Help Hlee Conquer Colon Cancer
Hlee had just graduated in May 2016 with her Bachelor’s Degree in Nursing from the University of Minnesota – Twin Cities. Jim and Hlee had sacrificed and waited for this very day – so both can be done with school so they can finally start a family and begin living their dreams.
Hlee is currently undergoing chemotherapy for Colorectal Cancer and taking chemo medications in hopes to shrink the cancer in her colon and to prevent it from spreading. Hlee is a strong woman and she is a fighter! We are confident she can beat this because she is so young – at 33 years young!
Anything you can do to help is much appreciated. All donations received will be used to pay for medical bills and treatments. We also appreciate the kind words of encouragement, support, and will forever be grateful to each and every one who is helping us during this time of need.
There is a ‘can’ in
because we CAN beat it!
From all of Us - The Boua Hue Xiong Family
“Once you choose hope, anything’s possible.” – Christopher Reeve
These past few days has been the most difficult days of my life making preparations for her funeral. I hide this heartache behind a smile that gets more difficult to hold as the days go on. But Hlee says for me to be strong for her and “STRONG” I will be.
Words cannot express how thankful we are for your contributions. YOU allowed her to continue with her treatments. She knew that YOU fought alongside with her till the very end. And YOU helped her to be #HleeStrong. THANK YOU EVERYONE!!!
To my beautiful wife:
We fought very hard till the very end. You said for me to take care of “EVERYTHING” and as promised, I will. We were in this nightmare together and now you are finally free. I know you are in a better place where there is no pain. I will miss you every day. I love you Hlee….ALWAYS.
- Jim Vam Yeej Lee
Funeral Services for Hlee will be held on Friday May 19 - Sunday May 21st at:
Hmong Funeral Home
215 E Thomas Street
Wausau, WI 54401
After lobbying our insurance company, Hlee was able to get the DOTATATE PET scan from Mayo Clinic as an “in-network” scan for her insurance. This is a 3-dimensional scan that shows the locations of the cancer. Hlee was able to set up an appointment at Stanford University on April 5th with an Oncologist that is an expert in Neuroendocrine Cancer. The DOTATATE scan shows that there are cancer in the following places:
- Left Breast
- Left Hip
- Right Shoulder Blade
The scan also showed that there's something in the brain, but it's not specific to what exactly it is. Therefore, an MRI must be done to find out more. This MRI has already been scheduled for 4-12-17. The Oncologist from Stanford has informed Hlee and Jim that Hlee been getting very good treatment from her current Oncologists and has agreed with all the treatments that Hlee have received so far. Also, she agreed it would be good for Hlee to get into the clinical trial (DLL3, ROVA-T) at Mayo Clinic.
While Hlee awaits for the clinical trial at Mayo, she is also set up as a new patient with Stanford University - which is now in their pool of Oncologists for consultation and treatment (if needed). A recent CT scan has shown that the cancer is progressing again. Which means the current chemo regimen Hlee is on now is not reducing the cancer. Hlee's Oncologist is also concerned that there is compression in her bile duct and she will be getting an ERCP (Endoscopic Retrograde Cholangio-Pancreatography). If there is compression in the bile duct then they will put a stent in the bile duct.
Both Hlee and Jim will continue to keep fighting. Thanks for your continued support.
#HelpHleeConquer #FightingColorectalCancer #HleeStrong
Clinical trials is another option, however; the clinical trials available to Hlee will require another liver biopsy, no chemotherapy after the biopsy, and anywhere between 3 – 4 weeks for a response back from the sponsors. If Hlee choose this route, then it will delay the current chemotherapy (not recommended by the Oncologist). Therefore, Hlee will not get treated for this time period.
Yet, Hlee is eligible for a clinical trial at the Mayo Clinic with specific markers on her cancer and is awaiting for the sponsors to select their patients. Hopefully, Hlee will get selected! Her current Oncologist at the University of Minnesota will touch base with the Oncologist she has been seeing at Mayo to see how soon she may or may not get selected into this trial.
In the meantime, Hlee is awaiting for her health insurance company to approve a DOTATATE PET scan. This will allow Hlee to go to Stanford University to see an Oncologist there who specializes in her specific cancer, Neuroendocrine.
