144
144
13

Help my daddy, Damon, recover.

$20,110 of $50,000 goal

Raised by 150 people in 17 months
Aloha everyone, at this time my sister and I would like to ask for your help in helping our dad, Damon Remmers, recover from a rare brain tumor.

From January to November of this year (2017), our dad experienced difficulty swallowing, unintentional extreme weight loss in a short amount of time, motion sickness, constant ringing in his ear, loss of balance, loss of sensation in his fingers, and numbness in his legs. After being misdiagnosed twice, on November 08 a MRI was finally ordered and our dad was told that "You have a mass really close to your spinal cord, compressing your brain stem". His MRI was sent to multiple Doctors throughout the islands of Hawaii, and we were told that not one doctor wanted to take his case. Which led us to search elsewhere. Weeks later Dr. Nader Sanai of Barrow Neurological Institute in Arizona took our dad's case. We flew to Arizona to meet Dr. Sanai on Dec. 11 and found out our dad would be needing a craniotomy (brain surgery). Two more MRIs was done on his brain and spine to ensure he only had one mass, then his Craniotomy was performed on Dec. 20th. After 6 hours of surgery, Dr. Sanai and his team was able to remove all of the tumor. But due to the type (Ependymoma) and the aggression level of his tumor, we were told "he has a long road of recovery ahead of him".

When our dad woke up, he wasn't able to see, talk, walk, or swallow. Although our dad is working with Physical, Occupational, Speech, and Vision therapy to relearn how to do all these things again. From his difficulty with swallowing he is left with a feeding tube in his stomach, but remains humble and is working hard to get back on track. He is aweing the nurses, therapists, and Doctors with his kind heart and perseverance to reign all of his Physical short comings.

After recovering our dad will need 6 weeks of radiation. Without radiation the tumor will be back in 5 years.

So given that, here we are asking for your kokua (HELP) in helping our dad recover fully. All donations will be put toward medical and living expenses. MAHALO NUI!!! Maekayla and Ma'alahi.




+ Read More
Hi everyone. Our dad has been in the hospital since April 20th, the day he got intimated because of the seizures. Since then he's been through a bunch of tests: EEG (a test that watches his brain for seizure activity), and a few ultrasounds. He started to do some physical and occupational therapy, but eventually his blood pressure started to be too low to endure and therapy. A lot of days, he just had to lay down and hope that his blood pressure will go back up. The doctors struggled for a while to get his pressure back up, when they thought it was getting better... again his pressure would drop low again. Today we learned that he has this disorder called Neurogenic Orthostatic Hypotension (nOH), which is usually only caused by previous Neurologic diseases such as Parkinson's disease. We were told that nOH is a life long disease, that his pressure won't get better. We just wanted to thank you guys for your guys support through this journey with us.
+ Read More
Hi everybody, my dad had a set back and he's back in the hospital. He had a few grand mal seizures also known as tonic clonic seizures which prevented him from breathing, he coded and they eventually needed to intubate him. He's stable and is working with the therapy team at the hospital to get better. If it would be possible to share the campaign it would be greatly appreciated. Thank you for all the help and blessings.
+ Read More
Swallowing update.

He has shock stimulations on his throat underneath that wrap around his head and that helps him swallow. He cannot swallow without the stimulation. He still see’s double and is numb from his hip down to his toes but, the swallowing is the biggest challenge he has to overcome while he’s here.
Eating Vegetable Lasagna
+ Read More
Hi everyone, my dad still needs assistance with walking. His weight is shifted more to one side more to the other and this machine called the exoskeleton helps him get his weight balanced by putting more weight on the side needed and also by helping him take his steps. He is doing a lot better in comparison to before. Before, he would do these little shuffle steps and now he can take a few steps while holding onto something. Through out the day I’ll show you more of the therapy he does to get better. My family and I want to say “thank you guys so much for spreading the word about this campaign and contributing to my dads recovery process”. And like me and my beautiful family always say “we’ll be back with more videos”...
+ Read More
Read a Previous Update

$20,110 of $50,000 goal

Raised by 150 people in 17 months
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
RM
$100
Ryan Mojica
10 months ago
CK
$75
Charles Kenney
11 months ago
CK
$50
Charles Kenney
11 months ago
AT
$100
ANITA TATUM
11 months ago
CK
$145
Charles Kenney
12 months ago
CK
$50
Charles Kenney
12 months ago
WR
$200
Willie Reyes
13 months ago
TS
$100
Travis Santiago
13 months ago
CK
$100
Charles Kenney
13 months ago
CK
$120
Charles Kenney
13 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.