Stella's Medical Fund
Stella has Spinal Muscular Atrophy (SMA) Type 2.
SMA destroys the nerves that control voluntary movement like crawling, walking, head and neck control and even swallowing.SMA is the #1 genetic killer of children under the age 2.
1 in 6000 babies is born with SMA.
50% of the children diagnosed before the age 2, will die before their 2nd birthday.
We are currently raising money to help pay for a new power wheelchair and to prepare for the cost of a recently approved treatment for SMA.
Stella's only way to move around independently is in her power wheelchair. Unfortunately, she has grown out of her current chair (She had successful back surgery in September and grew 6inches in one day!) and it is also beginning to wear out. In March we will be doing our final fittings for her new chair that will not only allow her to keep up with her brother, friends, and dog but will also allow her to get into a nearly standing position to play eye-to-eye and interact more naturally. Help Stella maintain her independence and live with mobility by supporting her campaign.
Spinraza is the first ever treatment approved by the FDA for SMA. We are so excited to be in the process of getting Stella ready and approved for the drug. However, in the first year, it has been reported that the treatment will be as much as $750 000 dollars and because she will need injections every year after that it will cost as much as $375 000 each year for the rest of her life. Help us prepare to secure this life-saving treatment for Stella by supporting her campaign.
It is difficult and humbling to ask for help. It means so much to us that friends and strangers alike are committed to helping Stella live her best life possible.
You can find out more about Stella by going to her website thisisstella.com and checking out her blog .
UPDATE: Stella's story was detailed on CTV National news in Canada —