Help Baby Alexander
I wanted to start this page hoping to raise some money to help my sister and brother-in-law out with some of the medical costs that they are faced with during this difficult time. So far the medical charges are close to 1 million dollars(due to the MICU and PICU costs and all the tests/medications etc), one of the genetic tests alone is $10,000, and it is not being covered by insurance.
I think they have more than enough to deal with between t heir 19 month old daughter, Cassie and taking care of Alex. Any financial assistance would be greatly appreciated. This would help take some of the worry and stress away so they can focus on getting Alex the proper care and medical needs necessary to
bring him home. We are grateful for any donations and if you are not able to donate please continue to pray for them all.
Hi Rhonda, I tweeted Andrew but wanted to let you know we have been through the EXACT same thing and wanted to give some insights; - Our little girl started having seizures and would stop breathing when she was 3 days old. We were transferred to NICU but sent home after a loading dose of phenobarb stopped the seizures for the next 3 days. - She then had a bad seizure at home the day after and I had to resuscitate her while waiting for an ambulance. We then spent the next month in NICU. - She was finally diagnosed with benign neonatal seizures, which are diagnosed through a process of exclusion as there is no detectable underlying cause. We went through all the same tests that you family are going through which found nothing. - The seizures were controlled using a combination of the medications topamax and kepra until she was 6 months old and out grew the seizures and has developed perfectly ever since. Please reach out if you would like me to pass on our neurologists details who has dealt with this condition in other cases and was amazing for us through this process. Praying for you all through what I know is a very difficult time.
I hope I could help :( but I'm struggling with my dog that needs surgery or might go blind :(