Heading up a better path

$4,777 of $35,000 goal

Raised by 45 people in 56 months
On Oct 6, 2014, the doctors gave their prognosis to a 14 year old boy and his parents… Elliot is progressing to quadriplegia.

Due to progressive and irreversible curvature of his spine above his cervical fusion, putting pressure on his spinal cord and causing compression and swelling.  The family is pursuing second opinions for a solution at this time.

His parents suspected something was wrong the summer of 2004 when Elliot was just 4 yrs old. When he got upset and cried hard, he would stop breathing and pass out, so the testing began.  On October 6, 2004, a neurologist diagnosed him with a brain tumor. This was the beginning of a life changing situation.

 On October 8, 2004, Elliot went in for brain surgery at Riley Hospital in Indianapolis, IN. While in surgery, they discovered it was in the brainstem and inoperable at that point, but were able to take a biopsy and found it to be benign (praise God!).  After being monitored every 3 months by MRI’s, in Dec ’05 the tumor showed growth. For the next six months he underwent weekly chemotherapy until an MRI showed additional growth. He was suffering from symptoms of the tumor: lost ability to cough, difficulty swallowing, and sleep apnea.

On July 20, 2006 Elliot had brain surgery at Riley, and approximately 90% of the tumor was removed.  However, due to the surgery he suffered from overall weakness, lost his ability to swallow, his right vocal cord was paralyzed, and he had diminished strength and control of the right side of his body. He remained in ICU for 3 months, until Oct ’06.  During that time he had a tracheostomy and a VP shunt placement. Those months proved to be very difficult for the whole family, as Elliot had many highs and lows and multiple complications, some being life threatening. October/November ’06 brought good news and bad. Elliot was moved out of ICU and into Methodist Pediatric Rehab, had a G-tube placement…and more tumor growth. From December ’06 through February ’07, he had proton radiation in Bloomington, and this final treatment stopped the tumor growth.

Since then, Elliot has undergone PT, OT, some speech therapy, regular MRI’s, and was showing much improvement, until a couple years ago.  At first, his declination was slow, but then continued more rapidly in his balance, control, strength, and loss of feeling. Summer of 2013, he had a cervical fusion on his C2-C4 at Riley and had a G-tube placement due to loss of swallow. Although his swallow improved and his G-tube was removed, there was further decline in mobility, and much more rapidly. This last summer, 2014, Elliot underwent 60 treatments of hyperbaric oxygen therapy, however it hasn’t yet improved his situation…and Elliot has become wheelchair bound.

Please pray for and help Elliot’s family, who is in need of financial help with medical bills, as well as needing a van that is wheelchair accessible. Even after everything Elliot has been through, he continues to maintain a very positive attitude, and remains as strong as ever in his faith in God. He is an inspiration to anyone he comes in contact with.




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Great news!! Elliot is going home today!! Praise the Lord! Yesterday he had his final therapies and assessments and he has shown amazing progress! He will continue with PT and OT once he gets home which should help him continue to progress. He should be able to get around the house and shorter distances with a walker and only use a wheelchair for longer walks. So thankfully his original prognosis of being quadriplegic has changed!! God is so good!! Thanks to everyone who has supported and prayed, it has gone to great use!!!
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Elliot's hard work keeps producing more great news!!! He keeps getting stronger and making more progress each day. He is starting to do more for himself and becoming more independent again! On Thursday he walked on a treadmill while strapped to a harness for over 20 min with just a few breaks! The rehab and Elliot had a few visitors, Santa, his elves, and the Bears' mascot, which made for a nice break! So much gratitude to God for leading the family to this hospital and rehab facility! Thanks to all who have supported and prayed for Elliot and the family! Please continue to pray!
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Things keep looking up!! Last Tuesday Elliot was moved to the Rehabilitation Institute of Chicago. He has become accustomed to his brace and is learning how to maneuver in it. This is a good thing since he will, be in it for 6 months.
It is also the goal of the Rehab to have Elliot home in 3 weeks!! Elliot's recovery is still going amazingly well! He has had no pain meds for about a week and has no pain despite the recent surgery and hard work in therapy! He has also started walking in therapy and is able to go further each day! He is now eating great and is so thankful his swallow wasn't taken by the surgery as in the past.
We are so thankful God has worked His miracles on Elliot! Praise be to God! Please continue praying! Thanks to all!
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God never ceases to amaze me! Elliot is out of the hospital and moved to rehab! Today he will get evaluated and start therapy. He has never had this kind of quick and miraculous recovery before! God has responded to our prayers, please keep them coming! Thanks to you all for your support!!
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$4,777 of $35,000 goal

Raised by 45 people in 56 months
Created November 4, 2014
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RF
$50
Russ and Barbara Ford
54 months ago

Elliot, we have been keeping track of you through your Uncle Tim and your mom's posts on Caringbridge. You are an inspiration with your great spirit and determination. KEEP UP THE GOOD WORK!!!!

RF
$100
Russ and Barbara Ford
54 months ago

Elliot, we are sending this as our Christmas Gift to our Daughter and Son-in-law, Christi and Joey Bedwell.

RF
$50
Russ and Barbara Ford
54 months ago

Elliot, this is our Christmas Gift to your Uncle Tim, who loves you and is so proud of you and your progress.

DH
$100
Dale-Ann Hosack
54 months ago (Offline Donation)
$500
Anonymous
54 months ago (Offline Donation)
AS
$50
Angie Stutsman
55 months ago
MH
$100
Marcie Hunter
55 months ago
VS
$200
Vera Swartzentruber
55 months ago (Offline Donation)
DD
$50
Don & Rita Dean
55 months ago (Offline Donation)

Hoopeston, il

AR
$400
Anne Rhoades
55 months ago (Offline Donation)

Hoopeston, il

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