***THANK YOU ALL for everything you’ve helped me with.***
Jim and Hlee want to give an update to all of Hlee's supporters. Hlee has undergone 4 cycles of chemo when she was first diagnosed with colon cancer. After a liver biopsy, she was diagnosed with a rare type of cancer called Neuroendocrine Cancer. She is getting her 6th cycle of her new chemo treatment regimen today totaling 10 cycles. Her current regimen is only recommended between 6 - 8 cycles. Therefore, she has 2 cycles left to go. If she is given more than 8 cycles, then the toxicity of the chemo may be too toxic. The Oncologists plan to max out her cycles because they want to see if the cancer will reach a plateau where it will not decrease in size anymore. The reason for this is the cancer may adapt to the chemo and the chemo treatments may not be effective in decreasing the cancer anymore. Once the chemo cycles are maxed out, other treatment options will be considered after Hlee's 8th cycle.
On Thursday December 22, 2016 Hlee went in for a CT scan. The CT scan shows the cancer has decreased by about 50%. Multiple lesions on both sides of the liver has decreased in size and her tumor on her colon (hepatic flexure) has significantly decreased in size. A lesion in her liver that measured at 3.4 cm in diameter from her previous scan is now at 1.4 cm. Overall the scans are showing positive results and shows that the cancer in her liver has decreased in size. The Oncologist had ordered an MRI of the brain because this type of cancer, Neuroendocrine, usually travels to the brain. The MRI showed that there was no evidence of it traveling to the brain. Another MRI of the brain will be done again after the 8th cycle. If something is found in the brain, then Hlee will undergo radiation to the brain.
This past weekend, Jim and Hlee were able to enjoy Christmases with their families. Since the diagnosis, they have had many supporters and fundraisers that have helped them in so many ways and they want to thank you all for your contributions! You all made this journey a lot easier for Hlee as she continues to overcome cancer. THANK YOU ALL!!!
My brother was diagnosed with stage 4 colon cancer and was given 6 weeks to live if he decided not do anything about it. Just like your sister, my brother is in his early 30s. My brother decided to get surgery and removed part of his colon; and he did chemotherapy. It will be almost 4 years now and my brother is cancer free. I guess I am here to let you know that there is hope and I hope your sister pull through. Best wishes. Let your sister know, there was someone just like her who went through the same thing with the same diagnosis and is now okay; she too, will be okay.
A friend of mine had asked for a favor, he wanted someone to tell Mr.Lee this. These are his words. You may not know who I am, but I know who you are. You are a provider of happiness, & a deliveryman of smiles to the kids I can call my friends. You've encouraged them to excell, you've pushed for their success... You've taught them how to live the greatest life possible and you've shown them greater respect. You're a very strong man, and your wife is going to be even stronger. Now, you're in a loop of mixed emotions and we know you're trying your hardest to stay positive. You've helped so many, and I am the few of those who did not receive that help. What I received from you... were great friends, life-long friends. Friends who knew right from wrong, up from down, and knew that failure leads to success... because you had taught them that and I am very appreciative of it. A friend of mine, which you taught, had told me... and I quote... "Happiness is temporary, but the few who help can permanently establish a system... One good deed can become an endless ripple that can lead back to you." Consider this the ripple Mr. Lee. You've created hundreds of bright students, and they're now close-friends who've helped me through my times with the content that you've taught them. For that, I have donated $125 as of now. In time, I will continue to donate until you've reached your goal and beyond. I want you to know that you've done good, and now it's your turn for some help and trust me as I say this... help is coming... whether it's today, tomorrow or whenever... My assistance and every student you've taught will be there for you. I wish you the best Mr.Lee! & there is no need for thanks. You've given me plenty, now it's your time to receive. Sincerely, SheanZong Lee
Hlee and Jimmy, it's amazing how time flies. It was just yesterday we were little gangster wanna bees trying to take on the world. And now here we are adulting and miss those simple care free moments. My family will be praying for yours. Cancer can be scary, painful, tearful and so lonely......Leon and I know because we've been there. through this journey don't forget to dance in the rain and know that God has you in his hands!!
I'm so sorry that Hlee had to go through this awful ordeal. Would she be open to hear about other ways she can try to get rid of this devastating disease? We all have only one life to live and she is too young to suffer like this. If she is open I can introduce her to a Cancer center to see if they can help her. If she isn't open and just wanted to follow the traditional method of cancer treatment than it's ok too. Please remember that cancer is not a death sentence. We can fight it and kick it to the curb.
My heart is filled with so much warmth after reading these comments. Thank you so much for all your loving words. I am so happy to see that my brother and my Nyab are so loved. Caitlin.. Thank you for posting this and I'll defin. make sure my brother sees this. He will be touched. Tan, I am so happy your brother recovered and he is doing well. Your message will defin. give all of us hope and faith that she too will recover. ♥