Health is declining fast. Please help!
Donation protected
Up until the age of 23…I was healthy - I am now 42 and have spent the last 19 years struggling with my health. Multiple tests concluded that I was born with Arnold Chiari Malformation 1, which means that my skull is too small for my brain, therefore there is pressure placed on the cerebellum blocking the flow of the cerebrospinal fluid. That's the fluid that surrounds and protects the brain and spinal cord.
I have never been one to see a doctor, but I was forced to approximately 20 years ago when my symptoms started. I had pain throughout my body and because the pressure is mostly in the area of the brain that controls the automatic symptoms such as breathing, heart rate and digestion, I had complications with many organs. After a multitude of tests and after being told by several doctors that I was fine – I went to the Mayo Clinic. The Mayo Clinic diagnosed that Chiari could be the cause and there were two Neurosurgeons in NY that specialized in this and luckily, I had surgery two weeks later.
I was significantly better and returned to work after three months. It was so great to be back to work and live a normal life again! Unfortunately, that only last 7 years… and I started feeling similar symptoms but much more intense than previously experienced. When I followed up with my neurosurgeon he advised they found a link between Chiari and Ehlers Danlos disease. Ehlers Danlos which means that my connective tissue is too weak so many other problems arose from that and I had eleven surgeries to correct these problems.
We later found out that my mother has Chiari and Ehlers Danlos too - so it's genetic. And unfortunately, my son also has it and had no symptoms until he was 20. He’s now 22 now and had his first surgery for his Chiari May 2018. He needs another surgery because he needs a cranioplasty - his skull sunk in and there nothing protecting his brain in the area.
I am currently pending neurological procedures to locate and repair my cerebral spinal fluid leaks in my spine because my dura ruptures due to my weak connective tissue (I have already had 4 dura repairs) ,a stent and possibly fixing my fusion it’s loose. As soon as I am stable enough and I can pay my neurosurgeon, I’m scheduling surgery.
I have been suffering now for almost half my life and my symptoms have been increasing and getting much worst. I have been sick, homebound and bedbound since 2013. The surgeries and treatments are continuing to cost me thousands of dollars of my own money. I have been working with faith, hope and optimism for so long now, searching for a solution so that I can get back on my feet and get back to a normal life. Please help me reach my goal and help me with costs associated to my surgeries, medications and treatments. Please help me by sharing my story and putting out the word out. I thank you in advance for your financial help, consideration, likes and shares.
https://youtu.be/lbbikU9e9k4
I have never been one to see a doctor, but I was forced to approximately 20 years ago when my symptoms started. I had pain throughout my body and because the pressure is mostly in the area of the brain that controls the automatic symptoms such as breathing, heart rate and digestion, I had complications with many organs. After a multitude of tests and after being told by several doctors that I was fine – I went to the Mayo Clinic. The Mayo Clinic diagnosed that Chiari could be the cause and there were two Neurosurgeons in NY that specialized in this and luckily, I had surgery two weeks later.
I was significantly better and returned to work after three months. It was so great to be back to work and live a normal life again! Unfortunately, that only last 7 years… and I started feeling similar symptoms but much more intense than previously experienced. When I followed up with my neurosurgeon he advised they found a link between Chiari and Ehlers Danlos disease. Ehlers Danlos which means that my connective tissue is too weak so many other problems arose from that and I had eleven surgeries to correct these problems.
We later found out that my mother has Chiari and Ehlers Danlos too - so it's genetic. And unfortunately, my son also has it and had no symptoms until he was 20. He’s now 22 now and had his first surgery for his Chiari May 2018. He needs another surgery because he needs a cranioplasty - his skull sunk in and there nothing protecting his brain in the area.
I am currently pending neurological procedures to locate and repair my cerebral spinal fluid leaks in my spine because my dura ruptures due to my weak connective tissue (I have already had 4 dura repairs) ,a stent and possibly fixing my fusion it’s loose. As soon as I am stable enough and I can pay my neurosurgeon, I’m scheduling surgery.
I have been suffering now for almost half my life and my symptoms have been increasing and getting much worst. I have been sick, homebound and bedbound since 2013. The surgeries and treatments are continuing to cost me thousands of dollars of my own money. I have been working with faith, hope and optimism for so long now, searching for a solution so that I can get back on my feet and get back to a normal life. Please help me reach my goal and help me with costs associated to my surgeries, medications and treatments. Please help me by sharing my story and putting out the word out. I thank you in advance for your financial help, consideration, likes and shares.
https://youtu.be/lbbikU9e9k4
Organizer
Mariochi Fernandez
Organizer
Okeechobee, FL
