Help to pay for dentist fitted night-guard

I should begin by saying that this is not something easy for me to do, but because of its critical nature I had no other options.

A few years ago I was diagnosed with a rare seizure disorder called Facio Mandibular Myoclonus. It's so rare that only 3 other people in medical history have ever been diagnosed with it. (most likely misdiagnosed as bruxism) It is basically when at night,  while you are asleep, your jaws will involuntarily snap together - and it 'snapping' has been recorded at as much as 10,000 PSI.  The best way to describe it is like what a very angry giant eastern snapping turtle's jaw will do when he/she is.. well, quite angry.  The results can be dramatic and if not treated your teeth will eventually not be able to bear the weight and beginning to rapidly deteriorate, in which is now my case.

Unfortunately my insurance does not cover this, even though it is related to a seizure disorder. 

Because of its severity the bones behind my gums havestarted to grow out. I have already had to have one oral surgery to remove one, and will need to have the other one removed at some point in the near future. And although this is seizure related disorder, my insurance declined to pay.  

I should mention that I have tried various OTC mouth-guards but they simply are not sufficient.  For many OTC mouth-guards work for bruxism but in my case they are little more than a band-aid and I have had on more than one occasion when they have been flung out of my mouth during an episode.  Dentist fitted mouth-guards do not do this because they are made with an impression then sent to a lab where they are personally constructed to fit your mouth. 

Although many Dr's will prescribe medications such as Benzodiazepines for this disorder, those are not without their risks. I have undergone treatment with those and my tolerance became so high I had to look for other options. That is when I saw a sleep specialist/neurologist and was finally diagnosed. It is thought that FMM is a form of brainstem reticular myoclonus, involving a circuitry of fifth and seventh cranial nerve nuclei along polysynaptic pathways (Vetrugno et al., 2002). In layman's terms they believe this is due to the damage to my C-spine from RA related OA and the pressure it has put on my spine. I have had Rheumatoid Arthritis since my teens and Osteoarthritis since my late 20's. 

I don't know what else to say. I will upload what information that is about FMM here. There is little research because of how rare it is, but regardless of that it is something very serious and life-changing. 

Thank you all for what amount you are able to give. No amount is too small. All is appreciated regardless of the amount. 

Andrea 

https://www.jle.com/en/revues/epd/e-docs/facio_mandibular_myoclonus_a_rare_cause_of_nocturnal_tongue_biting_287639/article.phtml?tab=texte

https://www.researchgate.net/publication/6180783_Sleep-related_faciomandibular_myoclonus_A_sleep-related_movement_disorder_different_from_bruxism