

Thank-You.


You can find out more about Stella by going to her website thisisstella.com and checking out her blog .

UPDATE: Stella's story was detailed on CTV National news in Canada — 

http://www.ctvnews.ca/video?clipId=1060988&playlistId=1.3292651&binId=1.810401&playlistPageNum=1&binPageNum=1
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We just wanted to thank everyone for their support. I will be going to Biogen on Tuesday (Rare Disease Day) to talk to their Canadian employees about living with SMA. I am optimistic they will be as motivated as we are to get SPINRAZA approved and provide it to our children at an affordable cost. - the Bartletts
Thank you!
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$14,925 of $25,000 goal

Raised by 149 people in 22 months
Created February 14, 2017
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$50
Anonymous
7 months ago
$25
Anonymous
8 months ago
$40
Anonymous
8 months ago
$50
Anonymous
8 months ago
SC
$50
S C
13 months ago

To Sweet Stella, Oliver, and your mom and dad. "May our Lord Jesus Christ himself and God our Father, who loved us and by his grace gave us eternal encouragement and good hope, encourage your hearts and strengthen you in every good deed and word. 2Thess 2: 16-17 Much love to your family

JN
$100
Julie Newberg
13 months ago

Stella you are an inspiration to me that no matter how bad my pain is I will think of you and push threw it like you do. Stella your my hero !!!! God Bless you and your family. I pray you reach this goal amount to get the treatment

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