Help Lorie pay for surgery
My name is Chris, my brother Matt and I are trying to raise money for my mother's upcoming brain surgery. Eight years ago she was told there was two brain tumors. One sits in the pineal gland and one is in the hippocampus. Because of this everyday has been a continual experience of suffering with headaches, nausea and life altering changes. Things like loss of the ability to drive, numbness of limbs and loss of motor skills. Even though she has been fighting this issue for many years, the doctors in Canada will not acknowledge that surgery needs to be done. Recently there has been an acceleration in side effects and we are unsure how much more suffering she can bear.
We have managed to make contact with a neurosurgeon in Australia that is leading the field in minimally invasive neurosurgery, and has confirmed he would indeed do the surgery. In order to make this a reality we are now confronted with the task of raising money for the surgery, and for a lengthy recovery. Time is of the essence as the quicker we can get our mother in surgery the better chance she has.
Lorie, our mother, has always been a caring, loving and supportive mom and grandmother. She is a hardworking artistic free spirit who recently found her passion for painting. She is a open soulful person that you can consult and trust in for anything, and that is why we are trying to find help. So for her we can do anything.
Thank you for the time in reading this and please consider donating, any amount makes a difference. If you feel inclined, share this page on any social media you can.
Our heartfelt thanks, Chris and Matt.
Not long after my Son's started the campaign, I was led to reach out to a neurosurgeon in Germany. He so graciously reviewed my 1000's of MRI images, listened to and acknowledged my symptoms as being from my tumours, and has offered to help me!
Prof. Dr. Henry W. S. Schroeder is well qualified to remove my tumours and I have complete confidence he will pull me through this with flying colours!
While Austrailia was what I thought the top choice, I am overjoyed to learn Germany is right up there with them.
This makes this so much more doable for me and in the timeframe that could save me some pretty awful permanent damage. These tumours may be benign but they are pressing on vital structures and will cause permanent damage, if they haven't already. Last couple weeks I've had more & more double vision & difficulty focusing on objects. They are slow growing, so things will only get worse for me.
My new fundraising goal is $50,000
Surgery is 24,000 euro (roughly $37,000 cad). I will be in hospital in Germany until I am able to come home (so no hotel stay or caregivers needed), another big savings! I will still need travel expenses of course as well as sufficient healing time, before I can get back out & join the world!
I thank you all from the bottom of my heart for saving my life ❤ There are truly no words that could even come close to the gratitude and thankfulness I have for each and every one of you and the gift that you are so selflessly giving me. I love you all ❤ Lorie
So .. Welcome to my world ..
I've known for over 7 years that I have a cystic tumour in the center of my brain, as well as a 'suspected' low grade glioma in my right hippocampus. I was told it was too dangerous of an area to operate, and they wouldn't touch me until it became life threatening.
I was having symptoms and my life was impacted even then, but, I thought there was no hope and I would just have to learn to live with it, until I couldn't anymore. I'm at that point. Where I would rather die than live like this.
I spent the last 4 years building a business that allowed me some leeway in my schedule, and, I chose most days apart so I wouldn't become too tired. I was completely supporting myself, and doing okay at it. In the last month I've had to let all of it go. I become exhausted if I spend more than an hour on my feet, I have to sit down for that long after to recuperate. Work is out of the question for me right now.
I have this pressure headache that never goes away and is made worse by EVERYTHING. I'm constantly dizzy. If you see me walking somewhere you'll likely think I'm drunk, I have what they call "drunken walk", my balance is completely off. I can't make fast moves or my world spins. I can't watch fast movement or my world spins. T.v. is out unless I watch a small screen, my brain can't handle big screens now. Along with all this dizziness comes nausea, those come hand in hand.
My "bad" headaches cause me to vomit & shit myself, like food poisoning, only it's not. It's my central nervous system playing games, the cystic pineal tumour is after all, a central nervous system thing.
My memory is failing, I can't remember words, I call things the wrong name constantly. I laugh about it when it happens but inside I'm scared shitless. I'm starting to forget how things work, I find myself staring at something, trying to remember what it's for, knowing I should know & that it's something so small .. But .. My brain just won't cooperate.
I'm so exhausted all the time I can barely look after myself. If you see me out somewhere, know that it took every ounce of my energy to do it. You'll likely see me smiling, I hide my pain pretty well. What you won't see is me when I get home from that outting and crash for sometimes days ... I choose my activities carefully, nothing too overstimulating, or my brain starts to "shut down".
I can no longer drive at night because oncoming lights blind me. I wear sunglasses constantly, even indoors, florescent lights are a huge NO. I'm sorry if you think it rude I don't take them off when I'm speaking with you, I'll take your misperception over the headache it will cause me to have ... I have a book chapter of symptoms but you get the idea ..
Basically my life has become a living death .. I've considered assisted suicide, still haven't ruled it out. I don't want to live this way anymore. I need help. I wish the Canadian medical system could help me, but sadly, they cannot. They lack the equipment and expertise. This 2cm "lesion" in the center of my brain is causing mass effect on nearby structures, slowly killing me ..
I am so grateful to everyone who helps me in this in any way.
I know what I'm asking of you is massive, it weighs heavily on my shoulders. Fact is, I may die during the operation, it's one of the most dangerous brain surgeries. Which is why I went to the best neurosurgeon for help. His outcomes are nothing short of a miracle, and, I know he will fight an epic fight for my life. I'm not going to Australia for a "vacation", neither I, nor my caregivers, will even see Australia. Once I'm out of hospital, I will be in a dark room healing, my caregivers will be caregiving, and we will stay put until I am cleared to fly home (hopefully 2 weeks post-op). This will be the fight of my life and will be the hardest thing I've ever faced, and, I've faced a lot in my life ..
My healing road will be a long one, but, I know, that somewhere in my future, I can live a life that is nothing like this one, and it gives me hope.
I don't know how I will ever be able to repay you for being a part of saving my life. I thank you all from the bottom of my heart ❤
These are my tumours. I've added a normal mri (thanks Google), if you compare mine to it you can clearly see where my "lesion" has filled the area and even flattened out my tectal plate (the long flat ridge to the left of my "lesion". When you see it you can better understand what I'm dealing with ... The hippocampal tumour is on the right side of my head but mri's are in reverse, if you didn't already know .