Medical Costs for Baby Averie
Donation protected
On October 4th, 2015, we welcomed our beautiful baby girl Averie into the world. Prior to her arrival we had a very emotional pregnancy. At just 18 weeks we were told that there was something wrong with our baby. Throughout the next 22 weeks all we could do was worry and hope everything would turn out okay. After many tests and 31 days in the NICU, they finally discovered what Averie had. She was diagnosed with Johanson Blizzard Syndrome, and believe it or not she is the 31st case that doctors have seen world wide. This specific syndrome affects several organs throughout the body. Averie has; Cutis Aplasia, Small Nasal Passage Ways, Profound Deafness in both ears, Hypothyroidism, Stage 4 Kidney Disease, Insufficient Pancreas, Enlarged Clitoris, Double Uterus and a Imperforate Anal Fistula.
Averie in turn has several doctors appointments a week to keep an eye on everything. As we all know, doctors appointments, medication, food and traveling can add up really quick.
We recently had to switch her over to ready to use pregestimil to help with her malabsorbed pancreas, this alone cost $85.00 for 96 ounces. A case lasts her 4 days. We spend $637.00 a month alone on her special formula that she needs, which is not covered by WIC.
Averie has been diagnosed profoundly deaf in both ears. A hearing aid alone can cost up to $6,000.00 per hearing aid. We know that she will gain some kind of hearing, but at a year old she will have to go under and receive Cochlear Implants for each ear, which can cost anywhere from $30,000-$45,000 per ear.
When Averie hits 22 pounds, she will under go her final 3 surgeries. They are; a kidney transplant, Reconstructive surgery of her lower pelvic areas and then reconstructive surgery of her nose.
My fiancé and I do everything we can to make sure our precious baby girl gets everything that she needs. Due to me being unemployed because of all of her health reasons all of these added monthly costs have really taken a toll on paying bills on time and affording food and gas for our family.
We aren't the kind of people who ask for help, but in a time of need we would greatly appreciate any kind of donation towards us being able to give our baby girl everything that she needs.
Thank you and God Bless.
Nick, Amanda and Averie Wilson
Averie in turn has several doctors appointments a week to keep an eye on everything. As we all know, doctors appointments, medication, food and traveling can add up really quick.
We recently had to switch her over to ready to use pregestimil to help with her malabsorbed pancreas, this alone cost $85.00 for 96 ounces. A case lasts her 4 days. We spend $637.00 a month alone on her special formula that she needs, which is not covered by WIC.
Averie has been diagnosed profoundly deaf in both ears. A hearing aid alone can cost up to $6,000.00 per hearing aid. We know that she will gain some kind of hearing, but at a year old she will have to go under and receive Cochlear Implants for each ear, which can cost anywhere from $30,000-$45,000 per ear.
When Averie hits 22 pounds, she will under go her final 3 surgeries. They are; a kidney transplant, Reconstructive surgery of her lower pelvic areas and then reconstructive surgery of her nose.
My fiancé and I do everything we can to make sure our precious baby girl gets everything that she needs. Due to me being unemployed because of all of her health reasons all of these added monthly costs have really taken a toll on paying bills on time and affording food and gas for our family.
We aren't the kind of people who ask for help, but in a time of need we would greatly appreciate any kind of donation towards us being able to give our baby girl everything that she needs.
Thank you and God Bless.
Nick, Amanda and Averie Wilson
Organizer
Amanda Klavitter
Organizer
Commerce Township, MI
