Hailee Carson Liver Transplant
I am the child of a single mother. Please read my story
The reason this page was setup by my cousin Nancy Carpenter is that the insurance that we have does not cover the transplant.
Hailee is now 22 on the waiting list
Hailee's Journey
Septemer 25th 2 hrs ·
After waiting for almost two weeks to get the final approvals to be on the official Ohio state liver transplant list, my transplant coordinator called today from CCHMC to tell us that we have the final approvals and that I am now on the official list. She gave us the number I am on the list and I am seventh but still low on the list. Thank you to everyone that has been praying and continues to pray for me and my family. Thank you to everyone that shows and gives support to me and my family, it means so much. The battle has just began and I’m still not finished fighting till I cross the finish line. #TeamHailee (repost from my personal Facebook page) I go back to CCHMC Wednesday for a follow up and to talk to my transplant coordinator and to see what the next step is, God has blessed me every step of my journey and I’m not turning my back on him! I hope that my story can inspire other teens, young adults, and even older adults. I want to become an inspiration on so many people to never give, never lose hope, and never lose faith. Thank you to everyone for all you do for me and my family! -Hailee-
August 2, 2017
Psalms 30:2
"LORD my God, I called to you for help, and you healed me"
Today was a busy and very tiring day but it all turned out to be a good day in the end. First MRI went good, Echo went good, and clinic we got the news we were hoping for and the last MRI went good. At clinic they told us the test results from last visit which was what we were needing to hopefully start the transplant process. They done a genetic test to test my mutations to see if they are all good, and they found that I have a bad mutation which is part of the cause for my liver disease. I have a vary rare disease and they don't have a lot of research on this mutation because they haven't saw many cases like mine. I will be able to start school this year but in a few weeks i will be back to CCHMC to meet with the transplant team to start the evaluation. I want to thank everyone for all of their prayers and continues prayers. You all are truly a blessing. I am not finished fighting the fight, I am strong and won't let this disease bring me down!
May 26 ·
every sick kid has a story, and this is mine. not many people know what is exactly going on because i have keep it away from so many because i didn't want anyone getting the wrong impression on how or why i have got my disease. it all started in September, about 9 months ago, i constantly keep a cold and was sick a lot, in and out of the pediatrics and they never said anything just the normal, flu, cold, pneumonia, etc. well i started getting worse and worse and began have side pain a lot, i went to a specialist and had a ultrasound, to find out i had huge gallstones the size of gumballs, so i had gallbladder surgery. the day of surgery my surgeon told us it will take about an hour a fast surgery, i was in the mere for about two and a half hours because she had a hard time removing my gallbladder and had to do a liver biopsy, we never knew why until i went to get my tube removed from my side the following week. she was very concerned when we came that day, she got all the paperwork from the day of surgery and the pictures she took while she was inside, she showed us pictures of a normal liver, and then the picture of mine, she told us that the liver biopsy showed up that i had cirrhosis of the liver, and she didn't know why at my young age with all the test to even get it like a normal person all came back negative. she also found a spot on the left side of my liver and was not sure what it was so i had a MRI. all that news wasn't so bad until today, when i went back for the MRI and bloodwork results, today she told me the spot is still there but is not sure if it's major or not yet, she also told me that i have stage 4 Cirrhosis of the liver, and that my body can't heal itself because my blood doesn't clog like a normal persons anymore and because my body doesn't produce stuff to fight infections anymore, my body is fighting itself. Today was the worst day of getting news. and they still aren't sure why or how all of this is progressing and why i have it, i have been to so many doctors here in london, i have went to UK to doctors, i have had blood work so many times and nothing is explaining to them how i have this disease and why everything is progressing so fast like it is. i am now switching to a different hospital and going to Cincinnati Children's Hospital because that was the best decision. Dr. Pham told me today, i am a zebra, a beautiful zebra, i have a very rare disease for my age, a very rare spot, i am a zebra. i am a strong young lady, that has been raised by faith and to always trust in god, at this point all my trust is in him for my healing, i know god works wonders, he works wonders on so many children like me, and i have faith in him to heal me. i want to thank everyone for supporting me on this long journey and continuing to pray for me, you all are absolutely wonderful and a huge blessing.
Hailee Carson
2 Timothy 4:7
"I have fought the good fight, I have finished the race, I have kept the faith."
Today I went back to the doctor for them to tell us if I could do the steroids and be okay or try another medicine, and the answer from Dr. B was no, no medicine is going to help and the side effects would just affect me worse than I already am. My liver is in very serious condition that the scaring is so in depth that there isn't any medicine to help, I will be needing a new liver by the end of this year. I had another genetic test done today because they have ruled out that it's not a autoimmune disease. I will be going back in two - three weeks for the results on that test to see if it is the cause. We are waiting to find the cause before we start the transplant process because we have one chance at this. I also became a research patient today so that my rare case can help other kids find a cure. I want to thank everyone that has been praying and continues to pray, I ask that as you pray to pray to find a cause because that's all we are missing. I have been through a lot, more than most 16 year olds and continue to go through a lot. I continue to fight the fight, I will continue to fight till i finish the race, and I will never lose the faith. I am a child of God and I am all in Gods hands.
