Help raise funds for EDS UK
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Click here to watch me talk about my story -->
https://www.facebook.com/becky.coates.79/videos/10211650569132702/
On the 28th of April 2017 I was formally diagnosed with Ehlers Danlos Type 3, though we'd already known for a couple years that this was the case. This took 3 years of hard work and determination, after being dismissed, misdiagnosed and turned away by many specialists across different fields of expertise.
I have hypermobility type, which affects about 1/10000 people. It is a genetic condition which unfortunately has no cure as of yet and many patients deteriorate to the extent of needing wheelchairs, gastro intervention (feeding tubes) to sustain life. We also suffer from widespread chronic pain that is often untreatable.
On July first I will be participating in the colour run, aka the happiest run on the planet. I am hoping to raise money for EDS UK whom support people just like me, suffering with Ehlers danlos syndrome.My legs unfortunately have been deteriorating and I feel like this year could possibly be the last year that I am physically up to participating in any kind of run. It's not a long run, but it will be difficult on my body- but I'm far from a quitter!
Any kind of donation is is hugely appreciated!
thanks for taking the time to read my story,
Becky
https://www.facebook.com/becky.coates.79/videos/10211650569132702/
On the 28th of April 2017 I was formally diagnosed with Ehlers Danlos Type 3, though we'd already known for a couple years that this was the case. This took 3 years of hard work and determination, after being dismissed, misdiagnosed and turned away by many specialists across different fields of expertise.
I have hypermobility type, which affects about 1/10000 people. It is a genetic condition which unfortunately has no cure as of yet and many patients deteriorate to the extent of needing wheelchairs, gastro intervention (feeding tubes) to sustain life. We also suffer from widespread chronic pain that is often untreatable.
On July first I will be participating in the colour run, aka the happiest run on the planet. I am hoping to raise money for EDS UK whom support people just like me, suffering with Ehlers danlos syndrome.My legs unfortunately have been deteriorating and I feel like this year could possibly be the last year that I am physically up to participating in any kind of run. It's not a long run, but it will be difficult on my body- but I'm far from a quitter!
Any kind of donation is is hugely appreciated!
thanks for taking the time to read my story,
Becky
Organizer
Becky Coates
Organizer
