Get JT to Colorado for TREATMENT

$2,490 of $5,000 goal

Raised by 33 people in 42 months
JT has been bravely battling Epilepsy for 7 years with no relief. He has been on dozens of medications, most causing terrible side effects yet not controlling the seizures. He has had thousands of convulsive seizures as well as hundreds of involuntary jerks and staring spells a day. He has tried IVIG, high dose steroid treatment.. Nothing works to control the had seizures. When I heard about The success of Charlotte, and all the cases now in Colorado who have amazing seizure reduction using a low THC high CBD oil, I felt hope. Each year his condition had worsened, he is no longer able to attend school, he has a hospital homebound teacher and has full time nursing care when I am not with him. After JTs hospital admission last week following a 45 minute seizure it became clear there are no more options here. I Sat down with his neurologists and just cried, I said I'm not putting him through this anymore when there are no answers. Putting him through multiple IV sticks where he has to be held down by 5 people, being confined to a bed for days for EEGs, those EEGs that he now has to put in restraints to get on because he hates it so much and fights it with all he has. He has handled this all with unimaginable strength and he deserves a compassionate alternative. I am a single mom and making this move is so scary and there are so many expenses but I have to help my baby. Im not one to ask for help but I can't do this one on my own. I truly appreciate and love you all and thank you so much for your support.
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It's been quite a journey, getting everything set up for what JT needs, starting a new job, getting adjusted and going to a million appointments! This is by far the toughest thing I've ever done but I know this is the where JT has the best chance at a good life. He is doing well on the oil, there has already been a seizure reduction!!! I will update more as we continue this journey. Thank you all for your support
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Thank you so much for your support! The packing has begun. Since I'm doing this move alone and JT has so many seizures taking a uhaul is not safe. I have had to hire movers to move our things and our car and purchased plane tickets to get us out there. This is at an extraordinary cost, about $7K. As a single mom this is very overwhelming! I am having to place myself in debt to accomplish this but I will do whatever it takes. I cannot thank you all enough for contributing to the costs to get JT to Colorado to get the treatment he needs!
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I have found a condo and move in on June 1!!! Now I just have to arrange to move everything! This is very overwhelming, scary and expensive but also very exciting to think about how great this will be for JT! Thank you all for your support we couldn't do it without all of you!!
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$2,490 of $5,000 goal

Raised by 33 people in 42 months
Created May 6, 2015
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Ramey Littell
41 months ago

Best wishes for better access to therapy in Colorado!

Heather Callejas
41 months ago

I have been a kindergarten teacher for 7 years now and have often seen single mothers who let the burdens of daily life get in the way of how they care for their children. I can't fully imagine the struggles you've faced as you care for JT but I hope this move helps you find something to make his life better. If you can, please look into QNRT therapy - I have seen first hand the amazing results it can produce and Dr. Turner in Atlanta is phenomenal ( Good luck Stephanie!

41 months ago
Nick and Diana Clark
41 months ago

We wish you a safe trip to Colorado and will be thinking and praying for you. Love you guys!

Mindy Petrie
41 months ago

Love u guys

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