Help Jayden Georges

4 years-old Jayden, wrapped like a little mummy, living like a burn victim who will never heal.  Our baby boy was born with a rare skin disease called Epidermolysis Bullosa, (EB).  There is no cure. 

 We are Milouse and René, Jayden's parents, we need your help. We have been financially desperate for the last four years, doing all we possibly could until running out of options. 

Photo by JEREMIAH WILSON/TCPALM - October 9, 2017

We both used to work outside our home and had hired help, but we encountered serious problems. Last August, his nurse stole his methadone, a prescribed pain-killer, adding water to what was left so that we would not notice. As a result, I quit my job as an Uber driver to care for Jayden from morning until evening, seven days a week. My wife, Milouse, works as a nurse on night shifts at a nearby hospital. When she returns home, she helps as much as she can with our daughter. At each change of dressing, every other day, she can’t get any rest hearing our child crying in pain, and her health has deteriorated as a result. It has been her situation for nearly the last four years. This terrible disease attacked our family physically, emotionally, and financially. The cost of medical supplies, specialized equipment, modifications to our family home, and trips to specialists in and out of state are beyond our means.


About EB: Because of the fragility of their skin.  
Children with EB are called "Butterfly Children". Because of the severity of the wounds on his legs and feet, and despite physical therapy, Jayden has never walked,  and rarely played with friends like other children. He has never been able to eat cake on his birthday because he is fed through a gastric tube. He has never been able to live without crippling pain. During his short life, Jayden has suffered more than most of us ever will in our lifetime.


EB every day: Jayden faces incredible challenges. His paper-thin skin can easily be torn by the slightest touch or abrasion. A simple hug can damage his skin. Jayden blisters inside and outside of his body like a burn victim. Due to his limited mobility and susceptibility to infection, our boy spends most his time in his room. 

Caring meticulously for his wounds and controlling his environment is what keep him alive. Every other day, Jayden must be bathed and have his blisters lanced, drained, and then rebandaged to prevent further injury and infection. It is a long and agonizing procedure.  (Video from TCPALM, scroll down further below. )

When Jayden gets a cold, his breathing is compromised, he must then take steroid medication which will decrease the swelling caused merely by coughing.
We must monitor him closely during those events. When complications often arise, he must be hospitalized. Visiting the emergency rooms has been part of his life. Somehow, his spirit remains undaunted.


During rare car rides, Jayden truly enjoys wondering at nature and the world around him. Despite his years of medical treatment, pain, and isolation, our precious baby has grown into an incredibly patient and loving child. His profound courage and gratitude are a constant inspiration to our family as we continue to adjust to his ever-changing needs. We are very proud of him and our daughter who has embraced completely her little brother.


Every day with Jayden is a blessing. He is bravely living up to the challenge of EB. We do not know how long he will be with us, as children with this disease have a short life expectancy. We are asking you for your help.

If you would like to share Jayden's GoFundMe page, it would make a difference.  

We would greatly appreciate any donation or endorsement.  

Thank you,
Sincerely, Milouse Laguerre and Rene Georges



In the TCPalm, Florida.
Four-year-old with rare skin disease needs help
Anthony Westbury, Opinion Columnist -  TCPalm

Video: Home of Jayden Georges, Port St. Lucie
Jayden Georges, 4, of Port St. Lucie is taken care of Thursday, Oct. 5, 2017, by his father, Rene Georges, at their home on Seaside Road in Port St. Lucie. Jayden suffers from a rare genetic disease, Epidermolysis Bullosa (EB), which causes painful blisters all over his body and in his mouth and esophagus. Video by JEREMIAH WILSON/TCPALM

Jayden's Journey Living With EB

Jayden-Elijah-Georges 

"He had Lost 80 percent of the skin on his body" Meet Jayden Elijah Georges

Wine Tasting Fundraiser For Jayden, October 27 2017

DEBRA - What is Epidermolysis Bullosa (EB)?