Julianna was diagnosed with Aicardi Syndrome at 4 months of age. Aicardi Syndrome is a rare genetic disorder that interferes with the formation of the corpus callosum, which is the structure that connects the two sides of the brain. In people with Aicardi Syndrome, the corpus callosum is either partially or completely missing. The disorder occurs almost exclusively in newborn girls. Medical researchers don’t believe the disorder is passed from the parents to their child. Julianna had her first seizure at three months of age and continues to suffer from them. They are controlled somewhat by medication but unfortunately she will never outgrow them. She is currently 4 years old but mentally and physically only at about six months old. Since she is not able to walk a wheelchair is necessary. Julianna's parents are looking to purchase a wheelchair accessible van so that transporting her around will be a little easier for them. They have outgrown their family car with the wheelchair and other necessary medical equipment they are required to travel with. Their hope is that they can purchase a van sometime in early 2017. Please consider donating. No donation is too small. Julianna's family would be most grateful.
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