Helping me day2day - Specialist Equipmemt

My name is Adam and I am 9years old. I have a rare condition called Mowat Wilson Syndrome and unfortunately I have a very severe form of it. When I was born my mummy was told I wouldn’t survive past 2 days and to say her goodbyes but 23 surgeries and a good few scares for mummy later I’m still here and I absolutely love life. Unfortunately one of the biggest things effecting me is seizures which seem to get worse as I get older and effect me at night. My mummy doesn’t sleep as she is always watching me worried I will have a seizure and as I am sick after a seizure this can be extremely dangerous for me if there is no one to help me turn over or sit up or if I do not get my emergency medication in time. 
My mummy would like to raise some money to buy a special camera system to put in my bedroom which will mean she can see me clearly without having to be in the room with me & it would mean seizures can be recorded to help my doctors understand them and change medications to help me. 
My mummy is going to run 4 10kms races from March to May 2019 and any sponsorship you can give her would be so much appreciated. My mummy couldn’t run 500feet 12 months ago so she’s been training hard! 
Thank you so much.