Ewing's Sarcoma Cancer

$4,330 of $15,000 goal

Raised by 57 people in 40 months
My 43rd birthday, (March) pain began. Suffered until diagnosis of Ewing's Sarcoma 6-14-15, rare juvenile bone cancer, located in lower spine (sacrum). Endured 6 weeks daily radiation, 17 cycles of chemo, daily oral chemo, went through hell. Through it all, I've maintained positive attitude. Began part time job, building stamina, grow out hair. Enjoying life until again, my birthday.  March 12, 2017. Pain, in right shoulder was just too much. MRI, CT Scan, lung biopsy, agonizing days and some pain meds later, was given familiar diagnosis.  4-28-17 diagnosed with reoccurance of Ewing's Sarcoma.  New tumor's located soft tissue, near lung, invading ribcage, on my right side.  With donations I was able to travel here to Dallas, and stay with family, while I'm signed up for the 'Lipoplex' trial. I'm only the 4th to undergo this incredible study plus the oldest patient the doctor's  ever seen with this childhood disease, A perfect fit! I'm healthy, heart lungs and blood all look great. If this treatment works I could be a part of groundbreaking research! Save hundreds of thousands of people. Treatment's VERY time consuming and expensive. Sponser covers only part of the cost. I'm responsible for the rest on no job. Nebraska insurance won't cover anything. Every penny I have or gets goes toward hospital bills. Could be here in Texas for a year, or more. I've left everyone, and everything, behind. To get better. While undergoing treatment, not sure if I'll be healthy enough to work. So, checking into resources available to me. Getting better is my full time job now.
Thank you for your donation. I plan to give back to my community, others fighting cancer, once I'm better, and/or cured of this deadly disease.
Cancer sucks!

-Suzanne 
Gathered below are some links.
https://www.facebook.com/groups/handmadeink/
https://twitter.com/mom_tattoo
https://www.facebook.com/handmadeink
https://www.facebook.com/handmadeinkphotography


+ Read More
I'm in Dallas! Met with doctors and start treatment July 5th. I'm staying with family. Housing costs are covered, thank goodness, but I'm still responsible for medical expenses and they are sure adding up quick. Once I begin study I'll know how it'll make me feel. (If I'm able to work). Thanks to those of you who have helped in the past. Every penny is been appreciated. I'm keeping positive and happy. Life is too short to be upset. Eye on the prize. For each of us. Happy independence weekend everyone. Love u, Sue
+ Read More
My oncologist called late this afternoon with news of a sarcoma trial opening in Dallas, (Children's Hospital of Pediatrics and Oncology) for the 'Lipoplex' trial.
I have to be there ASAP! Called, talked with clinical trial coordinator, so the BALL is ROLLING! Treatment is VERY time consuming. Monday and Thursday, infusion 8 hours. This repeats every week, for four weeks. Between cycles, I'll have two week break (hope to go home to Nebraska for break), then back for treatment, Dallas, Monday and Thursday, 8 hour infusion, four weeks. Two week break. Could be in Texas for half a year, or more. I'm leaving everyone, and most everything, behind. To get better. While undergoing treatment, not sure if I'll be healthy enough to work. So, checking into resources available to me, I'm a Veteran, so checking resources with them, as well. I've been told cost of living in Dallas is expensive. I'm not a wealthy person! So anyway, I'm updating to let you all know what was going on. Thanks for your support. Hugs and much love to each of you. -Suzanne
+ Read More
Last day of treatment was November 21st, 2016!
Friends and family joined me on my last day.
Watch! https://youtu.be/mIFa-Moc16s
Here is group photo of that day. Man I'm standing by is oncologist, Dr Dron (as he prefers to be called). I'm glad to have him as a doctor, love the guy.
Well. I still have cancer. Probably always will. Doctor wants to start me on daily chemo pill, to hopefully suppress tumor.
Things are tight, being sick, living on fixed income. I'm hoping to feel well enough to get a job soon. Doctor says daily pill will exhaust me, but I'm already exhausted, don't think it will make much difference.
I have a few hours of work, a day in me.. with time, that number will hopefully increase.
If you know anyone hiring, or you have/know of legitimate freelance work I can do from home, please contact me.
Still taking donations, if you have it, to give. For those wondering, I fully plan to give back somehow, by volunteering, etc, once I'm well.
Thanks and Happy Holidays from my family, to yours.
Below are links to videos me and friend made:
Cancer Can't: https://youtu.be/gH8otvmL3mk
Trailer: https://youtu.be/ZC96ODKjB04
RadiationY song: https://youtu.be/arDuZHhZKZ4
Chemo ended!
+ Read More
Realized I haven't updated since around Christmas. A friend suggested I update things, and let everyone know, I'm still battling cancer. Things have not changed much. I still cannot work, I want to, try to, between chemo cycles, but it takes everything out of me. Not many places want to hire people with cancer who get sick on chemo every three weeks. We still owe on car repairs, and bills. We cannot pay 100% of the monthly bills, which makes us fall more behind with every month that passes. I tell my kids to go to college, that doing so will make things better for them, but will it? Cancer does not discriminate. My moral is low, often want to 'give up'. I'd be lying if I said things are okay. Things are NOT okay. I'm hungry, sick, and pissed off I cannot do much to change this situation. It's hard being told I'm an inspiration, when I feel like a loser. (Thanks anxiety) I try to keep positive, I even try to keep dancing! I'm trying to be 'normal'. I know I am not, that I need rest, I know I need to take it easy, but by doing so, things seem to never get better. I'm unsure what to do, now. Applied for state disability and was denied, because we make too much!? I make less than $500 a month, my husband $1200. On this tight a budget, once bills are (most of them anyway) paid, there's NOTHING left. Food is a luxury. I feel like a burden, the cause of this financial distress. My husband and I have considered breaking up! I'm able to rationalize leaving my husband, because maybe then I can get assistance needed. This is madness. Cancer is now trying to break up my family. I cannot see light at the end of this tunnel, dear friends and family. Cancer really sucks. This past year sucked. I want to beat this and live my life. Tired of being sick and tired all the time. I'm sorry this update sucks!
+ Read More
Read a Previous Update
Kelly Leigh Pickard
37 months ago
1
1

U are in my thoughts and prayers. Kick cancers a**.

+ Read More
Kristal Benton Harris
11 months ago

Rest in peace my friend .

+ Read More
Suzanne Frideres
40 months ago

Thanks for your support! Please share.

+ Read More

$4,330 of $15,000 goal

Raised by 57 people in 40 months
Created July 12, 2015
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$50
Kelly Marsh
15 months ago

love ya, keep fighting! will send more soon. kelly

$100
Robert Pool Sr.
15 months ago

Now is the time to help my daughter Sue! She is in Dallas under going her treatments as a last resort to cure her Ewing's Sarcoma Cancer. Anything will help and it could help save her life!

$400
Anonymous
16 months ago
1
1
PS
$50
Pam Smith
17 months ago

You go down there to Texas and take the (Longhorn) bull by the horns, girl! You are a fighter! I will pray for God's peace upon you as you meet this new challenge.

$50
Greg Krpan
17 months ago

I'm sorry it's not much, but always here for you. I know you are going to kick this thing in the ass and come out stronger than ever

$25
Tabitha Hawkesworth
18 months ago

Best wishes and positive vibes!

Kelly Leigh Pickard
37 months ago
1
1

U are in my thoughts and prayers. Kick cancers a**.

+ Read More
Kristal Benton Harris
11 months ago

Rest in peace my friend .

+ Read More
Suzanne Frideres
40 months ago

Thanks for your support! Please share.

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.