Help me walk
Whelp, as most of you know, I was diagnosed with Primay Progressive Multiple Sclerosis 2 years ago. Only 5-10% of all MS patients have Primary Progressive and it is currently untreatable (although I'm excited to be starting the first medication for my type in the next few months (waiting for it to finally clear FDA).
ANYWAYS, I currently have a really hard time walking. My MS affects my right side and I have trouble raising my foot when I walk. This has caused me to be limited to walking on a few blocks and I have a pretty bad limp all the time now. I just found out about this incredible device called a Walk Aide that fires electric signals to my leg everytime I lift my foot that keeps me from tripping on my foot. There is just NO insurance coverage so I have to pay the cost completely out of pocket. Please help me be able to get one of these and be able to walk around again and hopefully even hike again!
Another update worth posting. So with this new drug I'm on, I'm supposed to stop getting worse. And since my last post, I still haven't gotten any worse, Which is GREAT. As you know my left side is unaffected and its all the right side of my body where I've lost the ability to use my muscles to their full potential.
The drug does not guarantee any gained back muscle recovery (based on the clinical trials), but I am happy to announce that I am definitely getting stronger. It is a subtle difference, but over the past couple of weeks, I have noticed a better ability to flex my right pectoral and right bicep/tricep, This basically means the muscles are becoming more responsive to the nerves that are trying to utilize them.
For the last 2 years I have consistently gone to the gym 4/5 days a week, and slowly have had to decrease the weights that I use in my work-outs. Well I am finally able to increase that weight and am seeing better response from my right side.
Please note: These noticed changes are very small, but its a step in the right direction which is wonderful.
My new medicine Ocrevus has stopped me from getting worse, but my intense auto-immune diet, constant work-out regimen, weekly Physical Therapy, 28 daily vitamins, and never wavering drive is what I credit for this recent victory.
I've attached an image of my right and left bicep from a few months back so you can really see the difference in each side of my body. These photos were taken at the same exact time.
With this disease, I normally get slightly worse every 3-4 weeks. Its hard to be certain, but I don't believe I've gotten worse in the last 2-3 months, which is awesome and means I've managed to halt the disease.
I have a crazy regimen of:
28 vitamins a day
Working out 4 times a week
Neuro-Certified Physical Therapist
My Walk Aide
My intense Auto-immune diet
My new drug Ocrevus
But the important thing is something is working and it feels great to finally have taken hold over this thing, even if its minor.
As for the Walk Aide, it still works great and I wear it daily. My nerves are actually starting to retrain and I am walking better without it, which I try to do once a week.
All good news. Stay tuned for any future progress.
Things are going great with the Walk Aide and I can tell I'm walking much better with it. I started doing weekly Physical Therapy to help fix some of the bad habits my walking problems have created. I continue to use it everyday and get more comfortable.
I also really want to tell you all about something else. So many of you have shared this crazy intense diet called the Wahls Protocol with me, and after knowing about it for almost 2 years, I decided enough is enough and to finally commit to it.
Incredibly my girlfriend Autum has decided to do it with me and does almost all of the meal prepping for us. Her support in everything has truly been a gift. I've been on the diet for almost 2 weeks now and although I miss pizza, I'm doing pretty great on it.
I've also had to almost completely cut drinking alcohol, which is tough. But I'm at the point of health first, no excuses. I can still enjoy the occasional Whiskey on ice or a gluten-free beer.
Please watch the youtube video I've added about my diet and I would love to answer any questions. Wish me luck and hopefully I start to see some gained back strength.
So happy we were able to help you a little. My, you must be a well liked guy! Here is to hiking and more world travels!
awesome man, when can we get a hike in!?
Woo hoo Kevin!!! I'm so happy for you!