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Help John Fight Brain Cancer!

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Hi there! My name is Rose, and my family and I are asking you to please help save my brother John's life. John is 35 years old and is currently battling an aggressive, life-threatening brain tumor called a glioblastoma (GBM). The average prognosis for a GBM patient is 12-15 months. There is no standard treatment for recurrent brain cancer and this presents both a financial and medical challenge. John’s current treatment plan includes Avastin and Keytruda infusions, but these treatments are not curative, so we have been tirelessly searching for more options. Through outreach to many doctors and foundations, John has been offered an opportunity to participate in a new alternative treatment that is not covered by insurance. Please help John in his battle with brain cancer!

In 2012, John was a typical 29 year-old living in Chicago, building a successful career, and engaged to the love of his life, Allyson. One day at work, John was in a meeting and very abruptly started seizing and was rushed to the emergency room. Everything changed for John and our family that day. John was diagnosed with an anaplastic astrocytoma, a type of brain cancer. He underwent an awake craniotomy which removed 60-70% of the brain tumor. Immediately after surgery, John started radiation, chemo, and adopted lifestyle changes which doctors and researchers thought would be helpful.

(Here is John after his first surgery with his neurosurgeon, Dr. Alfredo Quinones-Hinojosa (Dr.Q),  in 2012)

From 2013 to 2017, the conventional treatments helped stabilize John’s tumor and John and Allyson started a family by welcoming first Dennis (now almost 4 years old) and then Matthew (now 1 year old). John continued to work, but also committed himself to encouraging others fighting for their lives through the Livestrong Foundation. He has spoken at and participated in numerous Livestrong events to help inspire others, all while continuing his own fight.
 
(John, Allyson, Dennis (3), Matthew (1))

Last May (’17), just a few weeks after Matthew was born, John went in for a routine MRI that produced devastating news; the tumor suddenly showed significant growth. This time the tumor was so aggressive that he started losing some of his vision and speech. In January (’18), John underwent his second awake craniotomy which was more invasive and painful than the first. The initial news was promising as Dr.Q and his team were able to get almost 90% of the tumor.

(John in the ER on Christmas Eve 2017- always smiling!)

However, the pathology results came back with the worst news to date- John’s recurrence was now a GBM. A month post-surgery the tumor had grown back to its original size, and a new tumor was found shortly after.  Despite all of this, John continues to be the most positive, empathetic and loving person you will ever meet. I think anyone who knows him agrees that he has a smile that is uplifting and a demeanor that can change the entire tone in a room. John is a fighter and he is determined not to lose this battle!

(Watch this video of John featured on the news as he was biking across Iowa at Ragbrai 2015. He talks about overcoming obstacles and staying positive!)

This is where we need your help. John has serious vision and speech impairments which have ended his ability to work. Through outreach to many doctors and the foundations working to cure brain cancer, John has been offered a promising opportunity to participate in a new alternative treatment. Unfortunately, the treatment is not covered by insurance. The cost for this treatment is substantial, around $100,000, and the need to start is urgent! To date, John and Allyson have paid for all medical costs in excess of insurance, but this is more than our family can handle. Please know that we would not ask for this help if we did not feel it was completely necessary.
 
By donating to this cause, you are helping my brother get the treatment he needs to keep fighting! Additionally, your donations will enable doctors to pursue these leading edge treatments in research that potentially could save others from this horrible disease. Any funds raised that do not go towards treatment will be put towards providing John’s young boys a secure future.

Thank you in advance for all your love and support!


(Family with Santa! John is wearing the Optune system, a device that sends electric waves through the brain in hopes to hinder tumor growth)

(Chefs John and Dennis doing one of their favorite activities together; cooking!)

(John & Matthew)

(John & Al sporting their Livestrong gear down in Florida post surgery #2)
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Donations 

  • Barb and John Heger
    • $200 
    • 6 yrs
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Organizer and beneficiary

Rose Anthony
Organizer
Riverside, IL
Allyson Mahoney
Beneficiary

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