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Help Kelton go to Washington, D.C.

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My son Kelton has a genetic disorder by the name of Hypohydrotic Ectodermal Dysplasia. This means he was born with only a  few teeth, has very thin wispy hair, and his body doesn't produce sweat.  One of the biggest struggles Kelton has faced is his lack of teeth. Let's face it; you need teeth to do a lot more than you can even imagine.  He has issues eating certain hard foods and problems with speech, to name a few.  The bigger problem is that most dental insurance companies won't cover dentures or implants for patients who have Ectodermal Dysplasia. To them, it's all cosmetic procedures that aren't necessary. Little do they know to someone who has HED it's considered a necessity for life! 

My family is part of the National Foundation for Ectodermal Dysplasia and they are working hard to pass a bill called Ensuring Lasting Smiles Act. If this bill passes, it will make insurance companies pay for the procedures to get them the smiles they deserve!
We are heading to Capitol Hill on July 17th to advocate for the Ensuring Lasting Smiles Act. And we were picked to receive a stipend through NFED to go. Unfortunately,   it's just not enough to get us there.  So I'm asking if there's anything you can give to help Kelton go to Washinton D.C. to advocate and meet people who are just like him!! 

Thank you so much for anything help you can give. We are forever grateful for all our family and friends!

Organizer

Kristin Lynn Robins
Organizer
River Ridge, LA

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